International Trigeminal Neuralgia Awareness Day October 7th!
5,071 Comments
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Susan McKinnon
8 years ago
Research into the cause, prevention and cure is needed WHO please add your voice.
C
Connie Needler
8 years ago
I suffer from TN
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Natalie Mullett
8 years ago
I was silent for a long time initially wondering what was wrong with me. We need to increase understanding and research. Treatment if your lucky helps, if you are not makes it worse. Medications don't work for most and have side effects that end up almost as debilitating as the disease itself. We can do better in health care than this! We need research and a strong focus on a cure.
S
Sue Colgan
8 years ago
I have suffered this for years now and suffer a lot of at times unbearable pain
E
ellen ruth flo
8 years ago
I am a TN sufferer and my quality of life is much lower due to medication. There needs to be more research done to find palliative treatments that ONLY target the trigeminal nerve, not the rest of the brain as well.
J
Jeri klein
8 years ago
We need and deserve help please!
L
Lois Coletti
8 years ago
I have had TN for fifteen years and after using medications that leave me groggy and doped up, I have had three surgeries during that time. The pain I have felt is the worst pain imaginable. Opioids don't work for this kind of pain. The disease should be recognized and research is needed to find better answers to the unrelenting pain.
B
Barbara Patterson
8 years ago
good to be able to see how many others also have similar pains.
G
Gulhis Aydin Akyunud
8 years ago
We need a treatment for trigeminal
Neuralgia patients.
M
Maria Cabral
8 years ago
Great.
S
Susanne cross
8 years ago
Very dibilitating illness have been suffering myself for the pass 8 years puts your life on hold in so many ways
C
Christina Lubunyz
8 years ago
As a person that lived with this for many years due to misdiagnosis, this NEEDS to happen!
J
Joy Courtney
8 years ago
I live with this everyday...
B
BLANCA CANALES
8 years ago
Please help us find a cure by adding Trigeminal Neuralgia to your "Health Topic List'
Thank you may God bless you.
A
Anonymous
8 years ago
I have bi-lateral Trigeminal neralgia
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Nancy gutowsky
8 years ago
I am 66 years old and have had trigeminal neuralgia for 10 years now. I am currently taking 900mg of trileptal (oxcarbazine) every day to help control this pain.i still have very painful attacks.
D
Deb Rendell
8 years ago
Please make this condition a priority in research and funding
R
Robyn Rennison
8 years ago
I have lived with this horrible condition for nearly 5 years now and it is debited affecting every area of life. I had MVD surgery in November 2016 but I am now experiencing pain with eating so severe that you just cannot eat. It causes depression and I can't tell you how alone I have felt over the past few years when the pain gets so bad you just want to curl up and die. We so desperately need some more research and treatment for this horrific non life threatening condition.
Research into the cause, prevention and cure is needed WHO please add your voice.
I suffer from TN
I was silent for a long time initially wondering what was wrong with me. We need to increase understanding and research. Treatment if your lucky helps, if you are not makes it worse. Medications don't work for most and have side effects that end up almost as debilitating as the disease itself. We can do better in health care than this! We need research and a strong focus on a cure.
I have suffered this for years now and suffer a lot of at times unbearable pain
I am a TN sufferer and my quality of life is much lower due to medication. There needs to be more research done to find palliative treatments that ONLY target the trigeminal nerve, not the rest of the brain as well.
We need and deserve help please!
I have had TN for fifteen years and after using medications that leave me groggy and doped up, I have had three surgeries during that time. The pain I have felt is the worst pain imaginable. Opioids don't work for this kind of pain. The disease should be recognized and research is needed to find better answers to the unrelenting pain.
good to be able to see how many others also have similar pains.
We need a treatment for trigeminal Neuralgia patients.
Great.
Very dibilitating illness have been suffering myself for the pass 8 years puts your life on hold in so many ways
As a person that lived with this for many years due to misdiagnosis, this NEEDS to happen!
I live with this everyday...
Please help us find a cure by adding Trigeminal Neuralgia to your "Health Topic List' Thank you may God bless you.
I have bi-lateral Trigeminal neralgia
I am 66 years old and have had trigeminal neuralgia for 10 years now. I am currently taking 900mg of trileptal (oxcarbazine) every day to help control this pain.i still have very painful attacks.
Please make this condition a priority in research and funding
I have lived with this horrible condition for nearly 5 years now and it is debited affecting every area of life. I had MVD surgery in November 2016 but I am now experiencing pain with eating so severe that you just cannot eat. It causes depression and I can't tell you how alone I have felt over the past few years when the pain gets so bad you just want to curl up and die. We so desperately need some more research and treatment for this horrific non life threatening condition.
For My Daughter Mandi! Love you!!! ❤❤
The struggle is real;-(