International Trigeminal Neuralgia Awareness Day October 7th!

I have seen how it's affected the lifestyle of a friend and how it isolated her and seen the pain in her face and it needs to be taken seriously as it is long term alongside meds. World Health Organization needs to do something .

I have seen how it's affected the lifestyle of a friend and how it isolated her and seen the pain in her face and it needs to be taken seriously as it is long term alongside meds. World Health Organization needs to do something .

I suffer ATN ( TN2) It’s a cruel and life changing disease that no one understands

TN sufferer. It's horrific and scary. It's life changing. And it's for life.

Please take this seriously. We need all the recognition for this condition possible so that more research can find better treatments and who knows, even a cure.

I am a sufferer of TN

been suffering with this condition for years, need better meds and better information about this condition

I have tn. It affects my whole life and that of my family. Pain is intense. We need this awareness day as no one seems to be aware of it!

Would be pleased to see more awarness for this debilitating condition and better understanding from medical establishments better treatment

Please We need help , we please need at least better medication.

Just recently been diagnosed with this, had never heard of it before needs more awareness

Need to do something for a problem with such high level of consistent pain.

We should be given any new medication that comes on the market irrespective of the price or post code. All there is at the moment is meds for epilepsy .

Worst pain ever and needs awareness

Worse pain i have ever known..they need to do more to help and cure

Had MVD in 2003; unsuccessful. Have an excellent, compassionate Pain Mgmt dr, but my TN IS atypical. I had to retire from a terrific job because of the pain.

Please fund research toward cure or pain mitigation.

I suffer from this horrible condition. I have a 7 year old daughter and I am basically bed ridden from the pain. Prior to my diagnosis I was an active busy mom participating in Girl Scouts, school activities, took my daughter to the library, the park and for little getaways. As I write this I’ve had a flare for four days and nothing is working. I can’t go the ER because there is nothing they can do. I’ve had endometriosis for thirty years, chronic migraines, herniated discs and gone through labor. But nothing is as painful and unrelenting as trigeminal neuralgia. Probably due to my MS, I have both forms typical and atypical. Right now I feel like someone is removing my front teeth using pliers no novacaine. I’ve had teeth removed where novacaine hasn’t worked. It was a back molar and it took thirty minutes. This feels exactly like that. But there is also a feeling of burning all over my gums and tiny shock like sensations running along the teeth in my right upper j aw. I hold on and look at the clock thinking there has to be time limit. Today the attacks are so long. They feel continuous. It has been thirteen minutes now and still going without a second break. I don’t cry. I mean ever. And I’ve cried seven times today. I know I will get a break at some point. Maybe it will be for four minutes, maybe thirty seconds, maybe an hour. But I will still have the burning aching pain. But you know what, the second the pain recedes I’m going to thank the world and be so grateful because right now I don’t like I can keep doing it. I will look at the clock. Again.

It is the most excruciating pain with a scary prognosis - stuck with it for life partly because of little research. Please help Noel

I have suffered with this condition for almost 20 years. There needs to be more awareness, & a cure would be...heaven