International Trigeminal Neuralgia Awareness Day October 7th!
5,071 Comments
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Jenny Chambers
8 years ago
I am a TN Warrior!!
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lisa kempster
8 years ago
Good luck
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Susan Wiffill
8 years ago
Please listen to sufferers,this is a genuine disease .and needs to be recognised by WHO.
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Cheryl David
8 years ago
The suffering is awful and constant. This is REAL condition.
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June Brannigan
8 years ago
This movement needs some serious help!
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Jennifer Naramore
8 years ago
I am a 34 year old woman, from the United States, who was recently diagnosed with TN. I am just beginning my journey, and pray that more people will join in with me signing this petition to have the WHO recognize this disorder as a priority. Before being diagnosed and beginning medications to help with the symptoms, I was at a point of being suicidal. Even though I had an awesome support system and medical care, I felt very isolated and hopeless. Perhaps if this was recognized and funded for research those who suffer would not feel as though there is no hope, and maybe, just maybe, there actually would be.
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Amoreena Gilbert
8 years ago
I've been diagnosed with Trigeminal neuralgia.
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Chelsey
8 years ago
Please
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Anonymous
8 years ago
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Lori Holgate
8 years ago
Jan 12, 2003 was my 1st pain.
Dec 18, 2003 I was finally put on Carbatrol. 2008 I had my MVD. I'm still fighting the depression daily.
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Maria Pipe
8 years ago
Please help us find a cure . We need to raise awareness .This disease is life changing ,not only for the sufferer but for the family as well. It affects you physically and mentally. The pain is so excruciating and traumatic ,its no wonder its called the Suicide Disease. I keep hoping and praying to God that the next medication will work for me.I have tried 4 different medications now over the last 3 years. Medication alone does'nt always take away the pain away, you have had to endure side affects that come with it, which have been so bad for me its a struggle to live a normal life.TN is incurable and unpredictable, relapsing and remitting without warning. life is very uncertain as a sufferer. Family and friends of Suffers of TN please help us and sign this petition for our awareness campaign
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Catherine Bohne
8 years ago
I have lived with TN since 2001. Microvascular Decompression DID NOT WORK. More research needs to be done. There hasn’t been and significant treatments in decades. This needs to be addressed.
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Catherine Bohne
8 years ago
More research needs to be done. End the suffering!
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William Bohne
8 years ago
More research needs to be done. End the suffering!
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Marian Mondanaro
8 years ago
This is a horrible condition that needs to be studied and addressed. Too little has been done and there are more people being diagnosed every year. The pain of trigeminal neuralgia is doubled ten fold by the accompanying anxiety and depression of knowing that there is no cure. Even the drugs and surgical procedures out there now are not reliable. A cure for this could be a cure for all other neurological pain disorders as well. Please God, send us hope.
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Ryan Ruetz
8 years ago
I lived with TN for 5 years until I had MicroVascular Decompression. It's an awful disease and we all need recognition and support to get more research done. I am very well aware that this pain could come back
D
Donnna Reed
8 years ago
We need a cure! I am a nurse and when I get the shocks to my teeth it is impossible to care for my patients. I become the one in need and there is no cure. It is time to take this serious!
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Sushama Sekhar
8 years ago
The worst pain known to mankind, also known as the Suicide Disease...we need to raise awareness and find a cure
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Anonymous
8 years ago
please find a cure!
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Olga Ratatoska
8 years ago
My late mother suffered from this and at those times when it flared up, even accidentally touching her face would put her in so much pain that she couldn't speak. I have great sympathy for all who suffer from this.
I am a TN Warrior!!
Good luck
Please listen to sufferers,this is a genuine disease .and needs to be recognised by WHO.
The suffering is awful and constant. This is REAL condition.
This movement needs some serious help!
I am a 34 year old woman, from the United States, who was recently diagnosed with TN. I am just beginning my journey, and pray that more people will join in with me signing this petition to have the WHO recognize this disorder as a priority. Before being diagnosed and beginning medications to help with the symptoms, I was at a point of being suicidal. Even though I had an awesome support system and medical care, I felt very isolated and hopeless. Perhaps if this was recognized and funded for research those who suffer would not feel as though there is no hope, and maybe, just maybe, there actually would be.
I've been diagnosed with Trigeminal neuralgia.
Please
Jan 12, 2003 was my 1st pain. Dec 18, 2003 I was finally put on Carbatrol. 2008 I had my MVD. I'm still fighting the depression daily.
Please help us find a cure . We need to raise awareness .This disease is life changing ,not only for the sufferer but for the family as well. It affects you physically and mentally. The pain is so excruciating and traumatic ,its no wonder its called the Suicide Disease. I keep hoping and praying to God that the next medication will work for me.I have tried 4 different medications now over the last 3 years. Medication alone does'nt always take away the pain away, you have had to endure side affects that come with it, which have been so bad for me its a struggle to live a normal life.TN is incurable and unpredictable, relapsing and remitting without warning. life is very uncertain as a sufferer. Family and friends of Suffers of TN please help us and sign this petition for our awareness campaign
I have lived with TN since 2001. Microvascular Decompression DID NOT WORK. More research needs to be done. There hasn’t been and significant treatments in decades. This needs to be addressed.
More research needs to be done. End the suffering!
More research needs to be done. End the suffering!
This is a horrible condition that needs to be studied and addressed. Too little has been done and there are more people being diagnosed every year. The pain of trigeminal neuralgia is doubled ten fold by the accompanying anxiety and depression of knowing that there is no cure. Even the drugs and surgical procedures out there now are not reliable. A cure for this could be a cure for all other neurological pain disorders as well. Please God, send us hope.
I lived with TN for 5 years until I had MicroVascular Decompression. It's an awful disease and we all need recognition and support to get more research done. I am very well aware that this pain could come back
We need a cure! I am a nurse and when I get the shocks to my teeth it is impossible to care for my patients. I become the one in need and there is no cure. It is time to take this serious!
The worst pain known to mankind, also known as the Suicide Disease...we need to raise awareness and find a cure
please find a cure!
My late mother suffered from this and at those times when it flared up, even accidentally touching her face would put her in so much pain that she couldn't speak. I have great sympathy for all who suffer from this.