International Trigeminal Neuralgia Awareness Day October 7th!
5,071 Comments
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Katherine Donald
7 years ago
My friend and neighbour suffers from this and it is absolutely heart breaking. Please help him find a cure.
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Tod Raymond
7 years ago
I'm signing this petition in support of my wife who has TN.
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jonda turner
7 years ago
I have suffered from this disease for 10 years and it has GREATLY impacted my life.. Our voices need to be heard and out pain understood
T
Trudy Henderson
7 years ago
help those in need
D
Daniel Trent
7 years ago
My wife suffers with this terrible ailment and anything to get this recognized is a blessing. People with this terrible condition need help in every way possible.
E
Everrett Prostrollo
7 years ago
Pain is no joke!
L
Lydia
7 years ago
I was diagnosed with TM in 2014.
D
Denise Baires
7 years ago
I have been diagnosed since 2016 and every day is a challenge. I muster through the pain to care for my family and complete my job as a Behavioral therapist with children with ASD. We need more research and help please.
K
Kathryn Byrd
7 years ago
My young daughter suffers from TN.
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Rachel Trent
7 years ago
Suffering. PLEASE HELP US.
J
Justin Olson
7 years ago
Trigeminal neuralgia, forehead nerve.
C
Christine Harwood
7 years ago
So little recognition for this awful condition. Also very little effective treatment. It’s like a living hell yet I’m not “ disabled” and get no help whatsoever. Invisible illnesses are equally as disabling as visible ones. Time for change!
M
Maribeth Harper
7 years ago
As a fighter if this horrible disease we need more understanding and funding to research it.
L
Laurie Michaelsen
7 years ago
Terrible disease
A
Amanda
7 years ago
Please
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Sheena Arthur
7 years ago
Trigeminal Neuralgia Sucks!! ☹️
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Lizinda Roe
7 years ago
PLEASE we need help urgently - someday’s most of us barely hang on a thread, because of this unbearable pain. RESEARCERS: P L E A S E!!!! TN IS a very real and serious illness and Western medicine is failing us and all our loved ones. This disease litterly sucks the life out of the patient, the marriage, the family, you loose friends and become so isolated and it’s right then when we feel like a burden to all who LOVES US DEEPLY AND REMEMBER US HOW WE WERE.
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Renee Christoph
7 years ago
I got chicken pox at the beginning of last year and the virus went into my nerves. As a result I got Trigeminal Neuralgia. I'm a 42 years old female.
A
Anonymous
7 years ago
Despite its tragic nickname- the suicide disease- sometimes ya just CANT die! And yet living wirh this is INHUMANE. There is no greater pain on EARTH, and I’m personal experience in my life which include such horrible yet nothing compared to TN.. such as : opioid/ opiate detoxing/ withdrawals, venlafaxine (Effexor) withdrawals, grand mal seizures and being mis Dx’d as epileptic, being Dx’d with bipolar - having 12 ECT’s and EVERY single drug on the market shoved into you and being sick / disabled and crippled from medication side effects for over 8 years .. till they realize you do NOT have bipolar or epilepsy, just adhd/ ptsd and anxiety and too many polypharmacy happening.
Being a multiple trauma survivor, and having a “Complex -PTSD” diagnosis which I could care less about - I just want coping skills, validation and ways to teach myself, those around me and the future generations that WE- those suffering, and our loved ones and our caretakers MATTER. That the years lost in the medical system weren’t in vain.
** surviving suicide attempts and STILL having TN is like a b*tch slap to the face, only you’re NOT dead. And there’s no pain that can take your b*tch slap away. Not even death. Because surviving an attempt is as bad as living. Tell me again who is benefiting from this? I’m not even 31 years old yet.
Thanks for reading.
C
Cynthia Thompson
7 years ago
My niece dealt with this for years and had the surgery.
My friend and neighbour suffers from this and it is absolutely heart breaking. Please help him find a cure.
I'm signing this petition in support of my wife who has TN.
I have suffered from this disease for 10 years and it has GREATLY impacted my life.. Our voices need to be heard and out pain understood
help those in need
My wife suffers with this terrible ailment and anything to get this recognized is a blessing. People with this terrible condition need help in every way possible.
Pain is no joke!
I was diagnosed with TM in 2014.
I have been diagnosed since 2016 and every day is a challenge. I muster through the pain to care for my family and complete my job as a Behavioral therapist with children with ASD. We need more research and help please.
My young daughter suffers from TN.
Suffering. PLEASE HELP US.
Trigeminal neuralgia, forehead nerve.
So little recognition for this awful condition. Also very little effective treatment. It’s like a living hell yet I’m not “ disabled” and get no help whatsoever. Invisible illnesses are equally as disabling as visible ones. Time for change!
As a fighter if this horrible disease we need more understanding and funding to research it.
Terrible disease
Please
Trigeminal Neuralgia Sucks!! ☹️
PLEASE we need help urgently - someday’s most of us barely hang on a thread, because of this unbearable pain. RESEARCERS: P L E A S E!!!! TN IS a very real and serious illness and Western medicine is failing us and all our loved ones. This disease litterly sucks the life out of the patient, the marriage, the family, you loose friends and become so isolated and it’s right then when we feel like a burden to all who LOVES US DEEPLY AND REMEMBER US HOW WE WERE.
I got chicken pox at the beginning of last year and the virus went into my nerves. As a result I got Trigeminal Neuralgia. I'm a 42 years old female.
Despite its tragic nickname- the suicide disease- sometimes ya just CANT die! And yet living wirh this is INHUMANE. There is no greater pain on EARTH, and I’m personal experience in my life which include such horrible yet nothing compared to TN.. such as : opioid/ opiate detoxing/ withdrawals, venlafaxine (Effexor) withdrawals, grand mal seizures and being mis Dx’d as epileptic, being Dx’d with bipolar - having 12 ECT’s and EVERY single drug on the market shoved into you and being sick / disabled and crippled from medication side effects for over 8 years .. till they realize you do NOT have bipolar or epilepsy, just adhd/ ptsd and anxiety and too many polypharmacy happening. Being a multiple trauma survivor, and having a “Complex -PTSD” diagnosis which I could care less about - I just want coping skills, validation and ways to teach myself, those around me and the future generations that WE- those suffering, and our loved ones and our caretakers MATTER. That the years lost in the medical system weren’t in vain. ** surviving suicide attempts and STILL having TN is like a b*tch slap to the face, only you’re NOT dead. And there’s no pain that can take your b*tch slap away. Not even death. Because surviving an attempt is as bad as living. Tell me again who is benefiting from this? I’m not even 31 years old yet. Thanks for reading.
My niece dealt with this for years and had the surgery.