International Trigeminal Neuralgia Awareness Day October 7th!

mia cognata soffre da anni di questa patologie

love what you are doing. atypical bilateral since 2002.

2 seconds required, no money involved, please sign the competition !

For the past 7yrs have suffered from TN and still the pain is going strong. After 3 brain surgeries, gamma knife, several procedures, many, many failed Meds and the loss of my hearing, still no relief. :(

I, myself suffer from this! I am 22 and have had it since I was 19. I spend most of my time holed up in my little apartment unable to handle the constant changing weather. It is important that tis be made known and here is to hoping one day a cure be found!! Stay Strong!

Praying for JJ's recovery. Please don't take away the hope she and her family have of beating this awful disease.

Wishing for a miracle for JJ. We are praying for the niracle to happen. Please don't take the support away from people and families who are living with awful disease.

A better solution for dealing with the pain of Trigeminal Neuralgia is long overdue. This disease needs some serious research money.

I am 33 yrs old and just went through a battle with breast cancer. It gave me a new love for life but then I remembered I am still afflicted with this terrible condition, Trigeminal Neuralgia which I developed during a dental procedure and the things that were done have left me with no back teeth adding salt to the wound and causing increasing damage and problems in relation to TN. I'm so young but I feel like life is over for me, The cost to correct the damage done by my previous dentist is so far out of my reach and I am losing hope every day. I would like to talk to others experiencing something similar to see if they know of ways or resources that can help me have my life back again. The doctors I have spoken with believe that restoring the teeth that the previous dentist took from me would be the first stage of treatment to getting me back to normal and possibly have me 100% again but I'd be happy with less for a while as long as it is on the road to a good recovery and I am well enough to work and go to sc

Never have I known such excruciating pain. Please help find a cure. Thank you.

I want to help and spread awareness of this terrible sickness. I wanna make a fun run to raise money for medical research. my wife suffers from this.

Please help those of us who have spent so many years being misdiagnosed and treated in the wrong ways by being basically guinea pigs by going through one disappointment after another, spent so much money trying to find an answer and going from one doctor to another in state and out of state to try to find relief from this disabling pain. Mine started after a TMJ prosthesis (Plus we have spent thousands seeking relief.) was implanted on my left side and a mitek anchor was implanted on the right side in April 2009. I woke up with my left side of my face being paralyzed but after the anesthesia wore off the pain started to replace the numbness. I had to quit my 20 year job due to the pain and debilitation this disorder causes. I have tried various stellate blocks, sphenopalatine ganglion blocks, trigeminal nerve blocks, Tegretol, Trileptal, (they bottomed out my white blood cells and i ended up at mD Anderson for bone marrow testing and turns out I had developed a Pre-CLL /non-Hodgkins so they put me on IV Ig to help boost back up my bone marrow due to lots of post op infections (I never had infections prior to surgery!), but before surgery I had lots of migraines and tried lots of meds and various procedures, MRIs, CT scans, ultra sounds, etc. It was confirmed after going to the Cleveland Clinic, UT Southwestern, Medical College of Georgia, Emory, University of Pennsyvania, private practice doctors from Florida to Oregon for help. My pain is atypical in that it is 24/7 because it involves a ganglion from the trigeminal nerve touching a ganglion from the superior branch of the cerebellar artery and every heart beat sends a shock through my face, teeth, gums, palate, chin, lips, temples, neck, etc. It is catastrophic at times and yes, I have been in theER several times. They dont' know quite what to do with patients like us unless they happen to know something about the disorder. Please do what you can to make sure knowledge about this disorder gets known as

I am signing this for my wife and my family. My wife was diagnosed when she was 25 and now has been living with TN for 14 years. Please help make this disease known.

As a sufferer of TN since 2007 and currently experiencing my worse flare up of it, I want to raise awareness of this horrendous and debilitating condition. Quick diagnosis is essential for those who suffer from TN. We need to find a cure so we can be pain free.

This disease is so dibilitating. Trying to work while having an attack is insane. People who have never had this type of pain, just don't understand how a person can go on living through it. We need more awareness and research in healing the myelin!

I have TN left side all three branches affected. I am a mother of a 1 year old and 3 year old. Meds do not work that much for me and with the support and understanding from my husband I am able to get through the day. There really needs to be more research and more aggressive testing on TN. It is a constant battle and it is the worst pain I have ever endured!

My niece has been diagnosed with this...please add TN to the Health Topics list. Thank you.

My daughter suffers with TN and it is a terrible disease. Watching her painfully navigate through each day breaks my heart. Most people do not understand the disease and have no idea what she is dealing with each day. I pray that some answers will be discovered VERY soon.

Supporting JJ!!!!! Please sign and get the recognition and the necessary support and awareness for all TN patients.

It's all about awareness, please mke it possible to treat those who suffer this rare disease. Thank You