International Trigeminal Neuralgia Awareness Day October 7th!
5,071 Comments
R
Rob Freedman
12 years ago
My wife suffered from TN for several years until two MVD surgeries and gama kife procedures finally stopped the shooting pain. Devastating affliction
J
Jennifer Freedman
12 years ago
As a TN sufferer, I endorse and applaud this effort. The pain is unimaginable to those who have never experienced it. Help other TN sufferers to find solutions.
G
Guy B Snowden
12 years ago
I support this important awaremness
B
Binley Taylor
12 years ago
Good luck!
A
Anonymous
12 years ago
I'VE SUFFERED WITH THIS FOR 19 YEARS COME THIS JULY.........PLEASE HELP US!!
J
Joan Mallon
12 years ago
Most days it is difficult to eat or speak.
Then, there are the hellish days where communication is impossible, you try to sip liquids. You cannot smile or laugh! I always check the weather, cold is bad, wind is worse.
This disease destroys lives and should be acknowledged as such.
C
Cori Murdoch
12 years ago
Not to be dramatic, but Trigeminal Neuralgia almost ended my life. I began having symptoms in 2011 and wasn't diagnosed with TN until late 2012. I was totally hopeless and felt as though I couldn't go on. Even after being diagnosed, it took another year for my to find the correct doctor with a solution that actually worked. Aside from my case, I have heard so many other horror stories of people having to live in this hell because there is just so little awareness and resources available. With WHO adding TN to the "Health Topics" list, I believe we will be moving in the right direction and working towards a solution so that patients with TN have more access to resources and can get quicker, better treatment so that they don't have to live in the hell that is TN for any length of time. Also, it will allow for the public to be more aware of this issue and hopefully we can gain support in raising awareness and funding for research for a cure!
B
Bill Skinner
12 years ago
For my wife, Connie, and all those who suffer from TN (& their caregivers)..... we need a cure.
H
Heidi Therrien
12 years ago
I too have constant pain. With Obamacare changing drug regulations on pain relieving drugs affecting so many of us with TN. Please take action on this health topic as so many of us live on medications not by choice but for survival. Thank You
A
alice hults
12 years ago
I suffer from TN. We need everyone's support to raise awareness
E
Elizabeth (Betsy) Harrell
12 years ago
I have been suffering for four years. I wish my dentist would have known about TN. After several failed surgeries I am still on numerous meds for the pain AND I developed Occipital Neuralgia too. Awareness is key.
D
Dei Chappell
12 years ago
Please, please help the thousands of us who suffer from this debilitating illness.
M
Murray Young
12 years ago
Yes, people are dying from this -
How many, you wouldn't know
S
Stephanie Whitson
12 years ago
For my Yellow Rose. Love you mama.
J
Joseph Hall
12 years ago
For my mother, Jo Nell Hall, who suffered for many years and has been called home to heaven where she will suffer no more.
A
Alfredo Elefante
12 years ago
nella regione lombardia attuano il trattamento CIBERKNIFE per la nevralgia del trigemino. Come posso accedere dalla regione Campania
S
Sharon M
12 years ago
The more people that know, the more people will help! We dont have to go through this alone!
P
Petteri Polso
12 years ago
Awareness is needed to fight this illness..
P
Petteri Polso
12 years ago
Awareness is needed to fight this illness..
A
Amy May
12 years ago
I've been living with TN since I was 9 years old. It all started with ear pain & after months of research and misdiagnoses, I was diagnosed with Glossophyngeal Neuralgia. After 2 MVDs, doctors finally discovered I had a Chiari Malformation. I had 2 Chiari surgeries almost a year apart. Within the next 6 years, I had 4 more MVDs. It's almost been 17 years since my very first pain, which I remember like it was yesterday, and I still live with excruciating ear, facial, and eye pain--along with migraines and Fibromyalgia. I don't even remember what life felt like without this pain. But I have hope, and faith. And even though I may be weak at times, my struggles have only made me stronger. I have my good days and my bad days. I live on medication, which sucks. But I believe that one day there will be a cure and I will be pain free!
My wife suffered from TN for several years until two MVD surgeries and gama kife procedures finally stopped the shooting pain. Devastating affliction
As a TN sufferer, I endorse and applaud this effort. The pain is unimaginable to those who have never experienced it. Help other TN sufferers to find solutions.
I support this important awaremness
Good luck!
I'VE SUFFERED WITH THIS FOR 19 YEARS COME THIS JULY.........PLEASE HELP US!!
Most days it is difficult to eat or speak. Then, there are the hellish days where communication is impossible, you try to sip liquids. You cannot smile or laugh! I always check the weather, cold is bad, wind is worse. This disease destroys lives and should be acknowledged as such.
Not to be dramatic, but Trigeminal Neuralgia almost ended my life. I began having symptoms in 2011 and wasn't diagnosed with TN until late 2012. I was totally hopeless and felt as though I couldn't go on. Even after being diagnosed, it took another year for my to find the correct doctor with a solution that actually worked. Aside from my case, I have heard so many other horror stories of people having to live in this hell because there is just so little awareness and resources available. With WHO adding TN to the "Health Topics" list, I believe we will be moving in the right direction and working towards a solution so that patients with TN have more access to resources and can get quicker, better treatment so that they don't have to live in the hell that is TN for any length of time. Also, it will allow for the public to be more aware of this issue and hopefully we can gain support in raising awareness and funding for research for a cure!
For my wife, Connie, and all those who suffer from TN (& their caregivers)..... we need a cure.
I too have constant pain. With Obamacare changing drug regulations on pain relieving drugs affecting so many of us with TN. Please take action on this health topic as so many of us live on medications not by choice but for survival. Thank You
I suffer from TN. We need everyone's support to raise awareness
I have been suffering for four years. I wish my dentist would have known about TN. After several failed surgeries I am still on numerous meds for the pain AND I developed Occipital Neuralgia too. Awareness is key.
Please, please help the thousands of us who suffer from this debilitating illness.
Yes, people are dying from this - How many, you wouldn't know
For my Yellow Rose. Love you mama.
For my mother, Jo Nell Hall, who suffered for many years and has been called home to heaven where she will suffer no more.
nella regione lombardia attuano il trattamento CIBERKNIFE per la nevralgia del trigemino. Come posso accedere dalla regione Campania
The more people that know, the more people will help! We dont have to go through this alone!
Awareness is needed to fight this illness..
Awareness is needed to fight this illness..
I've been living with TN since I was 9 years old. It all started with ear pain & after months of research and misdiagnoses, I was diagnosed with Glossophyngeal Neuralgia. After 2 MVDs, doctors finally discovered I had a Chiari Malformation. I had 2 Chiari surgeries almost a year apart. Within the next 6 years, I had 4 more MVDs. It's almost been 17 years since my very first pain, which I remember like it was yesterday, and I still live with excruciating ear, facial, and eye pain--along with migraines and Fibromyalgia. I don't even remember what life felt like without this pain. But I have hope, and faith. And even though I may be weak at times, my struggles have only made me stronger. I have my good days and my bad days. I live on medication, which sucks. But I believe that one day there will be a cure and I will be pain free!