International Trigeminal Neuralgia Awareness Day October 7th!

I am a 15 year veteran of Trigeminal Neuralgia and our barbaric medical treatment .

This just gets worse not better, no cure. Major pain forever.

I have been suffering with atypical TN for more then 8 years since I was 22. It has changed my life to a large degree for better or worse. Influencing my career choices, friendships and relationships. Throughout most of the time I have come in contact with empathy, thoughtfulness, willingness to help but also apathy, misunderstanding and even fear on the part of doctors and medical personal. Increasing and spreading the knowledge about what TN is and how it influences people lives among the medical community would be extremely beneficial to all involved. I also believe that any research done on the side of TN will increase not only our ability to help people suffering with TN, but also others that suffer from chronic pain of peripheral nervous system that is overall lacking in funding.

I have been suffering with atypical TN for more then 8 years since I was 22. It has changed my life to a large degree for better or worse. Influencing my career choices, friendships and relationships. Throughout most of the time I have come in contact with empathy, thoughtfulness, willingness to help but also apathy, misunderstanding and even fear on the part of doctors and medical personal. Increasing and spreading the knowledge about what TN is and how it influences people lives among the medical community would be extremely beneficial to all involved. I also believe that any research done on the side of TN will increase not only our ability to help people suffering with TN, but also others that suffer from chronic pain of peripheral nervous system that is overall lacking in funding.

I am sufferer of trigeminal neuralgia. It ruined my social life.

I have been diagnosed with this disease since 2009. It's a journey to get through each day. I have losted all my identity I had before an employer, an athlete and being a productive member of society at times I truly live one day at a time going through gamma knife twice, radio frequency and every medication I can get approved by my doctor & insurance. My life is nothing more that one day at a time!

I have had Anesthesia Dolorosa for the past 22 years now. Nobody can see it so we suffer in silence. More awareness needs to be raised in this subject,so others can understand what we go through.

This is really important. Trigeminal Neuralgia causes almost constant pain and people are force to try to function with it because it is a hidden disability. They get little help or understanding and suffer in silence. It is no wonder sufferers resort to suicide as, often, it appears a better option than spending the rest of your life in pain. Lack of understanding and support adds to the burden of this condition. Anything which raises awareness of the chronic pain some people have to bear from this condition, could potentially lead to safer solutions than suicide.

I support this petition very strongly. My very special best friend has this condition. It truly is very painful!

My bro in law suffers from TN, and I'm supporting him and everyone else to find a cure for this horrible illness,

I have had three brain surgeries, and thyroid cancer from huge amounts of radiation from two of them. Broken bones, including my neck, from falling down from an attack. I still suffer a hellish life due to this disorder. I also tried to kill myself. Please find the way to help us!

it is supposed to be rare, but there many people who suffer from TN-it is very, very painful

We need something to be done about this horrendous condition. I'm only 30 with a new baby and I live in fear each day that it'll come back.

Hello, greetings from Slovenija! I think this research should ASAP bring relief to millions of people-including me. I dot know if I suffer from BMS or is also involved trigeminal nerve...I live in constant pain-thinking to end my life so often! God bless you!!! Thank you

Never lose the fight, keep on trying!

I am signing for my mom

Please take action on TN. This is a horrible disease that I have dealt with for 24 years. We needs medicines that will work or better still, a cure. Thank you.

As a Canadian I managed to get help, but there must be numerous sufferers around the world who can't get help due to ignorance of the problem - the WHO can help them.

Help these people in pain

For my cousin tanya, and all the strong people fighting through trigeminal neuralgia everyday!