International Trigeminal Neuralgia Awareness Day October 7th!
5,071 Comments
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Rick Grossmann
3 years ago
Thank you
D
Deborah Hamilton
4 years ago
Just at the beginning of TN journey. TN terrifies me. Please put this disorder on the top of your list for recognition and a cure!
A
Anonymous
4 years ago
I have been helping to support Neil for five years now and it feels like two souls lost in the wind of life with no help only guesses -the anti inflammatory diet helps but we are not doctors there is no real help
S
Sara McHale
4 years ago
I was recently diagnosed with Trigeminal Neuralgia.
J
Janita altstatt
4 years ago
Tremendous pain unbearable never want to go through this again. Thought about leaving this world finally got help. My pain is returning after surgery so I’m concerning cybernknife .
J
Julia Creusson
4 years ago
My son is suffering from TN he is stuck on medication that means he has no life and on waiting lists for referrals that never materialise. I suffer because I can’t help him see a light ahead
D
Doretta Hollett
4 years ago
I was diagnosed with TN about 4 yrs ago as result off a mini stroke I am so excited that there is going to be hopefully more research etc concerning TN Excellent news if we could get recognized by WH0
If anyone would like to gmail me about their journey with TN please do so
C
Christine Peterson
4 years ago
Just to be listed as a "legal" disability that would allow recognition with the Disability Act in US
E
Emily Darrow
4 years ago
I never heard of TN until being diagnosed with it. Too many people are suffering in ignorance of possible treatments.
C
Carla Cahill
4 years ago
My granddaughter was diagnosed 8 years ago after many months of excruciating pain untreated.
S
Sophie Van Daele
4 years ago
Hope soon a treatment to stop this horrible and very painful condition.
S
Sandra willekens
4 years ago
More research is Needed to help People with thuis awfull disease.
S
Susan perryman
4 years ago
Unable to get prescribed meds from GP much more wardens needs to be made
K
Kelly Southern
4 years ago
I have suffered with this horrible condition for 4 years. We need awareness!!
A
Anonymous
4 years ago
Quality of life with TN really sucks!
C
Cynthia Jolly
4 years ago
TN sucks!
P
Paula vd
4 years ago
Please help for thuis horror
M
Margaret Doherty
4 years ago
I am very lucky that my condition is reasonably well controlled but if I have a flare it’s horrific.
Stephanie if you or your Mom wants to reach out to me my email address is [email protected]. Please tell your Mom I'm fighting to find a cure and relief. Sending prayers for your Mom.
Thank you
Just at the beginning of TN journey. TN terrifies me. Please put this disorder on the top of your list for recognition and a cure!
I have been helping to support Neil for five years now and it feels like two souls lost in the wind of life with no help only guesses -the anti inflammatory diet helps but we are not doctors there is no real help
I was recently diagnosed with Trigeminal Neuralgia.
Tremendous pain unbearable never want to go through this again. Thought about leaving this world finally got help. My pain is returning after surgery so I’m concerning cybernknife .
My son is suffering from TN he is stuck on medication that means he has no life and on waiting lists for referrals that never materialise. I suffer because I can’t help him see a light ahead
I was diagnosed with TN about 4 yrs ago as result off a mini stroke I am so excited that there is going to be hopefully more research etc concerning TN Excellent news if we could get recognized by WH0 If anyone would like to gmail me about their journey with TN please do so
Just to be listed as a "legal" disability that would allow recognition with the Disability Act in US
I never heard of TN until being diagnosed with it. Too many people are suffering in ignorance of possible treatments.
My granddaughter was diagnosed 8 years ago after many months of excruciating pain untreated.
Hope soon a treatment to stop this horrible and very painful condition.
More research is Needed to help People with thuis awfull disease.
Unable to get prescribed meds from GP much more wardens needs to be made
I have suffered with this horrible condition for 4 years. We need awareness!!
Quality of life with TN really sucks!
TN sucks!
Please help for thuis horror
I am very lucky that my condition is reasonably well controlled but if I have a flare it’s horrific.
I suffer from TN.
Stephanie if you or your Mom wants to reach out to me my email address is [email protected]. Please tell your Mom I'm fighting to find a cure and relief. Sending prayers for your Mom.