International Trigeminal Neuralgia Awareness Day October 7th!

I am a TN sufferer who is lucky to have a dentist who recognised my symptoms and who has supported me all along. I know many are not so lucky and endure needless dental procedures and lack of awareness in the medical community delays referrals to medical experts who can help.

I have heard of at least 3 people with TN - my mom, a neighbor, and the mom of a fellow choir member. I have not been diagnosed, but I would not be surprised if I have a mild version of it as well as I have had dental work that felt like the anasthesia did not work and had 3 root canals on one tooth that is still sensitive to cold and sinus pressure. My mom had an attack this weekend that sent her to the ER twice - not only for pain management but to get an IV for dehydration as the pain was too intense to get even a spoonful of water through her mouth. The torture of this disorder is unimaginable. - especially since you cannot brace for it as it comes on suddenly and unexpectedly. In addition to a cure, I hope they can determine the cause. I would also like to see more education provided to the medical community. The paramedics that picked her up never heard of it. One of the main triggers for my mom is a cold breeze. The paramedics took her outside into the cold air without covering her face. When she was released by the ER and while I was retrieving the car, they left my mom outside in a wheelchair by herself at 4am with only a plastic vomit/urine bag to protect her face from the cold and rain. Medical staff should be taught proper care of TN patients to avoid making the situation worse.

I suffer from TN

I'm looking for to the day we have improved treatments for this debilitating condition.

Please don't forget about us. The pain makes me want to slap myself just so I feel another type of pain. I can't think about anything else. I feel alone and that the best part of my life has come to an end. Jesus can take me home anytime he's ready. I'm ready. Tired. So tired.

I was just diagnosed with this horrific condition. Please add this rare and life altering disorder to the health topic list. I am a young 28 year old wife and mother to twin 2 1/2 year olds. I want some kind of hope that I will be around to be with my family, painfree.

Would be so great if they could find a cure, people would get their lives back.

I have been suffering with Trigeminal neuralgia for over a year. No relief. Meds only make me non functional.

I have had TN for 17 years, 2 gamma knife surgeries. I am still on 5 different meds, but still no relief. We need help!!

This is a terrible c

Pleeeeeease find a cure...

have TN and am currentlyon meds to relieve the pain and symptoms. THis is a daily struggle - don't know what each day will be like and how debilitating the symptoms will be. Please find a cure for all of us who suffer from this and variations of TN.

Please help us. I've been suffering over 2 decades now. Falied MVD which left me disabled from a vibrant worker since I was 14 years old. :-(

Awareness is much needed. Anything to raise awareness and educate.

Help us...

Neurologist and Headache specialist

I've only recently been diagnosed, but hae suffered with TN for years!

Please do something to help us who live in daily agony! I have Trigenimal Neuralgia and even local Doctors know very little about it. I NEED HELP! UK

Please, I beg you!

Let's find a cure for Trigeminal Neuralgia!