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Tongue-Tie division service on the NHS in Cambridgeshire

Tongue-Tie division service on the NHS in Cambridgeshire

481 signatures 19 to reach 500
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Started by Anonymous 14 years, 11 months ago
We the undersigned believe that Cambridgeshire should have a skilled, experienced, knowledgeable, accessible and prompt tongue-tie division service on the NHS. We believe that babies who are tongue-tied sometimes have problems feeding. We believe that the severity of the tie does not predict the severity of the feeding issues (for mother or child). We understand that if skilled breastfeeding support is unable to resolve feeding problems, that frenulotomy is a quick and easy procedure that has been shown to be very effective in resolving breastfeeding problems. There is a growing body of research on the safety and effectiveness of this procedure. We feel strongly that mothers who wish to breastfeed their babies should get NHS support to do this. It is Department of Health policy to encourage and support breastfeeding as it is well recognized that increasing breastfeeding rates would improve the health of the nation and reduce NHS costs. Frenulotomy is cheap and simple and usually results in the mother being able to breastfeed for as long as she desires. Parents should be afforded the right to make an informed decision on this issue without having to pay out of pocket for the procedure. We are aware that some believe that tongue-tie has no effect on breastfeeding. Others feel that frenulum division is being sold as a panacea against all breastfeeding ills. However, our personal experience and our understanding of the research in existence is that for some mothers and babies, this procedure is absolutely part of a journey to successful breastfeeding. This view is supported by NICE guidance issued in 2005 and the research reviewed by NICE informulating the guidance (see links below) http://www.nice.org.uk/nicemedia/live/11180/31411/31411.pdf http://www.nice.org.uk/nicemedia/live/11180/31409/31409.pdf Currently, mothers who wish expert diagnosis and potential division of tongue tie in Cambridge may wait up to 6 weeks for an appointment. Some are finding that their GP isn’t even prepared to consider tongue tie as an issue and won’t refer them. If a baby is not thriving or a mother is in great pain, and tongue tie is suspected, she deserves to have the baby referred for a further opinion and waiting up to 6 weeks is far too long. We are aware that by the time parents have their appointment, many, many of them have ceased breastfeeding. We are also aware that those providing the current service are untrained in the potential impact of posterior tongue tie on infant feeding and that therefore many parents are turned away without treatment or support. We appeal to NHS Cambridgeshire to follow NICE Guidance and provide a safe, reliable, prompt, accessible, skilled and knowledgeable tongue-tie division service for our county.

Updates

February 8, 2014

We need to hit the 500 signature mark to show the local board that this issue has broad backing across Cambridgeshire. Please text this link to three friends who live in the area today. We need this momentum to force a real conversation with health officials.

September 30, 2011

We just hit 100 signatures to bring tongue-tie services to the local NHS. Post this link on your Facebook page and email your local representative today to keep the pressure on.

Reached 100 supporters

September 27, 2011

59 Comments

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Catrin Dean
12 years ago Featured

We felt like we were going 'underground' when we sought the help of a midwife from Northamptonshire to do our son's tongue tie division. The latch immediately felt looser and more comfortable - there was a noticeable difference.

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Jo Matthews
12 years ago Featured

My second daughter had a tongue-tie, picked up by my NCT breastfeeding counsellor but not NHS health visitors, by which time the damage was done. I had to give up feeding due to excruciating pain. This should be offered at ALL hospitals. It takes less than 5 seconds and baby knows nothing about it.

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Mary Smith
12 years ago Featured

There needs to be a care pathway in place for this simple procedure. Huge impacts for mothers and babies if they can't feed but will also reduce longer term costs to the NHS and omit a percentage of speech disorders associated with tongue tie,

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Sarah-Jane Allen
12 years ago Featured

Can't believe that the nhs promotes breast is best but won't help with one if the most common causes of not being able to feed!! We had to pay private to get my sons snipped!

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Clare Cordell
12 years ago Featured

My younger son had tongue tie which was undiagnosed for two weeks. Feeding was agony. I only persevered and sought help because I'd breast fed before and knew something wasn't right. We went privately in the end but a service at Addenbrookes would have been invaluable to us.

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sarah jones
12 years ago Featured

Having had to travel to bedford from cambridge to have my sons tt assessed and snipped I know how needed this service is in this area, travelling that far with a hungry baby to get advice as no one was able to see him locally was horrible.

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Stuart Cain
2 years ago

I support the need of tongue-tie division in Cambridge, as described in the partition.

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Anonymous
8 years ago

Struggling to get a referral.

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