Public Support for Rare Childhood Cancer Research/Funding
13 Comments
A
Anthony Kirkwood
11 years ago
In late January of 2015 my 6 year old daughter was diagnosed with Stage 4 Wilms tumor. She has undergone 6 weeks of Chemo to shrink main tumor and after resection of main tumor this last week it was discovered that her tumor is of favorable histology BUT hers is considered high risk as it is Blastemal Predominant and from my readings online of research websites These kind if relapsed only once have a 10 percent chance of survival and have a high rate of relapse. I love my daughter more than my own life as she is my little angel who is very sweet and always snuggles me and I have had to go see a shrink and get medded ip to deal with my depression from this and am a devastated father and am desperate as I couldnt live without her. I get angry as well a lot and want to join some sort of protest group or start one in my area to kick down doors and demand more funding. This is total bs. The current drugs she is on are drugs they were using on kids back in the 1970s( 2 others with Doxirubicon) she is about to be switched to a higher intensity drugs after her recovery from surgery and we meet with the oncology team next week. I am ready to tell them that there drugs are garbage and there treatments in general are a joke and if they actually get her to NED with these higher intensity chemos then that is the end with our relationship with the hospital. Im not bringing her in every 6 weeks or 3 months for ct scans to put our family through more stress with scanziety if all you have to offer us is 10 percent. She would be better off not knowing she has the disease nor the rest of the family knowing and just go at home. Our main oncologist from what im hearing keeps sugar coating stuff to my wife, shes not even a Wilms specialist,.she specializes in pediatric head and neck cancers as there is no "wilms" specialist at Childrens Minneapolis as they see about 10 Wilms Cases a year. I think I know more about my childs cancer then she does from researching online constantly the last
A
Anthony Kirkwood
11 years ago
In late January of 2015 my 6 year old daughter was diagnosed with Stage 4 Wilms tumor. She has undergone 6 weeks of Chemo to shrink main tumor and after resection of main tumor this last week it was discovered that her tumor is of favorable histology BUT hers is considered high risk as it is Blastemal Predominant and from my readings online of research websites These kind if relapsed only once have a 10 percent chance of survival and have a high rate of relapse. I love my daughter more than my own life as she is my little angel who is very sweet and always snuggles me and I have had to go see a shrink and get medded ip to deal with my depression from this and am a devastated father and am desperate as I couldnt live without her. I get angry as well a lot and want to join some sort of protest group or start one in my area to kick down doors and demand more funding. This is total bs. The current drugs she is on are drugs they were using on kids back in the 1970s( 2 others with Doxirubicon) she is about to be switched to a higher intensity drugs after her recovery from surgery and we meet with the oncology team next week. I am ready to tell them that there drugs are garbage and there treatments in general are a joke and if they actually get her to NED with these higher intensity chemos then that is the end with our relationship with the hospital. Im not bringing her in every 6 weeks or 3 months for ct scans to put our family through more stress with scanziety if all you have to offer us is 10 percent. She would be better off not knowing she has the disease nor the rest of the family knowing and just go at home. Our main oncologist from what im hearing keeps sugar coating stuff to my wife, shes not even a Wilms specialist,.she specializes in pediatric head and neck cancers as there is no "wilms" specialist at Childrens Minneapolis as they see about 10 Wilms Cases a year. I think I know more about my childs cancer then she does from researching online constantly the last
C
Catherine Colon
11 years ago
Pediatric cancer robs so many people of the future. It needs to be stopped!
C
Catherine Colon
11 years ago
Pediatric cancer robs so many people of the future. It needs to be stopped!
A
Angel Greene
11 years ago
Featured
Kids are our future. Give them the funding that they need for pediatric cancer research!
A
Angel Greene
11 years ago
Featured
Kids are our future. Give them the funding that they need for pediatric cancer research!
E
Ellen Callahan
12 years ago
Featured
Supporting Alex Green and his family has drawn my husband and me to donate to St. Jude's Children's Cancer Fund on a monthly basis. We also donate to Alex Green as often as possible. So much needs to be done and so many lives have been lost due to cancer...doesn't matter what name or label it carries, it's still deadly and still cancer.
J
Julie Maul
12 years ago
Save our children!!
S
Stephanie Merfeld
12 years ago
My son Adrian needs a cure!
R
Roxanne Mitchell
12 years ago
My love and support for all the families involved in this.
M
Mike May
13 years ago
Featured
FUND THE CURES!!!! Our kids deserve a fighting chance.
S
Sarah Park
13 years ago
Featured
My heart breaks for these families. No parent should ever hear that there are no options left for their child. We have to do better.
J
Jessica Garcia
13 years ago
Featured
Too many kids are losing their lives to these diseases. Please put more money into research so these rare cancers arent ignored anymore.
In late January of 2015 my 6 year old daughter was diagnosed with Stage 4 Wilms tumor. She has undergone 6 weeks of Chemo to shrink main tumor and after resection of main tumor this last week it was discovered that her tumor is of favorable histology BUT hers is considered high risk as it is Blastemal Predominant and from my readings online of research websites These kind if relapsed only once have a 10 percent chance of survival and have a high rate of relapse. I love my daughter more than my own life as she is my little angel who is very sweet and always snuggles me and I have had to go see a shrink and get medded ip to deal with my depression from this and am a devastated father and am desperate as I couldnt live without her. I get angry as well a lot and want to join some sort of protest group or start one in my area to kick down doors and demand more funding. This is total bs. The current drugs she is on are drugs they were using on kids back in the 1970s( 2 others with Doxirubicon) she is about to be switched to a higher intensity drugs after her recovery from surgery and we meet with the oncology team next week. I am ready to tell them that there drugs are garbage and there treatments in general are a joke and if they actually get her to NED with these higher intensity chemos then that is the end with our relationship with the hospital. Im not bringing her in every 6 weeks or 3 months for ct scans to put our family through more stress with scanziety if all you have to offer us is 10 percent. She would be better off not knowing she has the disease nor the rest of the family knowing and just go at home. Our main oncologist from what im hearing keeps sugar coating stuff to my wife, shes not even a Wilms specialist,.she specializes in pediatric head and neck cancers as there is no "wilms" specialist at Childrens Minneapolis as they see about 10 Wilms Cases a year. I think I know more about my childs cancer then she does from researching online constantly the last
In late January of 2015 my 6 year old daughter was diagnosed with Stage 4 Wilms tumor. She has undergone 6 weeks of Chemo to shrink main tumor and after resection of main tumor this last week it was discovered that her tumor is of favorable histology BUT hers is considered high risk as it is Blastemal Predominant and from my readings online of research websites These kind if relapsed only once have a 10 percent chance of survival and have a high rate of relapse. I love my daughter more than my own life as she is my little angel who is very sweet and always snuggles me and I have had to go see a shrink and get medded ip to deal with my depression from this and am a devastated father and am desperate as I couldnt live without her. I get angry as well a lot and want to join some sort of protest group or start one in my area to kick down doors and demand more funding. This is total bs. The current drugs she is on are drugs they were using on kids back in the 1970s( 2 others with Doxirubicon) she is about to be switched to a higher intensity drugs after her recovery from surgery and we meet with the oncology team next week. I am ready to tell them that there drugs are garbage and there treatments in general are a joke and if they actually get her to NED with these higher intensity chemos then that is the end with our relationship with the hospital. Im not bringing her in every 6 weeks or 3 months for ct scans to put our family through more stress with scanziety if all you have to offer us is 10 percent. She would be better off not knowing she has the disease nor the rest of the family knowing and just go at home. Our main oncologist from what im hearing keeps sugar coating stuff to my wife, shes not even a Wilms specialist,.she specializes in pediatric head and neck cancers as there is no "wilms" specialist at Childrens Minneapolis as they see about 10 Wilms Cases a year. I think I know more about my childs cancer then she does from researching online constantly the last
Pediatric cancer robs so many people of the future. It needs to be stopped!
Pediatric cancer robs so many people of the future. It needs to be stopped!
Kids are our future. Give them the funding that they need for pediatric cancer research!
Kids are our future. Give them the funding that they need for pediatric cancer research!
Supporting Alex Green and his family has drawn my husband and me to donate to St. Jude's Children's Cancer Fund on a monthly basis. We also donate to Alex Green as often as possible. So much needs to be done and so many lives have been lost due to cancer...doesn't matter what name or label it carries, it's still deadly and still cancer.
Save our children!!
My son Adrian needs a cure!
My love and support for all the families involved in this.
FUND THE CURES!!!! Our kids deserve a fighting chance.
My heart breaks for these families. No parent should ever hear that there are no options left for their child. We have to do better.
Too many kids are losing their lives to these diseases. Please put more money into research so these rare cancers arent ignored anymore.