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Status: Closed — this petition is no longer accepting signatures.

Suport Students With Lyme in Our Schools

Suport Students With Lyme in Our Schools

Closed — 17 supporters Verified

Final supporters

M
Megan H.
P
Pamela W.
S
Someone
S
Someone
N
Nancy H.
C
Cynthia H.
A
Alanna
B
Barb W.
J
Julie H.
M
Maureen D.
+7 more
SA
Started by Seth Antoch 11 years, 1 month ago

For an entire year, I was misdiagnosed with several illnesses until finally learning I had Lyme and two other tick-borne illnesses. The school systems my family dealt with did not have any precedent for dealing with students with Lyme, and I was designated a 'truant' child. It was difficult enough trying to get the right treatment for my illness, but it was almost unbearable to be accused of being defiant, unmotivated, unintelligent, or mentally ill by the school. Since there was no opportunity for a clear support for my needs as a student suffering from Lyme disease, the school essentially chose whatever description for my eventual IEP that they saw fit. It caused frustration, sadness, and fear for me and my family as we tried to navigate the medical world and the education world with an illness that not everyone would recognize. I had very few rights as a student, because my illness was not designated or protected under the federal guidelines. So much of my battle came from the judgment, harassment, and accusations made by the school that it interfered with my recovery. All of that could have been avoided if my illness was recognized by the education system allowing me to receive the services I eventually received after months of fighting with a lawyer, an education advocate, several doctors, and many others advocating for me- a student with unique special needs. According to the CDC, children ages 5-9 have the highest infection rates, and the number of new infections (although this is a very low estimate by professional standards) is over 50,000 cases per year in children. Lyme and its co-infections are a growing epidemic affecting thousands of students every year, and yet no one is giving them a voice, protecting, or supporting them they way students with other illnesses and disabilities are supported and protected.

5 Comments

C
Cynthia Howard
10 years ago Featured

My ten year old suffers from lyme Bart and mold and I have seen him go from very focused to not. I also saw him hit five times. With a baseball in a matter of two weeks and was never once before. He is frustrated because no one is listening and is beginning to hate school. There should be way more education on this and what it causes for children rather then them being blamed for having bad behavior. Its not their fault and schools need to be aware and support their road to recovery.

M
Maureen DiOrio
10 years ago Featured

my son is 15 and has had Lyme and Bartonella since he was 11. This disease is real and kids need accommodations at school, not threats or dismissals.

A
Anonymous
9 years ago

I'm sorry that the schools cannot give consideration to real medical issues. I hope you help to educate the public about these issues facing students.

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Malka Margolies
10 years ago

Lyme and all tick-borne illnesses are so grossly misunderstood. Lyme and Bartonella turned my life upside down for ten years and now is doing the same to my teenager. I'm very grateful for what you and your mom have written. It is eerily our story as well. I hope you are fully recovered and living a productive, joyous life.

J
Julie Howell
10 years ago

My 19 year old daughter was just diagnosed, via igenex, with Lyme and we suspect she has Bartonella due to her sudden psychiatric symptoms. Your and your mom's blogs helped a lot! Thank you!