The postal service confirmed that the dedicated stamp will be issued to honor our community. It has been an exhausting road to reach this point but I am deeply grateful to the 428 people who stayed with me. Keep looking for the new design in the coming months as we …
Sarcoidosis is a potentially fatal inflammatory disease that can attack any organ of the body. It causes tiny lumps called granulomas to form. These granulomas most closely resemble sugar or sand in appearance. Sarcoidosis has no known cause or cure and is known to affect people of all ages, races and gender worldwide.
A normal immune system would defend ones body
against anything seen as foreign or harmful. Specific cells would be sent out protect the organ by releasing chemicals that would produce inflammation. By surrounding the evading substance or substances the foreign invader would then be isolated and destroyed. In a person with Sarcoidosis for whatever the reason the inflammation remains and this allows granulomas to form.
Sarcoidosis is not easily treated or controlled because no two persons with the disease are alike, therefore we could be compared to a snowflake. In fact most people with the disease look perfectly healthy from the outside.
Therefore, the Sarcoidosis community in whole, which includes but is not limited to spouses, loved ones, friends and caregivers are asking that a stamp be created to honor all of us who are living with and who have passed on due to this disease. Let this stamp also bring awareness and education to all in hopes that a cure will soon be found.
The emails I receive from people living with this invisible weight are heavy to carry but they fuel the exhaustion I feel each morning. I have been spending my time sending inquiries to the postal officials and while the waiting is draining I am not walking away from this effort.
March 11, 2013
Seeing this kind of movement is exhausting but it keeps me moving forward. We have come further than I ever dared to hope when I started this fight.
March 11, 2013
One hundred people have signed on to recognize what we have been going through. It is exhausting to keep explaining this invisible weight but seeing others acknowledge the pain makes me feel a little less alone.
Reached 100 supporters
March 9, 2013
9 Comments
M
Mary Kittle
12 years ago
Featured
I had never heard of Sarcoidosis until it came across Facebook one day from a friend to please pray for a lady at their church who had it. Years later, I met a friend's wife and wouldn't you know, she was who I'd prayed for way before I knew her. God works in wonderful ways and this awareness is much needed. Glad to help spread the word and support it. The future is bright for Stamping Out Sarcoidosis!!!!
P
Peggy Bunner
12 years ago
Featured
I had never heard of this disease until about 4months ago . We met a friends wife for the first time . She has this illness . I'm sure a lot of people haven't heard of it . There needs to be more awareness .
D
David Coleman
13 years ago
Featured
Good luck with this. My wife has had sarcoid for 6 years and it has been a nightmare for us. Anything that brings attention to it helps.
M
Mark Russell
13 years ago
Featured
Lost my mom to this awful disease in 2011. It is time more people knew the truth about sarcoidosis. Hope this goes somewhere.
S
Sarah Wright
13 years ago
Featured
NEVER HEARD OF THIS TILL NOW. SO SAD.
K
Karen Nair
13 years ago
Featured
My brother has been fighting this for years and nobody understands how hard it is because he looks fine on the outside. A stamp is a great idea to help people learn what this is.
The postal service confirmed that the dedicated stamp will be issued to honor our community. It has been an exhausting road to reach this point but I am deeply grateful to the 428 people who stayed with me. Keep looking for the new design in the coming months as we …
Sarcoidosis is a potentially fatal inflammatory disease that can attack any organ of the body. It causes tiny lumps called granulomas to form. These granulomas most closely resemble sugar or sand in appearance. Sarcoidosis has no known cause or cure and is known to affect people of all ages, races and gender worldwide.
A normal immune system would defend ones body
against anything seen as foreign or harmful. Specific cells would be sent out protect the organ by releasing chemicals that would produce inflammation. By surrounding the evading substance or substances the foreign invader would then be isolated and destroyed. In a person with Sarcoidosis for whatever the reason the inflammation remains and this allows granulomas to form.
Sarcoidosis is not easily treated or controlled because no two persons with the disease are alike, therefore we could be compared to a snowflake. In fact most people with the disease look perfectly healthy from the outside.
Therefore, the Sarcoidosis community in whole, which includes but is not limited to spouses, loved ones, friends and caregivers are asking that a stamp be created to honor all of us who are living with and who have passed on due to this disease. Let this stamp also bring awareness and education to all in hopes that a cure will soon be found.
The emails I receive from people living with this invisible weight are heavy to carry but they fuel the exhaustion I feel each morning. I have been spending my time sending inquiries to the postal officials and while the waiting is draining I am not walking away from this effort.
March 11, 2013
Seeing this kind of movement is exhausting but it keeps me moving forward. We have come further than I ever dared to hope when I started this fight.
March 11, 2013
One hundred people have signed on to recognize what we have been going through. It is exhausting to keep explaining this invisible weight but seeing others acknowledge the pain makes me feel a little less alone.
Reached 100 supporters
March 9, 2013
9 Comments
M
Mary Kittle
12 years ago
Featured
I had never heard of Sarcoidosis until it came across Facebook one day from a friend to please pray for a lady at their church who had it. Years later, I met a friend's wife and wouldn't you know, she was who I'd prayed for way before I knew her. God works in wonderful ways and this awareness is much needed. Glad to help spread the word and support it. The future is bright for Stamping Out Sarcoidosis!!!!
P
Peggy Bunner
12 years ago
Featured
I had never heard of this disease until about 4months ago . We met a friends wife for the first time . She has this illness . I'm sure a lot of people haven't heard of it . There needs to be more awareness .
D
David Coleman
13 years ago
Featured
Good luck with this. My wife has had sarcoid for 6 years and it has been a nightmare for us. Anything that brings attention to it helps.
M
Mark Russell
13 years ago
Featured
Lost my mom to this awful disease in 2011. It is time more people knew the truth about sarcoidosis. Hope this goes somewhere.
S
Sarah Wright
13 years ago
Featured
NEVER HEARD OF THIS TILL NOW. SO SAD.
K
Karen Nair
13 years ago
Featured
My brother has been fighting this for years and nobody understands how hard it is because he looks fine on the outside. A stamp is a great idea to help people learn what this is.
I had never heard of Sarcoidosis until it came across Facebook one day from a friend to please pray for a lady at their church who had it. Years later, I met a friend's wife and wouldn't you know, she was who I'd prayed for way before I knew her. God works in wonderful ways and this awareness is much needed. Glad to help spread the word and support it. The future is bright for Stamping Out Sarcoidosis!!!!