The hospital confirmed they are opening a dedicated rheumatology ward to provide the round the clock care we fought for. I am completely drained after this long struggle but finally relieved that patients will have the support they deserve. We should take a moment to rest before we watch the …
We, the undersigned, wish to have a specialist Rheumatology ward based at the University Hospital of Wales, Cardiff.
There is currently a Rheumatology Day Unit, but this does not provide cover 24 hours a day, which is so desperately needed. There is currently no cover on weekends and bank holidays.
Rheumatology patients requires continuous specialist care and attention, sometimes urgently.
Rheumatology covers all kinds of illnesses, including Systemic Lupus, Rheumatoid Arthritis, Wegeners Granulomatosis, Vasculitis and other auto immune diseases.
Quite often, auto immune disease patients can be treated as day cases and fight their condition between home and the day clinic. However, when things get worse, as they often do, the sufferer needs in patient care in a specialist ward. At the moment, there isn't one.
Autoimmune disease potentially affects all organs in the body, so when a patient's condition requires urgent attention, the skills and knowledge of multiple specialists from different disciplines may be required all at the same time. This can only be effectively coordinated from an in-patient facility.
Thank you
Reaching this level of support feels like a quiet turning point in a long and heavy road. It is draining to keep fighting for the care patients deserve but seeing this momentum keeps me moving forward.
Reached 100 supporters
January 3, 2010
6 Comments
S
Sarah Fuentes
16 years ago
Featured
It is absolutely ridiculous that we dont have this in cardiff. Living with lupus is hard enough without having to worry about where to go when things take a turn for the worse.
B
Bethan Lloyd
16 years ago
Featured
Really hope this happens. Having to deal with a flare up on a bank holiday with nowhere to turn is my biggest nightmare.
L
Linda Mwangi
16 years ago
Featured
About time. Autoimmune diseases are serious and deserve proper care round the clock.
D
David Anderson
16 years ago
Featured
NEEDED. FAST.
G
Gareth Mathis
16 years ago
Featured
My wife has RA and we have been left waiting far too long in general wards that just dont understand her condition. Specialists are needed 24/7.
M
Mark Cunningham
16 years ago
Featured
Cardiff needs to step up. Patients are suffering because the current setup is just not good enough for emergencies on weekends.
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The hospital confirmed they are opening a dedicated rheumatology ward to provide the round the clock care we fought for. I am completely drained after this long struggle but finally relieved that patients will have the support they deserve. We should take a moment to rest before we watch the …
We, the undersigned, wish to have a specialist Rheumatology ward based at the University Hospital of Wales, Cardiff.
There is currently a Rheumatology Day Unit, but this does not provide cover 24 hours a day, which is so desperately needed. There is currently no cover on weekends and bank holidays.
Rheumatology patients requires continuous specialist care and attention, sometimes urgently.
Rheumatology covers all kinds of illnesses, including Systemic Lupus, Rheumatoid Arthritis, Wegeners Granulomatosis, Vasculitis and other auto immune diseases.
Quite often, auto immune disease patients can be treated as day cases and fight their condition between home and the day clinic. However, when things get worse, as they often do, the sufferer needs in patient care in a specialist ward. At the moment, there isn't one.
Autoimmune disease potentially affects all organs in the body, so when a patient's condition requires urgent attention, the skills and knowledge of multiple specialists from different disciplines may be required all at the same time. This can only be effectively coordinated from an in-patient facility.
Thank you
Reaching this level of support feels like a quiet turning point in a long and heavy road. It is draining to keep fighting for the care patients deserve but seeing this momentum keeps me moving forward.
Reached 100 supporters
January 3, 2010
6 Comments
S
Sarah Fuentes
16 years ago
Featured
It is absolutely ridiculous that we dont have this in cardiff. Living with lupus is hard enough without having to worry about where to go when things take a turn for the worse.
B
Bethan Lloyd
16 years ago
Featured
Really hope this happens. Having to deal with a flare up on a bank holiday with nowhere to turn is my biggest nightmare.
L
Linda Mwangi
16 years ago
Featured
About time. Autoimmune diseases are serious and deserve proper care round the clock.
D
David Anderson
16 years ago
Featured
NEEDED. FAST.
G
Gareth Mathis
16 years ago
Featured
My wife has RA and we have been left waiting far too long in general wards that just dont understand her condition. Specialists are needed 24/7.
M
Mark Cunningham
16 years ago
Featured
Cardiff needs to step up. Patients are suffering because the current setup is just not good enough for emergencies on weekends.
It is absolutely ridiculous that we dont have this in cardiff. Living with lupus is hard enough without having to worry about where to go when things take a turn for the worse.