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Restore Funding for Tourette Syndrome in the 2015-2016 Pennsylvania State Budget

272 Comments

H
Heidi Ruprecht
11 years ago Featured

my daughter Megan has Tourette Syndrome and my family has been lucky enough to have found the pa-tsa to help us along our journey. My daughter has gained her strenth and since of belonging with the help of them! Sherrie S. you are a heaven sent! thank you for all that you do.

I
Ilene Applevaum
11 years ago

Do this for our children!!

I
Ilene Applevaum
11 years ago

Do this for our children!!

B
beth moser
11 years ago

katen spies has helped me years ago with our son, Landon, who has tourette's as well. thank you from the bottom of my heart!

B
beth moser
11 years ago

katen spies has helped me years ago with our son, Landon, who has tourette's as well. thank you from the bottom of my heart!

T
Tara Brandt
11 years ago

Restore funding for this much needed cause.

T
Tara Brandt
11 years ago

Restore funding for this much needed cause.

K
Karen Spies
11 years ago

My son has Tourette Syndrome and is now 36 years old. He had a difficult childhood learning to deal with everything that goes with this syndrome; I don't know how he would have survived without the caring support that we received from the Pennsylvania Tourette Alliance. Please fund this program – the majority of schools, police, parents, doctors and more don’t know the best way to manage individuals with this diagnosis. When my son was first diagnosed the first place I went and the only place I found information was the community college which had two small articles. Thank goodness there are now many resources and people in the TSA office in Gettysburg (PA) that will advocate for you and decipher this information. Also there are people trained through the TSA office that will go with you to the school district or will put on seminars to train the police and others on the Syndrome to stop serious misunderstandings from happening. My son is stopped during every concert he has attended asking if he is on “drugs” because of his movements. The first doctor my son had consultation with concerning constant sniffing had never heard of Tourette Syndrome. Education and support are the key points to guiding those with TS through life.

K
Karen Spies
11 years ago

My son has Tourette Syndrome and is now 36 years old. He had a difficult childhood learning to deal with everything that goes with this syndrome; I don't know how he would have survived without the caring support that we received from the Pennsylvania Tourette Alliance. Please fund this program – the majority of schools, police, parents, doctors and more don’t know the best way to manage individuals with this diagnosis. When my son was first diagnosed the first place I went and the only place I found information was the community college which had two small articles. Thank goodness there are now many resources and people in the TSA office in Gettysburg (PA) that will advocate for you and decipher this information. Also there are people trained through the TSA office that will go with you to the school district or will put on seminars to train the police and others on the Syndrome to stop serious misunderstandings from happening. My son is stopped during every concert he has attended asking if he is on “drugs” because of his movements. The first doctor my son had consultation with concerning constant sniffing had never heard of Tourette Syndrome. Education and support are the key points to guiding those with TS through life.

E
Esther Myers
11 years ago

restore funding for Tourette Syn. This is very important

E
Esther Myers
11 years ago

restore funding for Tourette Syn. This is very important

D
Dorothy Klevan
11 years ago

Enough has never been done to help the ones with Tourette's & this should not be cut out as all the help for it is needed.

D
Dorothy Klevan
11 years ago

Enough has never been done to help the ones with Tourette's & this should not be cut out as all the help for it is needed.

L
Lori Edwards
11 years ago

As a mom of a son who has severe Tourette's Syndrome, the Pa. TSA advocacy was key in getting support for Brian and receiving education on TS which helped him to complete high school. This support also helped him become his own advocate when educating others, both in school, church & public, about tics-copralalia&echolalia. I would hope that before cutting this much needed support, that Govenor Wolf would *meet with and get to know both young childrens,teens & adults who have to live w/ the challenge of TS. Do not cut this much needed support!!

L
Lori Edwards
11 years ago

As a mom of a son who has severe Tourette's Syndrome, the Pa. TSA advocacy was key in getting support for Brian and receiving education on TS which helped him to complete high school. This support also helped him become his own advocate when educating others, both in school, church & public, about tics-copralalia&echolalia. I would hope that before cutting this much needed support, that Govenor Wolf would *meet with and get to know both young childrens,teens & adults who have to live w/ the challenge of TS. Do not cut this much needed support!!

A
Anonymous
11 years ago

this is helpful

M
michael vincent antique
11 years ago

this is helpful

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Dieter Glass
11 years ago

We need this valuable funding to continue.