Petition For More Research, Awareness, Training For Med School Students & Doctors For Chronic Pelvic Pain Frequently Caused By Pudendal Neuralgia/PNE
94 Comments
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Miss Ella Kehoe
10 years ago
Featured
My best friend is suicidal because of a pudendal nerve injury she sustained after an operation..She has so many meds and treatment and nothing has helped she is virtually bed ridden..more need to be done and it makes me so angry that she has no relief from her suffering!
J
Janice Barnes
10 years ago
Please do more training and research on pelvic floor pain and dysfunction!
V
Vladimir
10 years ago
We need help !
T
Tina Walkear
10 years ago
I have suffered for more than 6 years now by this very disabling illness. MAKE A CHANGE!!!!
W
Waqas Anwar
10 years ago
patient of dorsal nerve entrapment for last 1.5 year.
L
Lynda Shamlian
10 years ago
Let's keep fighting for ourselves!
T
Tina Walkear
10 years ago
More research & training for health staff needed. From a desperate sufferer in Australia.
B
Betty Jean
10 years ago
Please find help for all of us suffering from PNE
S
Sophia Paparodis
10 years ago
Featured
Time and money down the drain in health care because no doctor diagnosed me correctly. Peripheral nerves are important for the medical community to study, diagnose and treat.
R
Rebekah Hough
10 years ago
I've been suffering with this pain my entire life and I would really like to see it come to an end. It sucks up most of my time and energy feeling this pain. Please help.
A
Anonymous
10 years ago
I had surgery for PNE 3 weeks ago with Dr, Mark Conway. PNE totally takes over your life!
R
Ricardo Galdamez
10 years ago
Pelvic pain in men is a terrible problem and there are few specialists .Phisycal therapy are expensive ,painful ,with poor results.
K
Kim S Ramsey
10 years ago
PGAD/PNE Patients need more attention and treatment. Give us the respect that we give you and add these diagnoses to your curriculum. Thank you
J
John darrow
10 years ago
Wow!4 yrs have been suffering with feels like a tooth ace in left side of pelvis 24/7 7days a week hard on hurts like hell !ejaculating puts me through the roof with pain sitting pain in association standing seems to be only conform 20 yrs so tired of dr.s looking at me like I have 3 eye balls at the end of my rope how can I convince my dr. It's entrapment p.n. how can I get help on disability now medicare medicade.is their hope before I die 61 now.
B
Brandi Legg
10 years ago
I'm signing for my friend. Hope they find a way to help with this. :)
L
Lindsay Mullins
10 years ago
As a sufferer of chronic pelvic pain since a hysterectomy one year ago, I beg you to take notice of this issue. It has drastically affected my life, and also my family's. I want my life back, and I want to make sure that no one suffers like this in the future.
J
Jennifer Bernier Barbera
10 years ago
I have this. I was diagnosed 5 months ago. I am 38 years old. I had to quit my job this disease has turned my life upside down. I can not plan for the future because I do not know how I am going to feel from day to day.
J
Jennifer Novelli
11 years ago
Please find better tretention so we don't suffer and want to die. We were one people who had no pain to this extreme. Please help I can't tell you I suffer more and more everyday.
S
SYLVIE LUSIGNAN
11 years ago
I SUFFER FORM PUDENDAL NERVE DAMED IN SURGARY & HAVE TO GET NERVE BLOCK NOW I GET THAT IN MY NECK ALSO THEY KNOW ABOUT THAT WHY CAN'T THEY GET INFORM THEMSELVES WITH THE PUDENDAL!!! THEY ARE DOCTORS WITH BACHLORS!!!!!
My best friend is suicidal because of a pudendal nerve injury she sustained after an operation..She has so many meds and treatment and nothing has helped she is virtually bed ridden..more need to be done and it makes me so angry that she has no relief from her suffering!
Please do more training and research on pelvic floor pain and dysfunction!
We need help !
I have suffered for more than 6 years now by this very disabling illness. MAKE A CHANGE!!!!
patient of dorsal nerve entrapment for last 1.5 year.
Let's keep fighting for ourselves!
More research & training for health staff needed. From a desperate sufferer in Australia.
Please find help for all of us suffering from PNE
Time and money down the drain in health care because no doctor diagnosed me correctly. Peripheral nerves are important for the medical community to study, diagnose and treat.
I've been suffering with this pain my entire life and I would really like to see it come to an end. It sucks up most of my time and energy feeling this pain. Please help.
I had surgery for PNE 3 weeks ago with Dr, Mark Conway. PNE totally takes over your life!
Pelvic pain in men is a terrible problem and there are few specialists .Phisycal therapy are expensive ,painful ,with poor results.
PGAD/PNE Patients need more attention and treatment. Give us the respect that we give you and add these diagnoses to your curriculum. Thank you
Wow!4 yrs have been suffering with feels like a tooth ace in left side of pelvis 24/7 7days a week hard on hurts like hell !ejaculating puts me through the roof with pain sitting pain in association standing seems to be only conform 20 yrs so tired of dr.s looking at me like I have 3 eye balls at the end of my rope how can I convince my dr. It's entrapment p.n. how can I get help on disability now medicare medicade.is their hope before I die 61 now.
I'm signing for my friend. Hope they find a way to help with this. :)
As a sufferer of chronic pelvic pain since a hysterectomy one year ago, I beg you to take notice of this issue. It has drastically affected my life, and also my family's. I want my life back, and I want to make sure that no one suffers like this in the future.
I have this. I was diagnosed 5 months ago. I am 38 years old. I had to quit my job this disease has turned my life upside down. I can not plan for the future because I do not know how I am going to feel from day to day.
Please find better tretention so we don't suffer and want to die. We were one people who had no pain to this extreme. Please help I can't tell you I suffer more and more everyday.
I SUFFER FORM PUDENDAL NERVE DAMED IN SURGARY & HAVE TO GET NERVE BLOCK NOW I GET THAT IN MY NECK ALSO THEY KNOW ABOUT THAT WHY CAN'T THEY GET INFORM THEMSELVES WITH THE PUDENDAL!!! THEY ARE DOCTORS WITH BACHLORS!!!!!
Please help