Skip to main content

I am honestly stunned to share that the federal funding has been approved for those fighting this disease. None of this would have happened without the incredible energy you all brought to the table. Please keep pushing for better care even though we finally cleared this hurdle together.

September 12, 2017

Petition for Federal funding to fight Alzheimer’s disease

Petition for Federal funding to fight Alzheimer’s disease

🏆 Won — 452 supporters Verified

Final supporters

C
Chris R.
T
Tiffany S.
T
Teena B.
V
Valerie T.
W
Wileeta M.
H
Hollie L.
S
Shannon T.
P
Paula P.
D
David G.
K
Kim Q.
+442 more
XC
Started by XZOAKA Connection Committee 9 years, 3 months ago

Xi Zeta Omega Chapter of Alpha Kappa Alpha Sorority, Incorporated® in the District of Columbia takes action to support Alzheimer’s patients and caregivers

Dear Friend:

As part of the Alpha Kappa Alpha Sorority, Incorporated® Health Promotion Initiative, we have partnered with the Alzheimer's Association to bring awareness to Alzheimer's disease and Caregiver Support. According to the National Institutes of Health, Alzheimer's disease is the nation’s most expensive disease, with an estimated cost of $259 billion in 2017. It also is one of the fastest growing health challenges among African Americans.

To raise awareness and advocate for resources, Xi Zeta Omega Chapter of Alpha Kappa Alpha Sorority, Incorporated® is calling on our members, family, friends and colleagues to join us in petitioning the United States Congress to take proactive measures to support Alzheimer's patients and their families.

Each year on the summer solstice – the longest day of the year in the Northern Hemisphere - the Alzheimer’s Association encourages individuals, groups and organizations to show love and support for those affected by Alzheimer’s disease. This year The Longest Day occurs on Wednesday, June 21, 2017. As a collective, Alpha Kappa Alpha Sorority, Incorporated® will participate in events nationwide.

Xi Zeta Omega Chapter has chosen to deliver a petition to Congress on this day to impress upon our legislative representatives, the critical need for resources and support to fight this disease. We are collecting signatures from around our community to garner support for funding, research and medical care directed towards Alzheimer’s disease.


Per their May 5, 2017 press release, "...the Alzheimer’s Association estimates that by mid-century the number of people with the disease is set to nearly triple, and the costs of Alzheimer’s are projected to more than quadruple to $1.1 trillion. Today, funding for Alzheimer’s research at the NIH is under $1.4 billion per year. Leading experts have said a greater investment is still needed if we are to stay on the path to preventing and effectively treating Alzheimer’s by 2025. Demonstrating the urgency of this crisis, the NIH Professional Judgment Budget commissioned by Congress has already recommended a $414 million increase in spending on Alzheimer’s disease research for fiscal year 2018."

REQUESTED ACTION BY CONGRESS:

We thank the United States Congress for the most recent $400 million-dollar historic appropriation to the National Institutes of Health to address Alzheimer's research needs. We seek the explicit affirmation from Congress to increase funding again in 2018. Also, we call on legislators and the White House to enact legislation that DOES NOT include Alzheimer's disease as a pre-existing condition for the purposes of health insurance, as is currently outlined in the American Heath Care Act (AHCA) advanced by the U.S. House of Representatives. This vulnerable population cannot withstand having any interruption in their insurance coverage or escalation of premiums adding to their existing financial hardship. Additionally, we ask for the EXCLUSION from health care legislation, any provision that would allow states to opt out of covering treatment for Alzheimer's disease in state health insurance plans.

By signing this petition, I have chosen to act and make my voice heard. I stand for legislation that offers affordable healthcare and continues the progress we have made in fighting against an illness that:

  • affects more than 5 million Americans,
  • ranks 6th in leading causes of death,
  • affects 1 in 3 seniors and
  • causes 15 million Americans to provide unpaid care to people with dementia.

Thank you for advocating and fighting with us!

Updates

Reached 250 supporters

June 17, 2017

June 6, 2017

I am truly stunned to see that over one hundred people have added their names to this call for action. This has grown well beyond what I thought possible and it really belongs to all of you who cared enough to step up.

Reached 100 supporters

June 5, 2017

52 Comments

C
Carmen Floyd
9 years ago Featured

This is for my grandmama. I truly love and miss her and not a day goes by where I don't think about her. She suffered this terrible and yet mysterious disease and I only hope that the more and more people will share this and sign to help other families who are going through the same thing. God bless

Z
Zenda J Bowie
9 years ago Featured

This disease is devastating to a family and is becoming more prevalent. Let it happen in your family and you probably have the means to support the family member. Everyone isn't in that kind of economic situation. Federal funding is tantamount to keeping this horrific disease at bay.

A
Anonymous
9 years ago Featured

An important cause. I am more than happy to support Alpha Kappa Alpha and its Xi Zeta Omega Chapter in this effort.

S
Samantha Stewart-Elmore
9 years ago Featured

Just as our seniors need our help and rely on us, we need your help. We are relying on you to represent and act on us and the seniors we take care of.

A
Anonymous
9 years ago Featured

Funds are critically needed for research to fight this disease that strikes all walks of life, all colors, and increasingly younger as well as elderly citizens.

G
Georgia Noone-Sherrod
9 years ago Featured

December 30, 2014 we (Sandra and I) lost our mother, Lee Esther Floyd to Alzheimer's. This cruel disease robbed me and my siblings, our spouses, nieces, nephews, cousins, and countless others who loved Mom of the most amazing woman. The last ten years of her life were a slow downward spiral of lost memories, a movement into a mental seclusion, a vortex of silence. She never lost her spirit to live or her faith, so there is somethings that not even disease can take from us. But for those of us left to watch in horror, Alzheimer's devastates families.

C
Chris Robinson
7 years ago

Great work. Keep the drive going.

C
Cece J
9 years ago

HU GT alum '87