Did You Know:
- Rare Diseases impact more people than Cancer and Aids Combined
-There are more than 7,000 Rare Diseases
Affecting 30 Million Americans (1 in 10 People)
-Only 5% have an approved treatment
Most physicians have little experience in diagnosing rare diseases. For many rare diseases, patients suffer for 6 or more years before an accurate diagnosis is made.
And without a proper diagnosis there is no hope for treatment.
YOU can help us change this!!!!
The CADASIL Association, representing all rare diseases, would like to invite you to join us in our campaign. We plan to present this petition to The Institutes of Medicine and The Association of American Medical Colleges to show that the public supports adding a course in rare diseases to the medical school curriculum. Why? Because a course in rare diseases would provide new doctors with increased knowledge and awareness, ultimately shortening the time for a more accurate diagnosis and effective treatment.
Please sign on to this petition in support of our effort. Every name we can add to our list of supporters strengthens our cause and helps the millions of Americans suffering from a rare disease. Your pledge of support to this cause could ultimately help save many lives.
The cureCADASIL Association
“Common diseases are becoming more rare and the rare ones are becoming defined.” (Quote by: Christopher P. Austin, M.D., Director, National Center for Translational Sciences
Updates
Reached 500 supporters
June 6, 2016
June 4, 2016
The path forward is long and the exhaustion is setting in but we are pushing toward the five hundred signature mark. Please reach out to those in your immediate circle today so we can finally force this issue into the light.
Reached 100 supporters
May 28, 2014
153 Comments
Please educate our doctors. We need them to know about rare diseases. There is nothing more frustrating than going to a doctor who knows nothing about the disease you have. Doctors show their frustration when the patient knows more than they do by treating a patient unkindly sometimes, please educate them, so this doesn't happen to doctors out of frustration.
Greeting from Cyprus. My mother was diagnosed with CADASIL a few years ago. She is now 56, carrying a record of several TIAs. Rare disieases shall be faced as one condition in the medicine industry and education. I strongly believe that all together we can achieve much more. Hope is still there. Wishing the best to everyone..!
I have dercums as well as several other rare and chronic health conditions. My quality of life has been greatly compromised and finding a health care professional that understands even half of whats going on with me seems almost hopeless, especially where i live!
The earlier the diagnosis the better the prognosis. Please teach doctors to recognize rare diseases. No one likes to go to a doctor and have to educate them about the disease they have, like I have to do all the time, as do many others with Rare Diseases.
My grandmother suffered for 20 years and no doctor could figure out why she was having repeated strokes. It wasn't until my mother spent weeks being transferred from one hospital to another before she was finally diagnosed with CADASIL. I no longer want it to take 20 years or doctors from many different hospitals to be able to make this diagnosis.
This is very much needed
-
Sign Petition
We never post to your account. Social sign-in is used only to verify your signature.
Add a comment?
Your signature will be added via . Tell others why you're signing — it's optional.
By signing, you accept iPetitions Terms of Service and Privacy Policy.
Share Petition
Don't stop at signing, share the petition link with friends to multiply our impact
Copy link or share directly
Did You Know:
- Rare Diseases impact more people than Cancer and Aids Combined
-There are more than 7,000 Rare Diseases
Affecting 30 Million Americans (1 in 10 People)
-Only 5% have an approved treatment
Most physicians have little experience in diagnosing rare diseases. For many rare diseases, patients suffer for 6 or more years before an accurate diagnosis is made.
And without a proper diagnosis there is no hope for treatment.
YOU can help us change this!!!!
The CADASIL Association, representing all rare diseases, would like to invite you to join us in our campaign. We plan to present this petition to The Institutes of Medicine and The Association of American Medical Colleges to show that the public supports adding a course in rare diseases to the medical school curriculum. Why? Because a course in rare diseases would provide new doctors with increased knowledge and awareness, ultimately shortening the time for a more accurate diagnosis and effective treatment.
Please sign on to this petition in support of our effort. Every name we can add to our list of supporters strengthens our cause and helps the millions of Americans suffering from a rare disease. Your pledge of support to this cause could ultimately help save many lives.
The cureCADASIL Association
“Common diseases are becoming more rare and the rare ones are becoming defined.” (Quote by: Christopher P. Austin, M.D., Director, National Center for Translational Sciences
Updates
Reached 500 supporters
June 6, 2016
June 4, 2016
The path forward is long and the exhaustion is setting in but we are pushing toward the five hundred signature mark. Please reach out to those in your immediate circle today so we can finally force this issue into the light.
Reached 100 supporters
May 28, 2014
153 Comments
I am a medical student and i havent seen CADASIL to neurology book! So if you havent heart the disease you will not think about it when it comes! ISo you will also think CADASIL when a 40yrs old person comes with migraine, TIA, mood disorders, dementia +- pseudobulbar palsy. And family history is very IMPORTANT!
Please educate our doctors. We need them to know about rare diseases. There is nothing more frustrating than going to a doctor who knows nothing about the disease you have. Doctors show their frustration when the patient knows more than they do by treating a patient unkindly sometimes, please educate them, so this doesn't happen to doctors out of frustration.
Greeting from Cyprus. My mother was diagnosed with CADASIL a few years ago. She is now 56, carrying a record of several TIAs. Rare disieases shall be faced as one condition in the medicine industry and education. I strongly believe that all together we can achieve much more. Hope is still there. Wishing the best to everyone..!
I have dercums as well as several other rare and chronic health conditions. My quality of life has been greatly compromised and finding a health care professional that understands even half of whats going on with me seems almost hopeless, especially where i live!
The earlier the diagnosis the better the prognosis. Please teach doctors to recognize rare diseases. No one likes to go to a doctor and have to educate them about the disease they have, like I have to do all the time, as do many others with Rare Diseases.
My grandmother suffered for 20 years and no doctor could figure out why she was having repeated strokes. It wasn't until my mother spent weeks being transferred from one hospital to another before she was finally diagnosed with CADASIL. I no longer want it to take 20 years or doctors from many different hospitals to be able to make this diagnosis.
This is very much needed
-
Help this petition grow
Share it with friends to help reach 750 signatures.
Sign Petition
We never post to your account. Social sign-in is used only to verify your signature.
Add a comment?
Your signature will be added via .
Tell others why you're signing — it's optional.
Signing with Google or Facebook verifies your signature instantly — no email needed.
By signing, you accept iPetitions Terms of Service and Privacy Policy.
Share Petition
Don't stop at signing, share the petition link with friends to multiply our impact
Petitions like this
Other petitions you might want to support
Scan to share
Anyone who scans this can sign the petition.
I am a medical student and i havent seen CADASIL to neurology book! So if you havent heart the disease you will not think about it when it comes! ISo you will also think CADASIL when a 40yrs old person comes with migraine, TIA, mood disorders, dementia +- pseudobulbar palsy. And family history is very IMPORTANT!