PETITION MAJOR MEDIA OUTLETS TO DO A FEATURE ON ME/CFS

I have ME/CFS, and now been diagnosed with PTSD, high anxiety, short term memory loss. I lost my job, no income, MetLife denied my LTD. This ME/CFS is ignored by many health professionals and insurance company's. We are ignored, this is a true illness, many do not understand this, I do not understand this. Our voices need to be heard, we need to be understood.

Try again, Anderson. We love you but doing this report correctly is also very important to the ME community

22 yrs and still waiting for a cure!

Best wishes

I have suffered with ME/CFS for thirteen years. There are many more like me. when there is more attention and money going towards male pattern balding than people suffering mightily and basically losing their lives as they knew them, than there is something very, very wrong.

Fighting for 24 years

I’m a clinical psychologist, disabled with ME for 27 years. 27 years of suffering from a “political” or “controversial” disease, 27 years of waiting for the media and medical establishment to take it seriously.

Us too..

I have had this condition since about 1970, after a dreadful siege of mononucleosis. Even my then husband, a physician, thought I was just a malingerer.

I got a mystery virus. I never recovered. My long-virus syndrome has been labelled CFS/ME

Please do this show on ME, leave the cfs out of it. ME is neurological, cfs is a "syndrome". Both have similar symptoms, but ME is testable and kills.

I’m in bed 20 hrs a day after living with this disease for 25+ yrs. I was only 15 when I was diagnosed, this illness has been my entire life. I’ve been called names, gaslit and made sicker due to Drs ignorance. It hurts to see the media talking about “post-viral syndrome” like it’s some unknown disease. It is not and after 6 months of illness most of these “post-viral” people will meet the diagnostic criteria for ME/CFS. As patients we’re probably more educated about disease than any other group of people. We’ve formed a community that funds our own research. We’re the canaries in the coal mine and we’re being ignored once again. Our life is on par w/AIDS patients, the biggest cause of death in our community is SUICIDE. There are #millionsmissing and our research is where the answers probably lie. I beg of you to stop ignoring us and treating us like 2nd class citizens. Thank you!

I have had this illness for 10yrs and now I am housebound.

Please hear us ! We are the #millionsmissing. Learn more about the impact of mecfs during #meawarenesshour every wednesday 21-22pm on twitter !

CFS/ME has destroyed my life. I have been suffering with it for well over 30 years. In love life, but I think of suicide daily because my symptoms are so bad. I am well below the poverty level with the assistance that I receive and will I constantly have to fight to prove that I’m sick.

I have had ME for 7 years, 3 of those undiagnosed. I am behind this 150%

I am one of the million

CFS/ME I have been a sufferer with no end in sight for 12 years. I can do about 15- 30 percent of a normal person on a good day and have also been bedbound for weeks, months even years at a time. The scary thing is it's post viral fatigue. We need more research before our minority becomes the majority and we are completely weakened as a species!

Virtually housebound sufferer of ME for 33 years, since onset at the age of 12 years of age. The politics surrounding ME is fascinating, please make a programme about it. I suggest you contact Dr David Tuller (@ Berkeley University of California) who is exposing the economic and scientific fraud, which forms global public policy.

I sit here in excruciating chronic pain and fatigue. Somedays, I'm frustrated that I woke up in the morning. Its a horrible disorder to try and exist and manage in this world. There is just no help available.