PETITION MAJOR MEDIA OUTLETS TO DO A FEATURE ON ME/CFS

ME/CFS since 1993, in my small town of 3000 I know of at least 6 others with this illness, and since many of us are homebound much of the time knowing that many others with this illness makes me think many others that I don't know about probably have it too!

6 years suffering

Please bring awareness. Many medical professionals believe the "long haulers" might actually have CFS. We've been ignored for so long.

Please do another segment whereby you connect the ME and Covid LH dots... It would help people suffering for many years longer than CLH's.

On behalf of Lynn, who can't speak for herself.

I have suffered with ME for 30 years. FoIlowing a virus/ flu. I Iost my career and Independence in a total of 6 weeks. My symptoms can vary from day to day. It is unpredictable and debilitating. Over the years I have learnt to adjust and live with the symptoms with very little medical intervention. Research is very slow in England. At the moment I cannot sleep at night...for me sleep deprivation has been an ongoing symptom. I can go 3/4 days with complete sleep deprivation I have brain fog, lack of concentration, total exhaustion. My husband does the cooking, shopping, washing , cleaning etc. Without his wonderful support I rely don't know where I would be today!

I have had POTS/ME/CFS and Dysautonomia for over 20 years and it all started with an auto accident followed by a virus in 1996. I was 35 and never regained my health again. This is nothing new! There are millions of us suffering for decades and are ignored by medical professionals and told it's all in our heads for years. Hoping now, with CoVid, we will finally be believed, helped and funded.

I am a person with M.E. Since 1987.

This illness M.E,is leaving so many bedridden nearly everyday even for decades,and hardly any funding.We all deserve a life,and are begging for help please.

Come on guys, you're better than that! This condition has been around for 50 years, people have been suffering for 50 years, please do a story about that. Do a story about the miserable failure of the medical community to properly address this in the past while people suffer, ignored, lonely, driven to the point of suicide. There's a better story than Long Covid. I expect better from 60 Minutes.

I have ME too. Although I'm not severe, barely even moderate, I suffer in so many ways. I cannot work due to the overstimulation that my senses take in. Too much sensory input causes extreme exhaustion. There are a lot of similarities to High Functioning Autism and ME, in the way of sensory overload. I can physically do a lot, but I am mentally exhausted. Please help us and realize those who suffer from the long effects of Covid, are experiencing what we experience on a daily basis. We suffer and have suffered a long time. We need funding and awareness!

Became symptomatic at age 10, diagnosed at 16. Have struggled for 35 years. Was denied Disability benefits because being "too young", despite not being able to work for years and nearly losing my life on multiple occasions. Our stories need to be told to educate and lessen unnecessary suffering.

30 years and counting for me and my daughter . No treatment no support or help from medical profession.

Disabled by ME/CFS

At 18 I developed Glandular Fever which went undiagnosed for several weeks. At 21 I caught Cocksackie Virus whilst working with animals at a Wildlife Rescue. This developed into M.E. and I was finally given a diagnosis by a Neurologist a couple of years later. Now aged 56 I have lived with this debilitating, painful, chronic condition for over 30 years. I hope that people experiencing long COVID symptoms do not experience what those of us have lived with for years and that people will finally accept that M.E. Is a chronic neurological disorder and we are not merely malingerers.

I saw that segment and it actually hurt me a lot, the way long Covid was presented as something that never been seen before, while millions of us suffering for years. I have been bedridden for 2 years with the same symptoms and every doctor tries to get rid of me, while after Covid patients revive nationwide attention.

I’m so tired of being ignored. Look at US! We have been here for decades. I lost my career because of ME. I lost my family. I lost everything that mattered to me. Shed some light on ME, so I don’t have to educate all my physicians about what is wrong with me, let alone friends and family.

How bad is this disease? In some age groups, suicide is one of the leading causes of death among people with ME but a long way down the list for people in general. I hate having to spend my life in bed, not able to work, not able to enjoy any of my old hobbies, not able even to sit up straight for more than half an hour. Covid long-haulers got a segment on 60 Minutes mere weeks after it appeared as a phenomenon. We've waited decades without hope.

Please do this! We are not 'mental cases'- we are people cut down by a horrible misunderstood illness where we're judged and maligned. Meanwhile our hopes and dreams pass us by. We need our story told. Please!!!!

ME sufferer, diagnosed through several medical channels, and an official ME hospital in Sheffield. Sick of being used as the political weapon by government, 'most vulnerable', but denied we exist. I have a voice!