PETITION MAJOR MEDIA OUTLETS TO DO A FEATURE ON ME/CFS

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All responsible reporting on ‘long COVID’ should include history on ME/CFS and related post-viral illness.

8yrs with ME. Housebound, mostly bedbound. Business & employees gone. Income gone. Most friends gone. Chance of having children gone. Support and understanding from the government, medical system, society...gone.

I have always been an achiever. Now, I lay in bed most days exhausted and in pain. I feel forgotten. I’ve had this illness for decades.

It’s time. Get on this!

I've had ME for 28 years & need a treatment before I die.

21 years M.E. !!!!

I’m so sick of the media saying there never seen an illness like the covid long-haulers are experiencing. I’ve been sick for 25 yrs after a virus but nobody’s cared about me.

please help our voices be heard

31 years of devastating disability and continued benign neglect by most medical providers!

There millions suffering and with the "long hauler" having post viral syndrome and metabolic cascades there are likely to be many many more suffering. We have been ignored and/or treated horribly by the medical establishment. This could mean a lot for the futures, and quality of life, of millions of Americans and more world wide.

I know several friends and relatives that have ME/CFS or similar disorders and ALL of them have to fight the medical establishment to keep from being called "lazy" or a "hoax". Our medical system is by far the worst in the developed world because if someone can't make billions of dollars selling a drug to "fix" something, it must not be worth looking at! We need to overhaul our entire Health system from the grassroots!!

Signed in honor of my cousin-in-law, Jessie!

Thanks for trying. Good luck.

Have had an extremely limited life now for over 30 years, initially told by DWP “dr” there is no such illness. Part of difficulty surviving with it is lack of any support- emotional, physical, financial. Feels like a forgotten people, invisible, unimportant & dispensable. Existing but not living

The similarities between Post Acute Covid-19 and ME/CFS are startling, as are the terrible impacts these diseases have on patients and their families. And yet, Post Acute Covid-19 is getting funding for research, media attention and some level of useful action, while ME/CFE continues to be an 'invisable' illness. It is high time some informed media attention was directed towards ME/CFS, particularly of the severely affected pateients. I think many would be shocked at the terrible neglect and sometimes actual abuse suffered by these unfortunate people. COme on media world.....Step up!!!

This story needs to be told. It is estimated that anywhere from 10% to 30% of people who contract Covid-19 will develop ME/CFS. People who had other coronaviruses in the past (like SARS and MERS) continued to have lingering symptoms (like the Covid-19 long haulers are having) and then developed ME/CFS. This has also happened with other viruses. It is important for the public (especially doctors and patients with Covid-19) to be aware of this possibility.

I second the writer"s comments! This is a very lonely disease as well and i would love the medical community to put effort into this as well as help family member's understand! Pls do a piece on this to reach out to so many of us suffering these awful symptoms every day who feel so alone please!!

Be a leader in investigative journalism starting with giving people with M.E. a voice.

ME/CFS has a "disease burden" in same ballpark as HIV/AIDS and breast cancer, meaning its impact on US society is similar to those two diseases.