
Patients with autoimmune disease deserve adequate healthcare


No one should have to die suffering without adequate and meaningful
medical care, but that’s exactly what is happening everyday in
every town in this greatest country in the world that is supposed to
have the best healthcare. The only reason every single cystic
fibrosis patient doesn’t have to die in such a manner is because
legislation was passed in every state over the course of fifty-two
years ensuring that doesn’t happen. Patients with Crohns and lupus
deserve the same courtesy. Children and young adults are dying from
complications of these diseases never meeting the criteria for
diagnosis because the medical industry refuses to change their
protocol that is killing us combined with a culture of minimization
and indifference. Patients suffer while doctors do nothing as
irreparable damage is done. We need genetic testing, and we need the
healthcare system to be forced to accept genetic diagnosis. We
deserve access to cystic fibrosis centers and preventative care.
Expensive drugs are not nearly as costly as a lifetime of office
visits, tests, procedures and surgeries. They are literally waiting
for inevitable damage to occur so they can treat it instead of
preventing it. Even patients who managed to get a diagnostic label
are choosing suicide over the treatment they are offered. People are
dying, and no one cares. That needs to change because we deserve
better treatment both literally and figuratively.
If you or someone you know have a personal story you'd wish to share with this petition when it is delivered to members of Congress and Governors of State, please send it to GeneticallyDefective@protonmail.com.
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