The Declaration has been formally adopted and the shift toward patient-centered care is finally starting. I am drained from this fight but the outcome proves that our push for respect and access was worth the toll. We will stay vigilant to ensure these principles move from paper into actual practice …
July 25, 2013
Final supporters
The Declaration on Patient-Centred Healthcare provides a focus for aligning healthcare systems around the world with patients' needs. The International Alliance of Patients' Organizations (IAPO) seeks the support of individuals and organizations to endorse the Declaration. You can sign-up on behalf of your organization, or as an individual. The more signatures we collect, the more we can demonstrate the weight of support for the Declaration.
IAPOrecognises that health systems are under pressure and cannot cope if they continue to focus on diseases rather than patients; they require the involvement of individual patients who adhere to their treatments, make behavioural changes and self-manage.
Patient-centred healthcare is the most effective way to improve health outcomes for patients. The essence of patient-centred healthcare is that the healthcare system is designed and delivered to address the healthcare needs and preferences of patients so that healthcare is appropriate and cost-effective. Patients’, families’ and carers’ priorities are different in every country and in every disease area, however, from this diversity we have some common priorities. To achieve patient-centred healthcare IAPO believes that healthcare must be based on the following Five Principles:
1. Respect - Patients and carers have a fundamental right to patient-centred healthcare that respects their unique needs, preferences and values, as well as their autonomy and independence.
2. Choice and empowerment - Patients have a right and responsibility to participate, to their level of ability and preference, as a partner in making healthcare decisions that affect their lives. This requires a responsive health service which provides suitable choices in treatment and management options that fit in with patients’ needs, and encouragement and support for patients and carers that direct and manage care to achieve the best possible quality of life. Patients’ organizations must be empowered to play meaningful leadership roles in supporting patients and their families to exercise their right to make informed healthcare choices.
3. Patient involvement in health policy - Patients and patients’ organizations deserve to share the responsibility of healthcare policy-making through meaningful and supported engagement in all levels and at all points of decision-making, to ensure that they are designed with the patient at the centre. This should not be restricted to healthcare policy but include, for example, social policy that will ultimately impact on patients’ lives. See IAPO’s Policy Statement at:www.patientsorganizations.org/involvement.
4. Access and support - Patients must have access to the healthcare services warranted by their condition. This includes access to safe, quality and appropriate services, treatments, preventive care and health promotion activities. Provision should be made to ensure that all patients can access necessary services, regardless of their condition or socio-economic status. For patients to achieve the best possible quality of life, healthcare must support patients’ emotional requirements, and consider non-health factors such as education, employment and family issues which impact on their approach to healthcare choices and management.
5. Information - Accurate, relevant and comprehensive information is essential to enable patients and carers to make informed decisions about healthcare treatment and living with their condition. Information must be presented in an appropriate format according to health literacy principles considering the individual’s condition, language, age, understanding, abilities and culture. See IAPO’s Policy Statement atwww.patientsorganizations.org/healthliteracy.
Please sign-up to the Declarationnow and add your voice to the campaign for patient-centred healthcare throughout the world.
Updates
July 10, 2013
The feedback from healthcare providers remains inconsistent and often cold. I am exhausted by the constant uphill battle to get clinics to see people instead of just diagnoses. I am still writing to every board I can find until they have to acknowledge what we are asking for.
July 10, 2013
The momentum we have built acknowledges how much this shift is needed in our broken systems. It is exhausting work to keep pushing for change but seeing this level of support reminds me why we started.
Reached 100 supporters
July 10, 2013
8 Comments
We are constantly working for a patient-centered health care system. Thank you for your ongoing effort. with warm regard Kareem Karassery Gen. Convener, Blood Patients Protection Council(BPPC), Kerala,India.
It is call of the day to support IAPO for the cause and take action for the safety of the patients.
Es importante conocer las necesidades de los pacientes y trabajar con ellas en los programas de calidad y gestion en los diferentes niveles de salud.
We must ensure that safe and quality healthcare is made accessible to all. It is a joint responsibility of all the stakeholders within the service delivery system, which has to be accountable to the patients. Any kind of negligence or unsafe/unethical practice found must be penalised and patients are compensated for the loss or damage caused by the healthcare service provider. In developing countries, healthcare providers are not made accountable to patients due to which safety and quality is compromised at the point of delivery system. I am proud to be part of the IAPO movement to make healthcare patient-centred.
2013 and were only just realising that patient centred health care is the way to go
Thanks
I fully endorse the concept of PCH and will promote it in my country
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The Declaration has been formally adopted and the shift toward patient-centered care is finally starting. I am drained from this fight but the outcome proves that our push for respect and access was worth the toll. We will stay vigilant to ensure these principles move from paper into actual practice …
July 25, 2013
Final supporters
The Declaration on Patient-Centred Healthcare provides a focus for aligning healthcare systems around the world with patients' needs. The International Alliance of Patients' Organizations (IAPO) seeks the support of individuals and organizations to endorse the Declaration. You can sign-up on behalf of your organization, or as an individual. The more signatures we collect, the more we can demonstrate the weight of support for the Declaration.
IAPOrecognises that health systems are under pressure and cannot cope if they continue to focus on diseases rather than patients; they require the involvement of individual patients who adhere to their treatments, make behavioural changes and self-manage.
Patient-centred healthcare is the most effective way to improve health outcomes for patients. The essence of patient-centred healthcare is that the healthcare system is designed and delivered to address the healthcare needs and preferences of patients so that healthcare is appropriate and cost-effective. Patients’, families’ and carers’ priorities are different in every country and in every disease area, however, from this diversity we have some common priorities. To achieve patient-centred healthcare IAPO believes that healthcare must be based on the following Five Principles:
1. Respect - Patients and carers have a fundamental right to patient-centred healthcare that respects their unique needs, preferences and values, as well as their autonomy and independence.
2. Choice and empowerment - Patients have a right and responsibility to participate, to their level of ability and preference, as a partner in making healthcare decisions that affect their lives. This requires a responsive health service which provides suitable choices in treatment and management options that fit in with patients’ needs, and encouragement and support for patients and carers that direct and manage care to achieve the best possible quality of life. Patients’ organizations must be empowered to play meaningful leadership roles in supporting patients and their families to exercise their right to make informed healthcare choices.
3. Patient involvement in health policy - Patients and patients’ organizations deserve to share the responsibility of healthcare policy-making through meaningful and supported engagement in all levels and at all points of decision-making, to ensure that they are designed with the patient at the centre. This should not be restricted to healthcare policy but include, for example, social policy that will ultimately impact on patients’ lives. See IAPO’s Policy Statement at:www.patientsorganizations.org/involvement.
4. Access and support - Patients must have access to the healthcare services warranted by their condition. This includes access to safe, quality and appropriate services, treatments, preventive care and health promotion activities. Provision should be made to ensure that all patients can access necessary services, regardless of their condition or socio-economic status. For patients to achieve the best possible quality of life, healthcare must support patients’ emotional requirements, and consider non-health factors such as education, employment and family issues which impact on their approach to healthcare choices and management.
5. Information - Accurate, relevant and comprehensive information is essential to enable patients and carers to make informed decisions about healthcare treatment and living with their condition. Information must be presented in an appropriate format according to health literacy principles considering the individual’s condition, language, age, understanding, abilities and culture. See IAPO’s Policy Statement atwww.patientsorganizations.org/healthliteracy.
Please sign-up to the Declarationnow and add your voice to the campaign for patient-centred healthcare throughout the world.
Updates
July 10, 2013
The feedback from healthcare providers remains inconsistent and often cold. I am exhausted by the constant uphill battle to get clinics to see people instead of just diagnoses. I am still writing to every board I can find until they have to acknowledge what we are asking for.
July 10, 2013
The momentum we have built acknowledges how much this shift is needed in our broken systems. It is exhausting work to keep pushing for change but seeing this level of support reminds me why we started.
Reached 100 supporters
July 10, 2013
8 Comments
We are constantly working for a patient-centered health care system. Thank you for your ongoing effort. with warm regard Kareem Karassery Gen. Convener, Blood Patients Protection Council(BPPC), Kerala,India.
We are constantly working for a patient-centered health care system. Thank you for your ongoing effort. with warm regard Kareem Karassery Gen. Convener, Blood Patients Protection Council(BPPC), Kerala,India.
It is call of the day to support IAPO for the cause and take action for the safety of the patients.
Es importante conocer las necesidades de los pacientes y trabajar con ellas en los programas de calidad y gestion en los diferentes niveles de salud.
We must ensure that safe and quality healthcare is made accessible to all. It is a joint responsibility of all the stakeholders within the service delivery system, which has to be accountable to the patients. Any kind of negligence or unsafe/unethical practice found must be penalised and patients are compensated for the loss or damage caused by the healthcare service provider. In developing countries, healthcare providers are not made accountable to patients due to which safety and quality is compromised at the point of delivery system. I am proud to be part of the IAPO movement to make healthcare patient-centred.
2013 and were only just realising that patient centred health care is the way to go
Thanks
I fully endorse the concept of PCH and will promote it in my country
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We are constantly working for a patient-centered health care system. Thank you for your ongoing effort. with warm regard Kareem Karassery Gen. Convener, Blood Patients Protection Council(BPPC), Kerala,India.