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Microtia (Born without Ears) Petition to SA Health Minister

Microtia (Born without Ears) Petition to SA Health Minister

28 signatures 22 to reach 50
M
Michelle S. signed
M
Mahlodi M. signed
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Sydney M. signed
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Keitumetse M. signed
L
Loyiso N. signed
P
Puleng R. signed
P
Philisiwe R. signed
A
Anthony S. signed
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Isabella signed
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Hlompho M. signed
EM
Started by Ernest Mbanefo 8 years ago

Dear Hon. Minister Aaron Motsoaledi,

CC:

  1. President Cyril Ramaphosa
  2. African Christian Democratic Party (ACDP)
  3. African National Congress (ANC)
  4. Congress of the People (COPE)
  5. Democratic Alliance (DA)
  6. Economic Freedom Fighters (EFF)
  7. Freedom Front Plus (FF)
  8. Inkatha Freedom Party (IFP)
  9. National Freedom Party (NFP)
  10. Pan Africanist Congress (PAC)
  11. United Democratic Movement (UDM)
  12. All other Political Parties, Women's Leagues, Youth Leagues, etc
  13. The Mandela Foundation
  14. All Human Right Groups
  15. All Child Rights Groups
  16. All Medical Associations
  17. All Law Practitioners
  18. All South African
  19. The General Public

A CLARION CALL TO RECOGNIZE MICROTIA (BORN WITHOUT EARS) IN SOUTH AFRICA.

Microtia (Born without Ears) and Atresia (without Ear Canal) patients, patients with other extreme forms of ear defects and their parents seek the attention of the South African Government, through the Department of Health towards their plight,which is to provide adequate information and guide to medical solution and actual solution when this defects are noticed at birth in the South African Child.

The Give an Ear foundation (a South African based Charity, Non-Profit Organization working for the repair of Microtia and Atresia in South African Children.) has over 200 children born with Microtia in its waiting list. Give an Ear Foundation was founded in 2012 by Mrs Viola Ntokazi Nwadike, a South African woman who's son Victor (8 years old) was born with single microtia and atresia. The following excerpts described Viola's experience upon delivery of Victor in 2010;

"Then comes the doctor with a straight-face; “Oh, I think he will need plastic surgery”. My husband and I froze as we tried to comprehend the doctor’s message; at this time the joyful triggers came to halt. He (The Doctor) handed me the baby and I saw for the first time this tiny little piece of skin where there is supposed to be an ear."

"Two days later we were discharged with no counseling, no referral and no information on what to do with my boy’s situation. The lack of information from the doctors at the hospital where I gave birth, the lack of awareness of this congenital birth defect and the lack of government structures put in place to strategically address this issue in children was heartbreaking for me, to say the least."

See Full Text: About Viola Ntokazi Nwadike, Founder, of Give an Ear Foundation

Thanks to the South African Airways (SAA) for sponsored flights, to Fresh Start Surgical Gifts, California, USA and other sponsors/donors, Victor (Viola's son was able to travel twice for his reconstructive surgery. now victor attends school and plays with other kids as a normal child,

Microtia (Born without Ears) Awareness Campaign 2018

Give an Ear Foundation, in partnership with Ear Community (an international Ear defects advocate) have launched an awareness campaign for Microtia in South Africa with a Walk/Picnic event tagged Microtia Walk 2018 (#microtiawalk2018) on the 29th of September 2018, which takes off from Morningside Country Club, through Sandton and back in time for the picnic. For more information, Click HERE

To the General South African Public, we need you and we need the following;

For more information, contact:

VIOLA NTOKAZI NWADIKE

President/Chairperson

Give an Ear Foundation

Cell: 072-266-0206

Email: [email protected]

Updates

July 23, 2018

Watching the inbox fill with stories from parents navigating this journey confirms that we are not fighting this burden alone. The silence from the Ministry hurts but it only fuels the need for us to keep pushing for the medical guidance our children deserve.

July 23, 2018

Seeing this momentum grow brings me back to the first time I held my child and realized how few resources were available to us. It means so much to know that families facing these ear defects now have a growing community behind them.

11 Comments

M
mapulane
8 years ago Featured

to the SA health department may you please address the issue and also inform your Drs about this condition as its growing in in south africa the healthcare practioners have no clue about this condition i was also send home with no information

S
Sandiso Sifumba
8 years ago Featured

Let's support this campaign...it's a very good initiative to bring awareness to the public at large.

E
Ernest Mbanefo · petition starter
8 years ago Featured

All South Africans deserve equall access to helth and basic medical advice, as provided for in the South African Constitution

P
Puleng Ramataboe
8 years ago

I am wholeheartedly in support!

A
Anthony Silinda
8 years ago

Please assist and make south Africa proud.

T
Thembi
8 years ago

South Africa...let's do this!

R
Romanus Maduwuba
8 years ago

Am untreated

X
Xolisile Mgoza
8 years ago

Care is required in our health system.

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