Medullary Sponge Kidney (MSK) Patients Unite - One Voice, Several Goals

I too have MSK and was told I was crazy or pain was in my head. All for research!!!

Very Painful disease ~ and YES, I would Soo love help in avoiding more stones IF AT ALL Possible.

I fully support the research and hope that all who suffer from this find the answers they need.

I too am a msk suffering.

We need answers, understanding, and HELP! Thank you!!

I have this disease, very painful.

For my son who suffers with daily pain, has had to postpone college and has lost employment opportunities, due to the symptoms of MSK. We need answers.

My daughter suffers with this. They must work on a cure.

My daughter suffers with this. They must work on a cure.

My mom has this disease and I have seen the pain and problems she has had because of it. The government needs to get their heads out of the sand and actually DO something about this.

I have seen the damage and pain this disease causes and there is nothing 'benign' about it. It is ridiculous that the government doesn't recognize it as an actual problem.

My mother has this disease and I have seen over the last 25 years what it can do to a person

For my granddaughter!

This is my life daily

The pain is real. The inability to rest is real many of us urinate every hour on hour with inability to hold. We watch what we eat and drink but our sponge kidney become calcified quickly. Also progressive disease. We need help.

I hope more research is done on this issue.

Why are none of the doctors doing more to figure this out and why is it taking so long? Hang in there KDN <3

I suffer with chronic pain from MSK. I pray there will be knew research not only in my lifetime but SOON! We deserve to be helped and understood.

So thankful your doing this. I go through this on a daily basis also and are treated so unfairly about it.

So thankful your doing this. I go through this on a daily basis also and are treated so unfairly about it.