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Continuance of Healthcare after Organ Transplants

Continuance of Healthcare after Organ Transplants

48 signatures 2 to reach 50
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Tanya C. signed
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Started by Jennifer Cooper 7 years ago

I am reaching out in hopes to help transplant recipients. I, and hopefully you also, will agree that medical coverage for transplant related costs should not be cut off 36 months after a life saving organ transplant. Medicare helps pay for the transplant and the medications that prevents rejection, but in most cases, after kidney (organ) transplants the medical coverage gets cut off, unless receiving benefits due to age or other health related disabilities (Medicare).

Going through kidney disease for many years is a fight on its own. Some people have to stop working due to the kidney disease and some people have no choice but to continue to work to cover medications and dialysis. It is extremely helpful to get Medicare benefits once you reach ESRD (end-stage renal disease) which will cover dialysis treatments and most of the cost of the organ transplant and anti-rejection medication. However, after transplant, once Medicare is at the 36 month cut off period, recipients are left with a gap in insurance unless they have been able to find other health insurance coverage..


Summary and Facts:

I am starting this petition to try and get a continuation in Medicare for transplant related costs only. Due to the fact that transplants are a treatment, not a cure (NIH), and not being able to afford the anti-rejection medication ($2500.00 a month) could easily put the recipient on dialysis ($89,000 yearly or over $7000 monthly) this continuing coverage should be considered preventative (kidney.org).

Let's say a kidney recipient is doing great, then reaches the Medicare cut off period, there are more chances of that person not being able to afford doctor's visits, labs and medication will end up going into organ rejection. If the recipient goes into rejection then Medicare will pick back up so that the patient can go back on dialysis, possibly have to have another transplant. If Medicare would continue coverage for transplant related costs like check-ups, labs and anti-rejection medications then this would;

  • lower organ rejection
  • allow the patients to live a more normal live and work to better their health (it is easier to work after transplant than when on dialysis)
  • less need for 2nd transplantation due to less rejections and therefore providing more organs for others on the wait list.
  • less money spent through Medicare on dialysis due to transplant medications being cheaper then dialysis.

Please consider signing and sharing. Thank you for your support in this matter!

References and related links:

Kidney.org (2015), Dialysis, https://www.kidney.org/atoz/content/dialysisinfo

Medicare.gov, Kidney Transplants, https://www.medicare.gov/coverage/kidney-transplan...

National Public Radio (2016), Medicare Pays For A Kidney Transplant, But Not The Drugs To Keep It Viable, https://www.npr.org/sections/health-shots/2016/12/...

The National Institute of Diabetes and Digestive and Kidney Diseases

Health Information Center, Kidney Transplant, https://www.niddk.nih.gov/health-information/kidne...

Updates

July 3, 2019

I keep thinking about the sheer cost of these anti-rejection meds and how impossible it feels to manage that burden alone. The messages arriving in my inbox from people terrified of losing their coverage are a grim reminder of why I started this fight. We have to keep pushing because a transplant should be the start of a new life rather than the beginning of a new financial nightmare.

July 3, 2019

Seeing this kind of traction brings me back to the nights I spent worrying how I would pay for my anti-rejection meds after my own coverage expired. It is clear I am not the only one living in fear of this arbitrary deadline. Your support is proof that we deserve to live without the shadow of medical bankruptcy hanging over our recovery.

8 Comments

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Tanya Cox
7 years ago Featured

I am a Kidney Transplant patient, my biggest fear is not able to afford these meds to avoid rejection. It’s like having to go through it all again, a vicious cycle cause i can’t pay meds, next phase is rejection, the. dialysis and waiting doing the whole medical evaluation to get on list again. Please don’t allow us all this suffering. People have considered suicide because of this cycle.

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Meli McQuaig Belcher
7 years ago Featured

Praying that the Lord will intercede on your behalf for continued medical support.

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Gerald Awana
7 years ago Featured

I’m a kidney/pancreas transplant recipient. Although I don’t need continuing coverage, if I did, it would be great to have this.

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Nicholas Rivera
7 years ago

I totally agree I had my transplant 7 months ago and it’s not fair

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Jerry Smith
7 years ago

I’ll send to all my contacts Jenn

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Jerry smith
7 years ago

Jenn, I’ll send this to my contact list. Let’s get-er-dun!!!

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Gwen Strope
7 years ago

continuing Medicare benefits makes for practical and positive good sense!

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Chelsea Rioux
7 years ago

They made it this far. Help them go all the way.

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