Being on this monstrosity of a journey with my 14 year old son diagnosed Aug 25th 2023 age 13 after suffering for 12 months with several brain tumour symptoms and still no one the wiser to what was happening to my baby.
A 7cm Ependymoma grade 3 rare cancerous tumour on the left side of brain “specialist believe 2 years of growth” possible early stage of puberty began to appear as we have had a world genetic testing WGT and no traces of any family genetics
Updates
Reached 250 supporters
October 18, 2024
October 17, 2024
Reaching this level of visibility reminds me how many families are searching for answers in the same quiet, painful way we were. The momentum we have built together is a testament to the fact that we refuse to let these symptoms remain overlooked. My focus now turns to ensuring this conversation reaches the medical leaders who possess the authority to change our current standard of care.
October 16, 2024
Seeing one hundred people align with this goal brings a profound sense of gravity to the situation. My hope is that these signatures serve as a testament to the urgent need for earlier detection during these formative years.
Reached 100 supporters
October 16, 2024
October 15, 2024
Watching this signature total climb brings me a sense of perspective on how many families understand the fear of these missed diagnoses. We are approaching our first hundred supporters and this threshold will significantly shift how the medical community perceives our request for mandatory screening.
35 Comments
100% agree we should not be fighting to get MRIs should be standard practice so many lives would be saved if caught earl.
A very close friend endured months and months of her son being unwell and eventually he had a mri which showed a tumour. Maybe if this was offered immediately the outcome may of been different
Many young children have different types of brain tumours and we all need to take time to think of others less fortunate then us
I think all 12 year old s should have a M R I scan to stop what's happened to my grandson
Please make this mandatory prevention is better than cure and what the family are going through is horrendous and should not be happening
Cancer Suxs !!! We need a cure ..we have to be the voice for our babies !!! When something is wrong do everything u can to figure it out. And don't stop !! We need a cure !!!!!
Xxx
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Being on this monstrosity of a journey with my 14 year old son diagnosed Aug 25th 2023 age 13 after suffering for 12 months with several brain tumour symptoms and still no one the wiser to what was happening to my baby.
A 7cm Ependymoma grade 3 rare cancerous tumour on the left side of brain “specialist believe 2 years of growth” possible early stage of puberty began to appear as we have had a world genetic testing WGT and no traces of any family genetics
Updates
Reached 250 supporters
October 18, 2024
October 17, 2024
Reaching this level of visibility reminds me how many families are searching for answers in the same quiet, painful way we were. The momentum we have built together is a testament to the fact that we refuse to let these symptoms remain overlooked. My focus now turns to ensuring this conversation reaches the medical leaders who possess the authority to change our current standard of care.
October 16, 2024
Seeing one hundred people align with this goal brings a profound sense of gravity to the situation. My hope is that these signatures serve as a testament to the urgent need for earlier detection during these formative years.
Reached 100 supporters
October 16, 2024
October 15, 2024
Watching this signature total climb brings me a sense of perspective on how many families understand the fear of these missed diagnoses. We are approaching our first hundred supporters and this threshold will significantly shift how the medical community perceives our request for mandatory screening.
35 Comments
All Cancer prevention should be considered and available on NHS.Especially early detection of Brain Cancer..
100% agree we should not be fighting to get MRIs should be standard practice so many lives would be saved if caught earl.
A very close friend endured months and months of her son being unwell and eventually he had a mri which showed a tumour. Maybe if this was offered immediately the outcome may of been different
Many young children have different types of brain tumours and we all need to take time to think of others less fortunate then us
I think all 12 year old s should have a M R I scan to stop what's happened to my grandson
Please make this mandatory prevention is better than cure and what the family are going through is horrendous and should not be happening
Cancer Suxs !!! We need a cure ..we have to be the voice for our babies !!! When something is wrong do everything u can to figure it out. And don't stop !! We need a cure !!!!!
Xxx
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All Cancer prevention should be considered and available on NHS.Especially early detection of Brain Cancer..