Make the drug Ampligen available for M.E. patients in Ireland
513 Comments
M
michelle
10 years ago
I have gad M.E since 2002
N
Noreen ram
10 years ago
Help those that need this drug
P
Patricia mcdonald
10 years ago
My son has severe m.e.
J
Janet herlihy
10 years ago
Give us a chance to start living again
G
Grace Woodham
10 years ago
all ME patients should have access to ampligen. stop the needless suffering!
M
Markus Jansson
10 years ago
:) When we get this to work in Ireland, it can be used in all EU-countries too :)
G
Gabiewis
10 years ago
Ampligen has more than proved itself. Give us the chance to live.
A
Ashling O Leary
10 years ago
Give us a chance at a life
N
Noreen Murphy
· petition starter
10 years ago
Thank you for that excellent comment.
A
Anonymous
10 years ago
On a cost benefit analysis, rintatolimod (ampligen) is the best value for money to the HSE and best opportunity of increased karnovsky score for a clinically identifiable group of patients with myalgic encephalomyelitis also known as chronic fatigue syndrome (ME/CFS). Cheap blood tests for immune markers (eg investigation of low natural killer cell number and function in addition to immunophenotyping) will quickly identify patients most suitability for this drug with known immunomodulating and antiviral activity. While there are a number of subgroups under the umbrella of myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS), all of whom requiring different kinds of medical treatment, it is the predominantly viral-immunodeficient group who are most in need of rintatolimod and who will be most likely to respond in the desired manner to this treatment.
When weighed against the drain on the taxpayer of caring for those most severely affected, rintatolimod is in fact the more economical option. It stands in opposition to long term, exponentially increasing need for symptomatic relief added to the cost of hospital visits, home care assistance, disability payments and significant loss of contribution to the public purse as a result of their having fallen out of the workforce.
The department of health here in Ireland does a great and sometimes thankless job in caring for a broad range of needs in our society and cannot be expected to squander money on faint hopes, unproven treatments or potential harmful medicines and so this is where rintatolimod is the safe and proven drug for the aforementioned subgroup. In its use over a quarter century in the United States, it has shown no evidence of toxicity and one of the clinics involved in the administration of this treatment throughout that time, Sierra Internal Medicine Assocs, has reported a seventy percent success rate in this particular viral/immunocompromised subgroup. They have documented significant rise in
A
Angela Bennett
10 years ago
Please make the life of sufferers better.
A
Anonymous
10 years ago
If this drug can be accepted in Ireland then there may be some hope for the rest of us.
S
Sue Carroll
10 years ago
All the best. I don't think it is available in NZ either!! I am going to find out!
R
Ron Jacob
10 years ago
Please make Ampligen available to patients with M.E. You will be putting your country on the right side of history and will provide patients one of the few known drugs that may give them relief from an intractable disease.
C
Carol Carlson
10 years ago
This is a global community. I am glad to sign this petition on Noreen's behalf.
N
Noreen Murphy
· petition starter
10 years ago
Absolutely! Thank you for such a great comment.
A
Anonymous
10 years ago
There are all the reasons to make Ampligen available and none to not.
You cannot imagine the loss of functionality in life unless you have ME or observe a patient over a long period of time. Please don't make light of the serious impact this illness has on patients lives. Afford your patients an opportunity to get their live back or better w Ampligen.
A
Anonymous
10 years ago
I know first hand how ME can affect people. To leave folk to suffer in this way is criminal.
If an animal was suffering in such a manner and you withheld a known treatment you could probably be prosecuted for cruelty but to leave a person to suffer such a range of debilitating symptoms is seemingly ok!
ME not only affect the patient it impacts on the family and society in general!
P
paddyroddy
10 years ago
We in Ireland are treated like we were in a 3rd World Country .
A
Anabelle
10 years ago
Disgraceful that a drug is not given to such ill people. just get the drug and give it to them.
I have gad M.E since 2002
Help those that need this drug
My son has severe m.e.
Give us a chance to start living again
all ME patients should have access to ampligen. stop the needless suffering!
:) When we get this to work in Ireland, it can be used in all EU-countries too :)
Ampligen has more than proved itself. Give us the chance to live.
Give us a chance at a life
Thank you for that excellent comment.
On a cost benefit analysis, rintatolimod (ampligen) is the best value for money to the HSE and best opportunity of increased karnovsky score for a clinically identifiable group of patients with myalgic encephalomyelitis also known as chronic fatigue syndrome (ME/CFS). Cheap blood tests for immune markers (eg investigation of low natural killer cell number and function in addition to immunophenotyping) will quickly identify patients most suitability for this drug with known immunomodulating and antiviral activity. While there are a number of subgroups under the umbrella of myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS), all of whom requiring different kinds of medical treatment, it is the predominantly viral-immunodeficient group who are most in need of rintatolimod and who will be most likely to respond in the desired manner to this treatment. When weighed against the drain on the taxpayer of caring for those most severely affected, rintatolimod is in fact the more economical option. It stands in opposition to long term, exponentially increasing need for symptomatic relief added to the cost of hospital visits, home care assistance, disability payments and significant loss of contribution to the public purse as a result of their having fallen out of the workforce. The department of health here in Ireland does a great and sometimes thankless job in caring for a broad range of needs in our society and cannot be expected to squander money on faint hopes, unproven treatments or potential harmful medicines and so this is where rintatolimod is the safe and proven drug for the aforementioned subgroup. In its use over a quarter century in the United States, it has shown no evidence of toxicity and one of the clinics involved in the administration of this treatment throughout that time, Sierra Internal Medicine Assocs, has reported a seventy percent success rate in this particular viral/immunocompromised subgroup. They have documented significant rise in
Please make the life of sufferers better.
If this drug can be accepted in Ireland then there may be some hope for the rest of us.
All the best. I don't think it is available in NZ either!! I am going to find out!
Please make Ampligen available to patients with M.E. You will be putting your country on the right side of history and will provide patients one of the few known drugs that may give them relief from an intractable disease.
This is a global community. I am glad to sign this petition on Noreen's behalf.
Absolutely! Thank you for such a great comment.
There are all the reasons to make Ampligen available and none to not. You cannot imagine the loss of functionality in life unless you have ME or observe a patient over a long period of time. Please don't make light of the serious impact this illness has on patients lives. Afford your patients an opportunity to get their live back or better w Ampligen.
I know first hand how ME can affect people. To leave folk to suffer in this way is criminal. If an animal was suffering in such a manner and you withheld a known treatment you could probably be prosecuted for cruelty but to leave a person to suffer such a range of debilitating symptoms is seemingly ok! ME not only affect the patient it impacts on the family and society in general!
We in Ireland are treated like we were in a 3rd World Country .
Disgraceful that a drug is not given to such ill people. just get the drug and give it to them.