More people need to know about LDN, stop wasting lives and money and give the people the treatment they deserve.
L
Lesley Richards
11 years ago
I sincerely hope that we can have the opportunity to try this drug.
L
Lynnette Brown
11 years ago
Featured
Investment in the improvement of peoples health & quality of life etc should be the paramount consideration in the licencing of 'new' drugs NOT the profit of the pharmaceutical companies! LDN should be trialled, licenced & made available to all.
L
Lorraine ellis
11 years ago
Please put this through to parliament so we don't have to suffer
E
Emanuelina Coviello
11 years ago
I would like to try LDN myself but GP wont prescribe as its not licenced. I have ME/CFS, IBS, Fibromyalgia
J
Jacqueline Paterson
11 years ago
My mother died a painful and depressing death due to all the drugs she took for her immune disorders. She asked the doctor to try LDN but was refused. I believe she would be alive today if her wish was granted. I regret not finding a doctor who would have given her this drug.
I also have immune disorders and this has made me take my health into my own hands. I don't want myself or others to others to have to suffer what she did.
Please educate yourself and doctors about this therapy. You might just need it yourself one day.
J
Johnny Andre Roland
11 years ago
LDN has changed my life completely! My 12 year long depression, disappeared after only 8 days of 1.125mg per night.
S
Susan Palmer
11 years ago
One size does not fit all of us. Better research will prove that
C
Constance O'shea
11 years ago
It's time this drug is acknoliged by the medical profession
Please do trials on this drug if its cheap saves money and has little side effects it has to be beneficial to the awful toxic drugs I take but have little effect.
A
Anonymous
12 years ago
I live in England and I have been getting LDN from Dickson's Chemist in Glasgow for the past 8 months. This medication has changed my life! My GP prescribes it on his own licence as the NHS won't sanction it for prescription but ironically individual Trusts will pay for it as a discrectionary act. However, Dickson's Chemist have just been moved into Lanarkshire NHS Trust and this Trust won't sanction LDN for NHS use outside of it's own Trust, so people from all over the UK who have been getting LDN in liquid form on the NHS from Dickson's can no longer get it unless they pay for it themselves. The alternative is for LDN users to get a prescription for LDn capsule but they cost £39.99 a month. That's more that double the cost of the liquid form! I have MS and in my pre-LDN days I was stuck in a life of sickness, disability, benefit dependency and a huge sense of emptiness and worthlessness. LDN changed my life. It gave me vastly improved physical and mental health and I was planning to get off benefits and back into work BECAUSE of the vast improvements that I have experienced due to my taking LDN. But now that my liquid LDN that costs the NHS £18 per month has been stopped by Lanarkshire NHS Trust. Why? Why won't they allow Dickson's Chemist to dispense it on the NHS outside of their Trust? It's not as though they pay for it themselves; the cost of dispensing the LDN goes back to my own NHS Trust, it doesn't cost Lanarkshire NHS Trust a penny! so what's the reason that Lanarkshire NHS Trust have stopped Dickson's from providing an invaluable, cost effective and medically effective medication for UK users? Who made this decision and why? If I want to get LDN, I now have to get capsules that will cost the NHS £39.99 a month. It's my NHS Trust that pays my prescription costs and they will not sanction my LDN now because the cost is too high, so I can't get LDN anymore unless I pay for it privately and I'm already financially strained: so no more LDN
G
GRAYHAM PARKER
12 years ago
I have been on this drug a few weeks,and my GP has gone off sick,and the replacement GP won't issue me a prescription.
How wrong,and what a waste of good government money
K
Kirsty Lowe
12 years ago
We need something to help people with autoimmune diseases and Some cancers..
A
Ann McNair
12 years ago
I have been taking LDN for some months now and all my symptoms of Sjogren's Syndrome have improved. I still have the disease but my quality of life is so much better than before and I feel much more like a "normal" person instead of an invalid.
Y
Yvonne Herrington
12 years ago
Please don't delay this important trial. Many of have a lot to lose, and time is running out.
M
Maria Delaney
12 years ago
I started taking LDN to help with my underactive thyroid.
H
Henrik Andersen
12 years ago
MS Diagnosed with all the symtoms, hope this initiative will succeed.
br. Henrik
B
barbara leverington
12 years ago
I have Rheumatoid arthritis, I want an alternative to the ultra toxic drugs being offered by NHS.
Spend more money on our people
More people need to know about LDN, stop wasting lives and money and give the people the treatment they deserve.
I sincerely hope that we can have the opportunity to try this drug.
Investment in the improvement of peoples health & quality of life etc should be the paramount consideration in the licencing of 'new' drugs NOT the profit of the pharmaceutical companies! LDN should be trialled, licenced & made available to all.
Please put this through to parliament so we don't have to suffer
I would like to try LDN myself but GP wont prescribe as its not licenced. I have ME/CFS, IBS, Fibromyalgia
My mother died a painful and depressing death due to all the drugs she took for her immune disorders. She asked the doctor to try LDN but was refused. I believe she would be alive today if her wish was granted. I regret not finding a doctor who would have given her this drug. I also have immune disorders and this has made me take my health into my own hands. I don't want myself or others to others to have to suffer what she did. Please educate yourself and doctors about this therapy. You might just need it yourself one day.
LDN has changed my life completely! My 12 year long depression, disappeared after only 8 days of 1.125mg per night.
One size does not fit all of us. Better research will prove that
It's time this drug is acknoliged by the medical profession
[email protected]
Please do trials on this drug if its cheap saves money and has little side effects it has to be beneficial to the awful toxic drugs I take but have little effect.
I live in England and I have been getting LDN from Dickson's Chemist in Glasgow for the past 8 months. This medication has changed my life! My GP prescribes it on his own licence as the NHS won't sanction it for prescription but ironically individual Trusts will pay for it as a discrectionary act. However, Dickson's Chemist have just been moved into Lanarkshire NHS Trust and this Trust won't sanction LDN for NHS use outside of it's own Trust, so people from all over the UK who have been getting LDN in liquid form on the NHS from Dickson's can no longer get it unless they pay for it themselves. The alternative is for LDN users to get a prescription for LDn capsule but they cost £39.99 a month. That's more that double the cost of the liquid form! I have MS and in my pre-LDN days I was stuck in a life of sickness, disability, benefit dependency and a huge sense of emptiness and worthlessness. LDN changed my life. It gave me vastly improved physical and mental health and I was planning to get off benefits and back into work BECAUSE of the vast improvements that I have experienced due to my taking LDN. But now that my liquid LDN that costs the NHS £18 per month has been stopped by Lanarkshire NHS Trust. Why? Why won't they allow Dickson's Chemist to dispense it on the NHS outside of their Trust? It's not as though they pay for it themselves; the cost of dispensing the LDN goes back to my own NHS Trust, it doesn't cost Lanarkshire NHS Trust a penny! so what's the reason that Lanarkshire NHS Trust have stopped Dickson's from providing an invaluable, cost effective and medically effective medication for UK users? Who made this decision and why? If I want to get LDN, I now have to get capsules that will cost the NHS £39.99 a month. It's my NHS Trust that pays my prescription costs and they will not sanction my LDN now because the cost is too high, so I can't get LDN anymore unless I pay for it privately and I'm already financially strained: so no more LDN
I have been on this drug a few weeks,and my GP has gone off sick,and the replacement GP won't issue me a prescription. How wrong,and what a waste of good government money
We need something to help people with autoimmune diseases and Some cancers..
I have been taking LDN for some months now and all my symptoms of Sjogren's Syndrome have improved. I still have the disease but my quality of life is so much better than before and I feel much more like a "normal" person instead of an invalid.
Please don't delay this important trial. Many of have a lot to lose, and time is running out.
I started taking LDN to help with my underactive thyroid.
MS Diagnosed with all the symtoms, hope this initiative will succeed. br. Henrik
I have Rheumatoid arthritis, I want an alternative to the ultra toxic drugs being offered by NHS.