Tony will be staying in his home with the full support he needs to stay safe. I am completely overwhelmed because his dignity is finally being respected. Your support stopped a tragedy and kept his life intact.
October 20, 2018
Final supporters
Tony has been unfairly assessed by the NDIS. He is a 63 year old man with Friedreichs Ataxia. He is awaiting a review but currently doesn't have enough hours to live safely at home.He has lived there for 35 years in a vibrant community.He is fighting for 24 hour care as he is fully dependent.He needs carers to assist with everything especially communicating and interacting with the world.Yet they ask him"Can he use a phone" I want dignity for disabled people and i want the NDIS to understand and communicate better with the people they represent..all the people.Tony cant put blankets on if cold at night and will freeze.If its too hot he will swelter in the heat.If he spasms he could pull out his catheter which is very dangerous.We have to go to a review because of the lack of understanding about his condition. He has memory issues but he is very much present with am amazing smile and a wonderful sense of humour.Too many people are being let down by ignorance and its time for recognition of that and change.Under the new system Tony has less hours than he had before and no night carer.He is meant to be left alone all night. Unable to move if he vomits he could die.We are fighting for him and his team of dedicated carers are fighting hard and donating hours to keep him safe.He has a full life and he deserves the right to stay in his own home and for that to be his choice.We in Australia are a signatory of the United Nations articles of human rights for disabled persons.That includes all disabled persons.Tony needs the care he needs to live the life he chooses. The system needs to change for everyone.Without his carers he will receive only the care for the most basic needs no social support no quality of life.Just treated like a house plant fed and watered and forgotten.Stand up for him and for all people who need a voice on this issue.Tony was a graduate from Prince Alfred college, he was an equestrian a proficient sailor. He wanted to be an archeologist.He was accepted in accounting at a university but couldn't go because "it was upstairs"He is so much more as all disabled people are more than the definition of their condition.But their condition defines their life and thats not always the reality.Not gender not race not sexuality and not by disability either but rather by what we all can do which is what really counts.He has built a life in a central Adelaide community and thats where he wishes to stay, and so he should.We want a voice for him and he to live his life his way. We want a voice so others can also see change.
Updates
Reached 500 supporters
October 9, 2018
October 2, 2018
Seeing this kind of energy behind Tony reminds me that his life has real value to people who have never even met him. We have built something powerful that the agency cannot just ignore anymore. This momentum gives me so much hope that we can keep him safe in the home he loves.
Reached 100 supporters
September 20, 2018
September 18, 2018
Tony is counting on us to get past this milestone before his hearing. Please take a moment to post this link on your personal feed so we can show the planners that the community is watching their next move.
271 Comments
This man needs 24 hour care. If Stephen Hawking needed it (Tony has the same issue), then why not Tony? Is it because Tony isn't a world famous physicist? What utter rubbish. This man needs 24 hour care
It ‘s cheaper to keep a person at home & provide care then in a clinical setting. This gentleman will do much better if he can stay in the community he has lived in his entire life. The Gov provides money to ove
Get qualified people assessing medical cases and conditions. Public Servant Clerks are just following a script and have no clue about the physical aspects of medical conditions and they shouldn't be expected to.
I suffer from friedreichs ataxia myself I’m 46 and if this is what I have to look forward to it’s shocking, shame on the government. It would be a different story if they tried to live a day in our lives.
My 69 year old wife has FA & gets no NDIS (too old) she has to contend with only 10 Hours per week under the maximum aged care at home plan. 10 hours equates to only 5 hours help as hoist transfer clients are mandated to have 2 PCs. She is also ineligible for the COS program.
i support him
The whole NDIS situation needs to be reviewed and brought back up to date with how disabilities affect everyone differently and especially invisible disabilities. NDIS have taken us all back to the Dark Ages and are labelling us and lumping us all in the same pigeon hole. It's a Disgrace! WAKE UP AUSTRALIA! Do your bit by signing this petition.
Share this petition
Share this petition to help it reach more people.
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Tony will be staying in his home with the full support he needs to stay safe. I am completely overwhelmed because his dignity is finally being respected. Your support stopped a tragedy and kept his life intact.
October 20, 2018
Final supporters
Tony has been unfairly assessed by the NDIS. He is a 63 year old man with Friedreichs Ataxia. He is awaiting a review but currently doesn't have enough hours to live safely at home.He has lived there for 35 years in a vibrant community.He is fighting for 24 hour care as he is fully dependent.He needs carers to assist with everything especially communicating and interacting with the world.Yet they ask him"Can he use a phone" I want dignity for disabled people and i want the NDIS to understand and communicate better with the people they represent..all the people.Tony cant put blankets on if cold at night and will freeze.If its too hot he will swelter in the heat.If he spasms he could pull out his catheter which is very dangerous.We have to go to a review because of the lack of understanding about his condition. He has memory issues but he is very much present with am amazing smile and a wonderful sense of humour.Too many people are being let down by ignorance and its time for recognition of that and change.Under the new system Tony has less hours than he had before and no night carer.He is meant to be left alone all night. Unable to move if he vomits he could die.We are fighting for him and his team of dedicated carers are fighting hard and donating hours to keep him safe.He has a full life and he deserves the right to stay in his own home and for that to be his choice.We in Australia are a signatory of the United Nations articles of human rights for disabled persons.That includes all disabled persons.Tony needs the care he needs to live the life he chooses. The system needs to change for everyone.Without his carers he will receive only the care for the most basic needs no social support no quality of life.Just treated like a house plant fed and watered and forgotten.Stand up for him and for all people who need a voice on this issue.Tony was a graduate from Prince Alfred college, he was an equestrian a proficient sailor. He wanted to be an archeologist.He was accepted in accounting at a university but couldn't go because "it was upstairs"He is so much more as all disabled people are more than the definition of their condition.But their condition defines their life and thats not always the reality.Not gender not race not sexuality and not by disability either but rather by what we all can do which is what really counts.He has built a life in a central Adelaide community and thats where he wishes to stay, and so he should.We want a voice for him and he to live his life his way. We want a voice so others can also see change.
Updates
Reached 500 supporters
October 9, 2018
October 2, 2018
Seeing this kind of energy behind Tony reminds me that his life has real value to people who have never even met him. We have built something powerful that the agency cannot just ignore anymore. This momentum gives me so much hope that we can keep him safe in the home he loves.
Reached 100 supporters
September 20, 2018
September 18, 2018
Tony is counting on us to get past this milestone before his hearing. Please take a moment to post this link on your personal feed so we can show the planners that the community is watching their next move.
271 Comments
Our son is on the NDIS. Every time we have a review the attitude is that he should be getting better, as if NDIS is a cure. He’s autustic. Not as dire as Tony’s situation but he, too will not be able to live safely with reduced funds. This government preys on the voiceless. We all need to speak out.
This man needs 24 hour care. If Stephen Hawking needed it (Tony has the same issue), then why not Tony? Is it because Tony isn't a world famous physicist? What utter rubbish. This man needs 24 hour care
It ‘s cheaper to keep a person at home & provide care then in a clinical setting. This gentleman will do much better if he can stay in the community he has lived in his entire life. The Gov provides money to ove
Get qualified people assessing medical cases and conditions. Public Servant Clerks are just following a script and have no clue about the physical aspects of medical conditions and they shouldn't be expected to.
I suffer from friedreichs ataxia myself I’m 46 and if this is what I have to look forward to it’s shocking, shame on the government. It would be a different story if they tried to live a day in our lives.
My 69 year old wife has FA & gets no NDIS (too old) she has to contend with only 10 Hours per week under the maximum aged care at home plan. 10 hours equates to only 5 hours help as hoist transfer clients are mandated to have 2 PCs. She is also ineligible for the COS program.
i support him
The whole NDIS situation needs to be reviewed and brought back up to date with how disabilities affect everyone differently and especially invisible disabilities. NDIS have taken us all back to the Dark Ages and are labelling us and lumping us all in the same pigeon hole. It's a Disgrace! WAKE UP AUSTRALIA! Do your bit by signing this petition.
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Our son is on the NDIS. Every time we have a review the attitude is that he should be getting better, as if NDIS is a cure. He’s autustic. Not as dire as Tony’s situation but he, too will not be able to live safely with reduced funds. This government preys on the voiceless. We all need to speak out.