They actually said yes and the new housing offer came through this morning while I was still processing the news. I am honestly just floored that Jamie finally gets the room he needs for his equipment and that his sister gets her own space back too. It feels like a …
Jamie is a six year old boy living with cerebal palsy and other conditions. He is one of a family of five living in a three bedroom home, one of these rooms in a box room.
Due to the amount of equipment and space Jamie requires, this means his teenage sister only has a make-shift bedroom in their living room.
With Jamie's age comes changing needs and more space is required for him and his equipment. Their home is no longer suitable for his needs. While he is currently in a medium size room, it in predominately taken up by his hospital bed and large wheelchair lift. His wheelchair remains in the lift while he is upstairs as there is not the space to bring it out.
Between the lack of space for the wheelchair and the lack of space for a hoist in the bathroom. Jamie is not able to have baths nor is he able to use the toilet. Due to this, Jamie is required to use a commode in his bedroom rather than the toilet in the bathroom.
This also means that Jamie's mother, Kate, is required to carry Jamie around the upstairs of the home when it is time for him to shower. Understandably this is going to become a greater issue as time goes on and puts Kate's own health and safety at risk.
Having a larger home means that it can be adapted to suit Jamie's needs not only in the present, but for as he grows older. It would also mean he could be more independent as he would be able to use his electric wheelchair rather than relying on others to move him.
It would also mean that Zoe, Jamie's sister, will have the bedroom of her own that she has a right to.
For the second time, this family have been offered a new house but they now risk losing it again due to the housing association and council being concerned about the costs required to adapt the home for Jamie's needs.
We have created this petition as we want to draw their attention to the fact that it is not acceptable for a disabled child to be living like this, for a teenager not to have her own room and that not only do this family deserve a new home but they require one with the correct adaptations done for Jamie's long-term needs, not the cheapest solution possible. The housing association will decide on THURSDAY THE 17TH OF OCT as to whether Jamie and his family will be able to have this current house they've been offered. Let's show them what we think!!
I was looking at the comments earlier and it just hit me how many people understand why this space issue is so urgent for Jamie and his family. I have been spending my time chasing down leads for accessible housing because the current situation is honestly just not sustainable for his mom or his sister Zoe. We keep pushing forward even when it feels like we are shouting into the void because someone eventually has to listen to what is actually happening in that house.
October 16, 2013
Seeing this kind of movement is honestly wild because for a while it felt like maybe I was just yelling into the void but now it seems like people actually see what Jamie needs. I spent all morning reading your comments and it honestly has me a bit choked up knowing so many people get why this house is just not working anymore.
Reached 100 supporters
October 16, 2013
6 Comments
S
Sarah Nichols
12 years ago
Featured
This poor family has been struggling for way too long. Give them a home that actually fits his needs. It is just common sense.
E
Eleanor Alvarez
12 years ago
Featured
Thinking of you Kate. Nobody should have to lift their child up the stairs every single day because the house is too small.
D
David Townsend
12 years ago
Featured
Give this family a break already. Jamie needs space to grow.
J
James Vogel
12 years ago
Featured
Just get them a bigger place. It is not rocket science to see they are out of room and need support.
C
Chloe Snyder
12 years ago
Featured
So heartbreaking to read about Zoe having to sleep in the living room too. This whole situation is just wrong for everyone involved.
M
Mark Foster
12 years ago
Featured
Ridiculous that they have to live like this. A kid with these needs deserves a home where he can move around properly.
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They actually said yes and the new housing offer came through this morning while I was still processing the news. I am honestly just floored that Jamie finally gets the room he needs for his equipment and that his sister gets her own space back too. It feels like a …
Jamie is a six year old boy living with cerebal palsy and other conditions. He is one of a family of five living in a three bedroom home, one of these rooms in a box room.
Due to the amount of equipment and space Jamie requires, this means his teenage sister only has a make-shift bedroom in their living room.
With Jamie's age comes changing needs and more space is required for him and his equipment. Their home is no longer suitable for his needs. While he is currently in a medium size room, it in predominately taken up by his hospital bed and large wheelchair lift. His wheelchair remains in the lift while he is upstairs as there is not the space to bring it out.
Between the lack of space for the wheelchair and the lack of space for a hoist in the bathroom. Jamie is not able to have baths nor is he able to use the toilet. Due to this, Jamie is required to use a commode in his bedroom rather than the toilet in the bathroom.
This also means that Jamie's mother, Kate, is required to carry Jamie around the upstairs of the home when it is time for him to shower. Understandably this is going to become a greater issue as time goes on and puts Kate's own health and safety at risk.
Having a larger home means that it can be adapted to suit Jamie's needs not only in the present, but for as he grows older. It would also mean he could be more independent as he would be able to use his electric wheelchair rather than relying on others to move him.
It would also mean that Zoe, Jamie's sister, will have the bedroom of her own that she has a right to.
For the second time, this family have been offered a new house but they now risk losing it again due to the housing association and council being concerned about the costs required to adapt the home for Jamie's needs.
We have created this petition as we want to draw their attention to the fact that it is not acceptable for a disabled child to be living like this, for a teenager not to have her own room and that not only do this family deserve a new home but they require one with the correct adaptations done for Jamie's long-term needs, not the cheapest solution possible. The housing association will decide on THURSDAY THE 17TH OF OCT as to whether Jamie and his family will be able to have this current house they've been offered. Let's show them what we think!!
I was looking at the comments earlier and it just hit me how many people understand why this space issue is so urgent for Jamie and his family. I have been spending my time chasing down leads for accessible housing because the current situation is honestly just not sustainable for his mom or his sister Zoe. We keep pushing forward even when it feels like we are shouting into the void because someone eventually has to listen to what is actually happening in that house.
October 16, 2013
Seeing this kind of movement is honestly wild because for a while it felt like maybe I was just yelling into the void but now it seems like people actually see what Jamie needs. I spent all morning reading your comments and it honestly has me a bit choked up knowing so many people get why this house is just not working anymore.
Reached 100 supporters
October 16, 2013
6 Comments
S
Sarah Nichols
12 years ago
Featured
This poor family has been struggling for way too long. Give them a home that actually fits his needs. It is just common sense.
E
Eleanor Alvarez
12 years ago
Featured
Thinking of you Kate. Nobody should have to lift their child up the stairs every single day because the house is too small.
D
David Townsend
12 years ago
Featured
Give this family a break already. Jamie needs space to grow.
J
James Vogel
12 years ago
Featured
Just get them a bigger place. It is not rocket science to see they are out of room and need support.
C
Chloe Snyder
12 years ago
Featured
So heartbreaking to read about Zoe having to sleep in the living room too. This whole situation is just wrong for everyone involved.
M
Mark Foster
12 years ago
Featured
Ridiculous that they have to live like this. A kid with these needs deserves a home where he can move around properly.
This poor family has been struggling for way too long. Give them a home that actually fits his needs. It is just common sense.