Research is needed as we are sick of doctors telling us there are no side effects
D
Dawn Priest
8 years ago
It’s a horrible invisible illness, I get so fed up of people saying well you look ok .... yeah right
I
Isabel langton
8 years ago
On behalf of my daughter aged 12.
C
Carol Stingl
8 years ago
Medical profession, please listen to people with GS.
It's not an 'asymptomatic' condition. Many of us do have symptoms.
E
Emma
8 years ago
More research needed into why people with GS have these debilitating symptoms and yet doctors are adamant it’s asymptomatic!
A
Abdulruhman
8 years ago
I hv got GB
P
Patrick Proven
8 years ago
I need help. There has to be something someone can do.
R
Rob edwards
8 years ago
A Gilbert’s syndrome sufferer
A
Aurora
8 years ago
Ridiculous the lack of education medical professionals are given on this. It's time something changed!!
E
Ewa aymer
8 years ago
Since there is no cure and doctors are very ignorant we need something to help people like me who are suffering
S
Sinead
8 years ago
Gilbert Syndrome sufferer
E
Ewa aymer
8 years ago
I want some answers enough of suffering
D
Danny slack
8 years ago
I have this gilbert syndrome help it's horrible
J
jdc Castro
9 years ago
Yeah!
S
Stephen moore
9 years ago
I too suffer with Gilbert's syndrome best cure for me believe it or not is work it's only when I sit down or relax I get the headaches foggy brain and tiredness.
L
Leon Pogue
9 years ago
I was diagnosed a month ago. This is a horrible "Sydrom" to have. If you can even call it that. Sudden bouts of weakness, nauseousness, cloudy head and depression is a lot for a person to handle at once let alone with our daily lives. We need help on finding a cure or treatment for this.
I
Isabelle Andrews
9 years ago
It would be nice for people to acknowledge that this syndrome does have symptoms and your not just a hypochondriac
S
Sandra
9 years ago
Be vegan :)
Y
Yvonne McCormack
9 years ago
Recently diagnosed. When Dr informed me, all I was given was a sheet printed from NHS website. Not doctors fault, there was nothing else available for her to give me. I sat for a second and said "Is that it?" She kind of looked at me sympathetically and said yes, and told me to try eat regularly, drink lots and not get stressed (she didn't realise I was a working mother of two!) The tiredness and brain fog are so hard to deal with sometimes, particularly when it's been busy at work and try to stay upbeat for the kids and the husband. Hope they can find something to help us all soon and not just left to try and figure it out between us all.
I
Iggy
9 years ago
I am too a sufferer. Hopefully I can contribute to your cause.
Research is needed as we are sick of doctors telling us there are no side effects
It’s a horrible invisible illness, I get so fed up of people saying well you look ok .... yeah right
On behalf of my daughter aged 12.
Medical profession, please listen to people with GS. It's not an 'asymptomatic' condition. Many of us do have symptoms.
More research needed into why people with GS have these debilitating symptoms and yet doctors are adamant it’s asymptomatic!
I hv got GB
I need help. There has to be something someone can do.
A Gilbert’s syndrome sufferer
Ridiculous the lack of education medical professionals are given on this. It's time something changed!!
Since there is no cure and doctors are very ignorant we need something to help people like me who are suffering
Gilbert Syndrome sufferer
I want some answers enough of suffering
I have this gilbert syndrome help it's horrible
Yeah!
I too suffer with Gilbert's syndrome best cure for me believe it or not is work it's only when I sit down or relax I get the headaches foggy brain and tiredness.
I was diagnosed a month ago. This is a horrible "Sydrom" to have. If you can even call it that. Sudden bouts of weakness, nauseousness, cloudy head and depression is a lot for a person to handle at once let alone with our daily lives. We need help on finding a cure or treatment for this.
It would be nice for people to acknowledge that this syndrome does have symptoms and your not just a hypochondriac
Be vegan :)
Recently diagnosed. When Dr informed me, all I was given was a sheet printed from NHS website. Not doctors fault, there was nothing else available for her to give me. I sat for a second and said "Is that it?" She kind of looked at me sympathetically and said yes, and told me to try eat regularly, drink lots and not get stressed (she didn't realise I was a working mother of two!) The tiredness and brain fog are so hard to deal with sometimes, particularly when it's been busy at work and try to stay upbeat for the kids and the husband. Hope they can find something to help us all soon and not just left to try and figure it out between us all.
I am too a sufferer. Hopefully I can contribute to your cause.