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INTERNATIONAL DAY OF GILBERT'S SYNDROME

473 Comments

K
Katie Drehobl
6 years ago

I have had this for over 28yrs

R
Rrn
6 years ago

Please just do something it is terrible

C
Chris Seth-Nicholas
6 years ago

I’d like more research to be conducted on this condition and it’s vast array of symptoms.

A
Amanda Schaper
7 years ago

My son suffers badly with this. I don’t know why the doctors keep saying there are no symptoms. It has destroyed his life

L
Luke Smith
7 years ago

I have Gilbert's syndrome so this hits close to home.

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Sue willner
7 years ago

My son has been diagnosed with Gilbert’s after nearly 3 years of ill health. Ill health that has preventing him from having any form of a “normal” life. He missed the last 2 years of school and most of his first year at college. We had an appointment at Peterborough Hospital (UK) this week and the doctor was so rude; despite me sharing that 1000’s of people have debilitating systems with GS he was dismissive and told my son to start playing football again and he’d stop sitting about imagining all his symptoms

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James Grant
7 years ago

Without doubt more research needed, this is terrible.

G
Gary Stoner
7 years ago

Please help those with this syndrome. It affects lives more than known.

J
Janine Verrall
7 years ago

Research needed please to link symptoms to this condition

S
Sabrina Parker
7 years ago

About time doctors stop telling us GS has no symptoms and start helping us!!!

M
Michelle Scott
7 years ago

Signing this from bed. Mild, symptomless I was told. Nonsense.

C
Cassandra Lee
7 years ago

its complicated

F
Francesca baggett
7 years ago

My 12 year old son has just been diagnosed....hes been Ill for months yet they say gilberts is a benign syndrome and has nothing to do with his illness....we definitely need more research...

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Helen Donoghue
7 years ago

Research now please

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Randall Molloy
7 years ago

Should be better known

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Shawna Molloy
7 years ago

Diagnosed almost 3 years ago.

C
Charlene Cotterill
7 years ago

Something must be done to help us please

D
denise jackson
7 years ago

We know the problem why can't we accept the symptoms? how can someone who doesnt have it tell someone who does have it how they feel and why?

D
Deborah Collins
7 years ago

Time to stop ignoring!!!

S
Sarah
7 years ago

Tired of being told there are no symptoms. Blights my life daily.