My son might have this condition running some test
S
Swastik laha
5 months ago
I am diagnosed with gilbert syndome
P
Paul TrAcey
9 months ago
61 and suffered for far too many years from this benign liver disease..
as a non liver disease condition it has been a nightmare to live with and only realising how easy it can be fixed with knowledge.
I am using Kombucha and the wormwood tincture and B12.
Made a huge difference.
J
Joe Fudale
9 months ago
In honor of Steve!
A
Abhijit Dey
10 months ago
Suffering from long time from Gilbert need treatment
L
Lindsey Driver
1 year ago
Awareness for my son
J
jennifer Cirot
1 year ago
Je souhaite que cette pétition nous redonne du soutien nous qui on Gilbert cette maladie et tros dure à vivre svp aides nous !
B
brun dominique
1 year ago
ce syndrome est bien une maladie et c'est tout le problème car comme elle n'est pas reconnue ils parlent de syndrome et les medecins dans leurs études ils l'apprennent en même pas une demi journée en médecine voir certain ne l'ont même pas appris alors que la maladie de CRIGLER NAJJAR elle oui est reconnue et pourtant elle touche la même enzyme UGT1A1 défficiente(type 1 a presque 100%,type 2 un peu moins et pour nous les GILBERTINS qui sont simptomatiques elle est moins mais nous n'avons pas le droit aux lampe a UV d'ondes bleues etc)en bref une honte! merci a celui qui a créé cette pétition!
S
Santo
1 year ago
Having been diagnosed with Gilberts I can vouch for the "tired of being tired" statement
E
Emily Gutsche
2 years ago
I would like to recognition for a disease that causes people to be tired, and being tires is not ok
N
Nikhil
2 years ago
There need to be more study on the treatment of Gilbert's Syndrome disease, as thr doctors say it is a benign condition, It is not at all benign it has its own complications which effects severely on your day to day life, it's great to know that someone has taken initiative for such cause, looking forward for updates related to GS.
S
Sonia Cabras
2 years ago
Medical gaslighting is a very common occurrence for those with GS.
Gilbert is not a benign condition.
They told me I was lucky to have it !!!!
Keep strong everyone
J
Joseph
2 years ago
I'm fed up of doctors not caring about Gilbert's syndrome
K
Karla Gutierrez
2 years ago
FOR JOEY ✊
C
Caroleen
2 years ago
I stand with Joey! ✊
A
Ariel Paish
2 years ago
I love you Joey!!!
A
Anonymous
2 years ago
we are sick and tired and in pain but our GS symptoms are ignored. I wouldn't be surprised if people have topped themselves over this in the past. being told that it was all in their head. It's f*ck*ng not!! we need physical help to stabilize bilirubin levels and maintain them as well as managing whatever stress triggered the episode. a prescription for milk thistle would go a long way! a recognition of the condition could help GS sufferers to keep employment. the critical fatigue syndrome and brain-fog is real and once recognised could help people to manage work better. This is better for everyone :)
S
Satheesh N
3 years ago
Both My son's were impacted with gilbert syndrome and their bilirubin levels fluctuating between 1.5 and 5.6g/dl. Both are healthy but the eyes are yellow. Its very hard to see with yellow eyes all the time.
Keep strong everyone!
Go on Will - keep up the good fight!!
My son might have this condition running some test
I am diagnosed with gilbert syndome
61 and suffered for far too many years from this benign liver disease.. as a non liver disease condition it has been a nightmare to live with and only realising how easy it can be fixed with knowledge. I am using Kombucha and the wormwood tincture and B12. Made a huge difference.
In honor of Steve!
Suffering from long time from Gilbert need treatment
Awareness for my son
Je souhaite que cette pétition nous redonne du soutien nous qui on Gilbert cette maladie et tros dure à vivre svp aides nous !
ce syndrome est bien une maladie et c'est tout le problème car comme elle n'est pas reconnue ils parlent de syndrome et les medecins dans leurs études ils l'apprennent en même pas une demi journée en médecine voir certain ne l'ont même pas appris alors que la maladie de CRIGLER NAJJAR elle oui est reconnue et pourtant elle touche la même enzyme UGT1A1 défficiente(type 1 a presque 100%,type 2 un peu moins et pour nous les GILBERTINS qui sont simptomatiques elle est moins mais nous n'avons pas le droit aux lampe a UV d'ondes bleues etc)en bref une honte! merci a celui qui a créé cette pétition!
Having been diagnosed with Gilberts I can vouch for the "tired of being tired" statement
I would like to recognition for a disease that causes people to be tired, and being tires is not ok
There need to be more study on the treatment of Gilbert's Syndrome disease, as thr doctors say it is a benign condition, It is not at all benign it has its own complications which effects severely on your day to day life, it's great to know that someone has taken initiative for such cause, looking forward for updates related to GS.
Medical gaslighting is a very common occurrence for those with GS. Gilbert is not a benign condition. They told me I was lucky to have it !!!! Keep strong everyone
I'm fed up of doctors not caring about Gilbert's syndrome
FOR JOEY ✊
I stand with Joey! ✊
I love you Joey!!!
we are sick and tired and in pain but our GS symptoms are ignored. I wouldn't be surprised if people have topped themselves over this in the past. being told that it was all in their head. It's f*ck*ng not!! we need physical help to stabilize bilirubin levels and maintain them as well as managing whatever stress triggered the episode. a prescription for milk thistle would go a long way! a recognition of the condition could help GS sufferers to keep employment. the critical fatigue syndrome and brain-fog is real and once recognised could help people to manage work better. This is better for everyone :)
Both My son's were impacted with gilbert syndrome and their bilirubin levels fluctuating between 1.5 and 5.6g/dl. Both are healthy but the eyes are yellow. Its very hard to see with yellow eyes all the time.