Hyper PARAThyroid Disease-Alert the media!

The medical profession needs better training, symptomatic patients are left needlessly struggling and it's totally miserable and unexceptable.

It is so important to raise awareness of this- so many people suffer and lose periods of their lives as it goes undetected/ gets overlooked. I suffered for a number of years and now operated feel like I can finally live again and not just “ get through” the days.

I have this Hyperparathyroidisum, it’s needing more coverage

Too many in medical profession are content to watch and wait while the patient just gets more ill. They're supposed to do no harm, but their inactivity does just that.

I suffer with this and am struggling to get surgery as medics think it isnt serious enough. Try being a sufferer and see how serious it is

Diagnosis and surgery is essential ,yet it seems like a lottery having treatment especially in UK.

Come on, get more recognition, diagnosis and effective treatment. Way too many people suffer debilitating symptoms. This disease shortens life!

Nasty disease with many horrible symptoms. Takes ages to get diagnosed and endless unecessary suffering.

Suffered from Hptd for 10+years & it took a Stroke Cosultant to finally 'correctly' diagnose it after a TIA 2010/11

I have hyperparathyroidism and not enough new training is given to GPs, consultants and surgeons

I’ve been ill for years, neck swelling took me to GP that was almost 3yrs ago. Had lots of tests but no treatment & still suffering daily.

I’ve live with this disease for 20+ years with three operations, and I’m sick of people thinking that it’s nothing and just a small problem.

I cant understand why there hasnt been media coverage of this disease when misdiagnosis of primary hyperparathyroidism has affected many thousands of people over the years. It's been left to patients in the UK fighting for NICE guidelines and the world over fighting for awareness.

Lived with this awful disease for 13yrs. Most are unaware of the daily struggle unless they live with someone with it.

this needs to be taken more seriously, Drs need to look at whole picture not just 1 blood test. it would save NHS thousands if it was dealt with quickly, ie kidney stones, fractured hips, obesity, people wouldnt have to give up work and go on benefits because of the effects of this disease

Both my boys have neonatal severe hyperparathyroidism!! I’m 100% behind this all the way❤️❤️

I was diagnosed in 2016 Endocrinologist have decided to Watch and wait- still no Op!!! Even though I have symptoms and an adenoma. Local hospitals do not have any experienced para surgeons. Spread the word, get checked out by having blood tests.

Please recognize this disease help patients get well.

I am currently bed bound with severe symptoms as a result of this disease. Previously told I must have fibromyalgia because hyperparathyroidism is asymptomatic! Now on right path but have lost a year of my life.

Diagnosis and treatment of this disease is still frustratingly slow. The medical profession often wait and monitor while patients have to jump through hoops with rafts of tests. I had this disease at least twelve years before it was noticed that my calcium levels were raised. Even having a reoccurrence hasn’t made them move more quickly. The symptoms are vile and unfortunately it is often diagnosed in menopausal women which delays diagnosis as their symptoms are accredited to this. Routine serum calcium level checks would detect this disease before it inflicts irreversible damage to the brain, heart, blood vessels; all becoming furred up with calcium, leaching from the bones. This also puts sufferers at a higher risk of getting cancer. Jackie Ribeiro