Hydrocephalus does not mean brainless

Hi I have hydrocephalus I'm also deaf in both of my hears and have two hearing aids I do a lot of work on the computer and makes things out of wood and and going out driving in my car

As someone who lives everyday with hydrocephalus and it's associated problems I KNOW that living with no brain is NOT possible.

i recon it is some doctors have no brain. they're "brainless-washed" in an educational system mostly if not all pharmaceutical based. i've had 28 operations which 24 have been on or for my brain and i have been misdiagnosed ONE HUNDRED PERCENT of the time!!!

I have this condition and I do think that many more people need tobbe aware of this condition

I think to mother of that little boy need edercating more about his lillness

Please sign this.

My son has hydro and weighed 1lb 4oz he had a resivour done at 4 weeks old and drained it from there but there was to much so he had a vp shunt and full crainial reconstruction at 9 months old at the time my so was the youngest baby to have this done and done when he was only 8lb as his scull had fused very early he is in medical books and a lot more but we didn't go on like she has we know the family a little as we live close we were blocked from her page said we were jelouse and I feel sorry for shine they have helped us a lot we said get intouch with shine after he was born and the full family had a go at us she said she dosnt go to shine as she dosnt need them for help but I'm pleased this is out and beleave me there's a lot more that wasn't said

Supporting ❤xxxx

Hi my 6yr old daughter has left sided schizencephaly n still having to meet someone with the same condition x

Such rubbish.

My niece has this and she is intelligent

I have open lip schizencephaly and a stroke at 7 months old.

I was diagnosed at 3 mths and have at least one family member in my genealogy who was also born with hydrocephalus. I do think that some people confuse microcephaly with hydrocephalus, which is where the misinformation comes in. I do recall being denied health insurance by a company, yrs ago, and being told that I couldn't be who I said I was because "you don't sound retarded enough to have hydrocephalus". They also had a problem with me not having revisions every 12-18 mths. There is a lot of misinformation out there!

It's such a shame that something that could have done so much good has seemingly now done the opposite. The fact the name of the program was purely based on the "wow" factor to gain viewers, completely over shadowed what could have been a very informative story about a family and their lovely child dealing with Spina Bifida and Hydrocephalus.

I also was born early and diagnosed with hydrocephalus. Its crazy how someone thinks that people like me were born without a brain! How would we be able to function and survive! Obviously this person needs to be educated!

I hope we can learn more about the treatment of this condition.

My son is not brainless he's beautiful little boy

I take offence at Channel 5 basically calling people with hydrocephalus brainless. I'm 34 and had hydrocephalus all my life.

Right behind you girls channel 5 needs shooting

born with spina bifida and hydrocephalus. Always been underestimated ability wise.