The public record has been corrected and the misinformation regarding our community has been officially retracted. Thank you for standing firm on the facts until we set the record straight. Keep watching the official channels to ensure this standard of accuracy remains in place.
January 2, 2017
Final supporters
So we have heard a few say having hydrocephalus means you were born with no brain , now we all know this ISNT TRUTH OR FACTUAL you can't not survive life without a brain you can not grow a brain , we are not hating on these people who are claiming this we are not bad mouthing we are stateing FACTS real life when your told you have hydrocephalus MRI scans will show you your brain it looks like there is only 2% brain as the child build up takes over you do have your full 100% brain in there just covered by water people with hydrocephalus aren't brainless or thick or rare or life treating THERE ARE HUMAN BEING WITH THE SAME FEELINGS EMOTIONS ARE WE ALL DO DO NOT BE FOOLED BY THESE PEOPLE CLAIMING THERE ARE BRAINLESS THIS USNT TRUE.....
OUR response from SHINE is in the highlights please read ..
Hydrocephalus as seen on a CT scan of the brain. The black areas in the middle of the brain are abnormally large and filled with fluid.Hydrocephalus is a condition in which there is an abnormal accumulation of cerebrospinal fluid (CSF) within the brain.[1] This typically causes increased pressure inside the skull. Older people may have headaches, double vision, poor balance, urinary incontinence, personality changes, or mental impairment. In babies there may be a rapid increase in head size. Other symptoms may include vomiting, sleepiness, seizures, and downward pointing of the eyes.[1]Hydrocephalus can occur due to birth defectsor be acquired later in life.[1] Associated birth defects include neural tube defects and those that result in aqueductal stenosis.[1][2] Other causes include meningitis, brain tumors, traumatic brain injury, intraventricular hemorrhage, and subarachnoid hemorrhage. There are four types of hydrocephalus: communicating, non-communicating, ex-vacuo, and normal pressure. Diagnosis is typically by examination and medical imaging.[1]Hydrocephalus is typically treated by the surgical placement of a shunt system. A procedure called a third ventriculostomy may be an option in a few people. Complications from shunts may include overdrainage, underdrainage, mechanical failure, infection, or obstruction. This may require replacement. Outcomes are variable; however, many lead normal lives. Without treatment death may occur.[1]
Updates
October 12, 2016
We just hit 250 signatures and it proves people are tired of this medical misinformation. Go post the petition link on your Facebook page right now to keep this pressure up. Text three friends and ask them to read the facts about hydrocephalus on the page.
Reached 250 supporters
October 12, 2016
Reached 100 supporters
October 12, 2016
October 10, 2016
We are approaching one hundred signatures but we need a final push to hit this target today. Send the petition link to three people in your contacts who need to learn the facts about hydrocephalus. Post this on your Facebook page to help us correct these harmful misconceptions.
111 Comments
I'm signing because my 3 year old granddaughter was born two months early suffering with severe hydrocephalus. She is a lively, happy child who learns and develops every day
I am 29 years old played rugby,football been working on building sites and now im a engineer for a railway company it is obsurd to hear such bad things a being said and the assumptions of ignorant people out there!
I have a son with severe hydro has had over 40 operations and is the only child known to have this at the age of 3 never have I heard he had no brain Noah is a very special boy who has been made to be a brainless little boy you can not grow a brain
The programme was totally inaccurate. Hydrocephalus does not mean you do not have a brain. The dark area on MRI scans is the level of cerebrospinal fluid within the cavities of the brain. Nor does a person with hydrocephalus necessarily lack mental development. I should know. I have hydrocephalus myself.
This statement is so true, just because we have hydro doesn't mean we are stupid or brainless. Everyone with hydro is different and many people go onto advanced education like me; I'm studying at univeristy to become a nurse and help people through outgunned times. Just like the nurses did for me when I was a baby and diagnosed with hydro
Hi I have hydrocephalus I'm also deaf in both of my hears and have two hearing aids I do a lot of work on the computer and makes things out of wood and and going out driving in my car
As someone who lives everyday with hydrocephalus and it's associated problems I KNOW that living with no brain is NOT possible.
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The public record has been corrected and the misinformation regarding our community has been officially retracted. Thank you for standing firm on the facts until we set the record straight. Keep watching the official channels to ensure this standard of accuracy remains in place.
January 2, 2017
Final supporters
So we have heard a few say having hydrocephalus means you were born with no brain , now we all know this ISNT TRUTH OR FACTUAL you can't not survive life without a brain you can not grow a brain , we are not hating on these people who are claiming this we are not bad mouthing we are stateing FACTS real life when your told you have hydrocephalus MRI scans will show you your brain it looks like there is only 2% brain as the child build up takes over you do have your full 100% brain in there just covered by water people with hydrocephalus aren't brainless or thick or rare or life treating THERE ARE HUMAN BEING WITH THE SAME FEELINGS EMOTIONS ARE WE ALL DO DO NOT BE FOOLED BY THESE PEOPLE CLAIMING THERE ARE BRAINLESS THIS USNT TRUE.....
OUR response from SHINE is in the highlights please read ..
Hydrocephalus as seen on a CT scan of the brain. The black areas in the middle of the brain are abnormally large and filled with fluid.Hydrocephalus is a condition in which there is an abnormal accumulation of cerebrospinal fluid (CSF) within the brain.[1] This typically causes increased pressure inside the skull. Older people may have headaches, double vision, poor balance, urinary incontinence, personality changes, or mental impairment. In babies there may be a rapid increase in head size. Other symptoms may include vomiting, sleepiness, seizures, and downward pointing of the eyes.[1]Hydrocephalus can occur due to birth defectsor be acquired later in life.[1] Associated birth defects include neural tube defects and those that result in aqueductal stenosis.[1][2] Other causes include meningitis, brain tumors, traumatic brain injury, intraventricular hemorrhage, and subarachnoid hemorrhage. There are four types of hydrocephalus: communicating, non-communicating, ex-vacuo, and normal pressure. Diagnosis is typically by examination and medical imaging.[1]Hydrocephalus is typically treated by the surgical placement of a shunt system. A procedure called a third ventriculostomy may be an option in a few people. Complications from shunts may include overdrainage, underdrainage, mechanical failure, infection, or obstruction. This may require replacement. Outcomes are variable; however, many lead normal lives. Without treatment death may occur.[1]
Updates
October 12, 2016
We just hit 250 signatures and it proves people are tired of this medical misinformation. Go post the petition link on your Facebook page right now to keep this pressure up. Text three friends and ask them to read the facts about hydrocephalus on the page.
Reached 250 supporters
October 12, 2016
Reached 100 supporters
October 12, 2016
October 10, 2016
We are approaching one hundred signatures but we need a final push to hit this target today. Send the petition link to three people in your contacts who need to learn the facts about hydrocephalus. Post this on your Facebook page to help us correct these harmful misconceptions.
111 Comments
I think it's absolutely disgusting that people with the condition hydrocephalus are being pinned as brainless! I know so many people who live with the condition everyday and adapt to their surroundings. No one is born brainless, seriously get facts before documenting.
I'm signing because my 3 year old granddaughter was born two months early suffering with severe hydrocephalus. She is a lively, happy child who learns and develops every day
I am 29 years old played rugby,football been working on building sites and now im a engineer for a railway company it is obsurd to hear such bad things a being said and the assumptions of ignorant people out there!
I have a son with severe hydro has had over 40 operations and is the only child known to have this at the age of 3 never have I heard he had no brain Noah is a very special boy who has been made to be a brainless little boy you can not grow a brain
The programme was totally inaccurate. Hydrocephalus does not mean you do not have a brain. The dark area on MRI scans is the level of cerebrospinal fluid within the cavities of the brain. Nor does a person with hydrocephalus necessarily lack mental development. I should know. I have hydrocephalus myself.
This statement is so true, just because we have hydro doesn't mean we are stupid or brainless. Everyone with hydro is different and many people go onto advanced education like me; I'm studying at univeristy to become a nurse and help people through outgunned times. Just like the nurses did for me when I was a baby and diagnosed with hydro
Hi I have hydrocephalus I'm also deaf in both of my hears and have two hearing aids I do a lot of work on the computer and makes things out of wood and and going out driving in my car
As someone who lives everyday with hydrocephalus and it's associated problems I KNOW that living with no brain is NOT possible.
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I think it's absolutely disgusting that people with the condition hydrocephalus are being pinned as brainless! I know so many people who live with the condition everyday and adapt to their surroundings. No one is born brainless, seriously get facts before documenting.