HELP GET MEK FOR ADULTS WITH NEUROFIBROMATOSIS TUMORS
12 Comments
S
Sarah Velez
7 years ago
Featured
my daughter has plexiforms and the cost is just insane we cant afford it either
M
Mark Stewart
7 years ago
Featured
Living with NF1 and constant tumors nobody should have to pay this much for medicine that keeps us alive
S
Samantha Murray
7 years ago
People need to know more about Nf1/2 .
E
edwina mcdaid
7 years ago
my grandaughter has it
C
Corinne gieve
7 years ago
My son has NF with a tumor in his arm that may not be able to be removed
A
Allison page
7 years ago
Help her please
N
Nadine Leedham
7 years ago
I have fairly mild form but still get pain
J
Jan McCrimmon
7 years ago
I also have NF1
G
Glen Williams
7 years ago
If it works it should be free to that need it
K
Katrina
7 years ago
Signed from NF1 suffer in Australia.
Best wishes
S
Sharon Henry
· petition starter
7 years ago
Featured
the picture is from 2008 the 1st time it almost killed her she was on life support 11 days (LONG DAY) and had 4 neck ops to stop the bleeding and it looks like it could start over again
my daughter has plexiforms and the cost is just insane we cant afford it either
Living with NF1 and constant tumors nobody should have to pay this much for medicine that keeps us alive
People need to know more about Nf1/2 .
my grandaughter has it
My son has NF with a tumor in his arm that may not be able to be removed
Help her please
I have fairly mild form but still get pain
I also have NF1
If it works it should be free to that need it
Signed from NF1 suffer in Australia. Best wishes
the picture is from 2008 the 1st time it almost killed her she was on life support 11 days (LONG DAY) and had 4 neck ops to stop the bleeding and it looks like it could start over again
I am getting worse with my two health nf and ms