Images of people with visible differences have been stolen and used on YouTube to exploit, belittle and dehumanise in order to entertain weak-minded people. Amongst them is our daughter, Mui, who was born with Harlequin Ichthyosis and who was abandoned at birth and Hunter who was also born with Harlequin Ichthyosis. The Ichthyosis community and others with visible differences have every right to feel angry that images were stolen and used in a “shock” video on YouTube.
Mui says, ‘I don’t know what’s worse, this or being cyberbullied?’
Cyberbullies drove Mui to the brink of suicide.
Hunter says, 'I am an advocate for people with visual differences and this video does not represent anyone with visual differences in a positive light.'
Our daughter and Hunter have not been raised to be a source of entertainment for weak-minded people.
These videos are not informing or educating, they are exploiting and bullying and dehumanising. It is discrimination. Is YouTube no more than a modern-day Victorian freak show? Is this what YouTube CEO Susan Wojcicki wishes to represent?
What Susan Wojcicki and YouTube are doing to safeguard people’s rights clearly isn’t working.
Help us STAND UP against these “shock” videos by showing your support and signing this petition on behalf of Mui, the Ichthyosis community and anyone with a visible difference in order to ask: “What more is CEO Susan Wojcicki and YouTube prepared to do?”
PLEASE NOTE: If the server, iPetitions, asks for a donation, it is a donation to them, not us. NO money donated will come to us.
We do NOT want money. We want to raise awareness.
Updates
September 28, 2015
we just hit 1,000 signatures tonight and i honestly cant believe it. seeing so many people stand up against this kind of cruelty to mui and hunter means everything to us. thank you for taking a stand.
Reached 1,000 supporters
September 27, 2015
September 22, 2015
just saw we hit 100 signatures today. its wild that so many people get why this is so messed up and are joining in to call it out.
Reached 100 supporters
September 20, 2015
467 Comments
my nephew has lumelor ictiosis and deals enough with people staring and whispering! Cyber bullying in all forms is unexceptable! And using people's photos without their permission is unexceptable in my eyes! Raise awareness not eyebrows!
Please stop these videos.I have Lamellar ICHTHYOSIS. I am 47 years old .these videos give people bad concept of us. We have tried for so many years to fit in .It distorted what we have worked so hard to change
I strongly object to the posting of people's faces and information for sensationalist purposes, and without their permission. It is not allowed in commercial print publications and should be allowed on the Internet. We need to institute serious penalties for those who do this.
These videos have to stop. As someone affected by Ichthyosis, and whose photo has been misused for ridicule, I know the impact of damaging videos like this. They do nothing to raise awareness or reduce the stigma of life with facial differences, we are not freak shows.
Both myself and my daughter have the rare disorder ichthyosis, first and foremost we are human, and we have feelings. We are not here to be subjected to others' 'entertainment' and ridicule. Please stop these videos from being used for such purposes.
This is so sad to me by me having LI IS NOT a easy thing to live with, there has been times I tried to kill myself and its not because of bullying it was because I felt like a monster and same on YOUTUBE for showing this to happen
I'm all for it. Content like this is insensitive and frankly evil and anyone who likes it needs serious help.
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Images of people with visible differences have been stolen and used on YouTube to exploit, belittle and dehumanise in order to entertain weak-minded people. Amongst them is our daughter, Mui, who was born with Harlequin Ichthyosis and who was abandoned at birth and Hunter who was also born with Harlequin Ichthyosis. The Ichthyosis community and others with visible differences have every right to feel angry that images were stolen and used in a “shock” video on YouTube.
Mui says, ‘I don’t know what’s worse, this or being cyberbullied?’
Cyberbullies drove Mui to the brink of suicide.
Hunter says, 'I am an advocate for people with visual differences and this video does not represent anyone with visual differences in a positive light.'
Our daughter and Hunter have not been raised to be a source of entertainment for weak-minded people.
These videos are not informing or educating, they are exploiting and bullying and dehumanising. It is discrimination. Is YouTube no more than a modern-day Victorian freak show? Is this what YouTube CEO Susan Wojcicki wishes to represent?
What Susan Wojcicki and YouTube are doing to safeguard people’s rights clearly isn’t working.
Help us STAND UP against these “shock” videos by showing your support and signing this petition on behalf of Mui, the Ichthyosis community and anyone with a visible difference in order to ask: “What more is CEO Susan Wojcicki and YouTube prepared to do?”
PLEASE NOTE: If the server, iPetitions, asks for a donation, it is a donation to them, not us. NO money donated will come to us.
We do NOT want money. We want to raise awareness.
Updates
September 28, 2015
we just hit 1,000 signatures tonight and i honestly cant believe it. seeing so many people stand up against this kind of cruelty to mui and hunter means everything to us. thank you for taking a stand.
Reached 1,000 supporters
September 27, 2015
September 22, 2015
just saw we hit 100 signatures today. its wild that so many people get why this is so messed up and are joining in to call it out.
Reached 100 supporters
September 20, 2015
467 Comments
Using images of people with visible medical conditions without the permission of those people for shock value is disgusting in multiple ways. That practice should be banned on YouTube similarly to blatant "gore" videos or animal abuse.
my nephew has lumelor ictiosis and deals enough with people staring and whispering! Cyber bullying in all forms is unexceptable! And using people's photos without their permission is unexceptable in my eyes! Raise awareness not eyebrows!
Please stop these videos.I have Lamellar ICHTHYOSIS. I am 47 years old .these videos give people bad concept of us. We have tried for so many years to fit in .It distorted what we have worked so hard to change
I strongly object to the posting of people's faces and information for sensationalist purposes, and without their permission. It is not allowed in commercial print publications and should be allowed on the Internet. We need to institute serious penalties for those who do this.
These videos have to stop. As someone affected by Ichthyosis, and whose photo has been misused for ridicule, I know the impact of damaging videos like this. They do nothing to raise awareness or reduce the stigma of life with facial differences, we are not freak shows.
Both myself and my daughter have the rare disorder ichthyosis, first and foremost we are human, and we have feelings. We are not here to be subjected to others' 'entertainment' and ridicule. Please stop these videos from being used for such purposes.
This is so sad to me by me having LI IS NOT a easy thing to live with, there has been times I tried to kill myself and its not because of bullying it was because I felt like a monster and same on YOUTUBE for showing this to happen
I'm all for it. Content like this is insensitive and frankly evil and anyone who likes it needs serious help.
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Using images of people with visible medical conditions without the permission of those people for shock value is disgusting in multiple ways. That practice should be banned on YouTube similarly to blatant "gore" videos or animal abuse.