Ehlers Danlos Syndrome and access to necessary health care

We strongly support this petition. Dr Adena Gutstein has been incredibly resourceful in seeking both a diagnosis and treatment for her condition. Physicians with her level of determination, resourcefulness and talent are needed on the front lines of our health care system. Please assist her in returning to care for patients as soon as possible.

It's about life and the quality of that life

Absolutely...OHIP should & must cover the cost needed for this operation...thank you for your attention.

Its time

Kindly reconsider and allow the necessary surgery to take place in the US.

There is no excuse for OHIP not to cover the cost of this surgery wherever available

If the surgery is note available in Ontario, the patient should be funded where the surgery can be performed

Please do whatever it takes to help get this surgery done.

As a clinician and now friend of Adena, the resolve she has shown in the altruistic perseverance of better care for this population of patients is remarkable.

I have two daughters involved in activities related to assist people with special needs. I learned to appreciate their activities and understand how significant this is. I support this petition.

I feel your suffering Just had back And neck fusión 1and a half Month ago , wearing hard collar And well my life has totaly changed Now in The look for a meaninfull future

I have witnessed the pain and disability my friend has suffered for years, no decades, with little or no medical intervention. Heart rending!

Please invest in and raise awareness for this condition. I have come to know someone who suffers from EDS and the lack of knowledge, support, and treatment options seems to lack. We have the talent and resources available to learn more and help those that suffer from the condition, we just need to set the goal and direct the resources and we could at the least know more about what we're up against and at best find a cure. Let's help these people live, Rob

This is a Canadian who's clearly helped others; surely Canada should be stepping up and helping her. Eric Hoskins, please consider doing right by all of us.

As a sufferer of another rare disease, I understand the lack of support that Canadian health care provides for these unfortunate individuals. If you have been sentenced to a disease that falls out of the norms of standard diagnostics, you are not only punished by having a horrible, incurable, and under-researched illness, you are punished by having to prove your disease, along with its accompanying pain and misery. I was once misdiagnosed with Ehlers Danlos Syndrome, so although I do not have this disease, it hits close to home. As a result, I have studied it closely and had the fears of having to battle such a horrible illness. Individuals suffering with Ehlers Danlos should be treated with the utmost respect, and our health care system should go out of its way to provide them with the best care possible. It isn't until someone is diagnosed with a rare disease that they begin to understand how horrible it is; no cures, sometimes few or no treatments, and definitely no understanding. Please help these patients get the treatment they need and deserve!

Please end the suffering

Please help those needing surgery be helped with another dr to replace dr shanji

You have the ability to make the changes necessary to help those that are suffering. Please do the right thing.

Great initiative Adena, kol ha'kavod. Hopefully the Minister and his government are listening.

I hope that Canadians realize that the health system is not working and need a big change. We cannot wait 20 weeks to see a specialist that takes 5 minuts to talk to you and only work 2 times a week from 10 am to 2 pm and their is a sign in his/her office saying "limit yourself for 1 complaing per visit". It is ridiculous and insulting!!!!