Status: Closed — this petition is no longer accepting signatures.
Final supporters
You don’t have to be experts, but learn enough to treat us properly. If we say our pain is a 10, we are thinking death would be a relief from the torturous pain. We’re in pain everyday and develop a high pain tolerance. If we come see you, we are in very bad pain. We also feel pain 5 times as much as normies. We don’t know if we are that sick, that injured, or if it’s “just” the Fibromyalgia. Your job is to figure it out, not judge us. Cardiac docs, when we come in thinking it’s a heart attack and you rule out heart attack, don’t jump to acid reflux and stay there. When we say we’ve had that in the past and this isn’t that, believe us. We know our body’s and symptoms better than most people. Please consider. Costochondritis, Esophagual Spasms and trigger point pain, which are all common amongst FMS sufferers. Ortho docs, don’t tell us that we can’t be in that much pain based on an xray. Believe us and do the MRI, the amount of inflammation will shock you, and then you will understand the pain. Neurologists, please don’t send us home with a concussion telling us we will be better in a few days, as most people are. We won’t be. Anything with the brain is worse for us. Put us on bed rest and sensory deprivation to let that brain heal. Sending us back to work ends up causing us a couple years of post-concussion syndrome. Gastro docs, know that many (not all) FMS sufferers have gluten and sugar sensitivities, and IBS.
Again, we don’t need you to be experts, but you should know enough about how FMS affects issues in your area of specialty. We deserve proper treatment, the same as everybody else.
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Updates
October 11, 2019
The momentum is incredible. This proves how many of us have been ignored in the ER.
29 Comments
I deal with symptoms daily been to the er plenty of time telling me there is nothing wrong with me if there's nothing wrong with me why I'm I hear.
ER doctors, not everyone is a pill junkie looking for a fix. If I say ibuprofen and tylenol aren't helping, it's not because I want a narcotic, it's because I'm at my wits end and finally got up the nerve to come ask for help. Being condescending when I ask for something stronger only means I will have one more bad experience to add to the long list I've already got.
Docs also need to understand that we are not just absent-minded. Dyscognition (brain fog) is real and worse during stressful times (like being at the doctor’s office). Write down what we need to do after we discuss it. (I’ve had to call the nurse from the parking lot before to ask what the doctor just said.)
I know how you feel. According to my doctors I’m not allowed to have anything new, if I go with any new symptoms and I think no this is not Fibromyalgia, this is something else... I go to the doctor and it gets brushed off and told that it is just my Fibromyalgia and it’s all in my head
I've been told that symptoms I had were from FMS.. I had a pinched nerve. They would not listen to me.
Isn’t it frustrating! It’s scary to never be sure.
I’m so sorry you are suffering so badly. It gets worse over time and I became disabled from it this year. Don’t give up yet! The Mayo Clinic is now researching it. We might get a cure!! Wouldn’t it be great to have our lives back?! There is hope!
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Status: Closed — this petition is no longer accepting signatures.
Final supporters
You don’t have to be experts, but learn enough to treat us properly. If we say our pain is a 10, we are thinking death would be a relief from the torturous pain. We’re in pain everyday and develop a high pain tolerance. If we come see you, we are in very bad pain. We also feel pain 5 times as much as normies. We don’t know if we are that sick, that injured, or if it’s “just” the Fibromyalgia. Your job is to figure it out, not judge us. Cardiac docs, when we come in thinking it’s a heart attack and you rule out heart attack, don’t jump to acid reflux and stay there. When we say we’ve had that in the past and this isn’t that, believe us. We know our body’s and symptoms better than most people. Please consider. Costochondritis, Esophagual Spasms and trigger point pain, which are all common amongst FMS sufferers. Ortho docs, don’t tell us that we can’t be in that much pain based on an xray. Believe us and do the MRI, the amount of inflammation will shock you, and then you will understand the pain. Neurologists, please don’t send us home with a concussion telling us we will be better in a few days, as most people are. We won’t be. Anything with the brain is worse for us. Put us on bed rest and sensory deprivation to let that brain heal. Sending us back to work ends up causing us a couple years of post-concussion syndrome. Gastro docs, know that many (not all) FMS sufferers have gluten and sugar sensitivities, and IBS.
Again, we don’t need you to be experts, but you should know enough about how FMS affects issues in your area of specialty. We deserve proper treatment, the same as everybody else.
Updates
October 11, 2019
The momentum is incredible. This proves how many of us have been ignored in the ER.
29 Comments
When I was studying to become a physical therapist 26 yrs ago, fibromyalgia was considered an illness that people with psychological issues and everything else is ruled out, get. I was one of those that believed that until I was diagnosed with fybro myself. At first I rejected the diagnosis. Fibromyalgia is real and it’s hell!
I deal with symptoms daily been to the er plenty of time telling me there is nothing wrong with me if there's nothing wrong with me why I'm I hear.
ER doctors, not everyone is a pill junkie looking for a fix. If I say ibuprofen and tylenol aren't helping, it's not because I want a narcotic, it's because I'm at my wits end and finally got up the nerve to come ask for help. Being condescending when I ask for something stronger only means I will have one more bad experience to add to the long list I've already got.
Docs also need to understand that we are not just absent-minded. Dyscognition (brain fog) is real and worse during stressful times (like being at the doctor’s office). Write down what we need to do after we discuss it. (I’ve had to call the nurse from the parking lot before to ask what the doctor just said.)
I know how you feel. According to my doctors I’m not allowed to have anything new, if I go with any new symptoms and I think no this is not Fibromyalgia, this is something else... I go to the doctor and it gets brushed off and told that it is just my Fibromyalgia and it’s all in my head
I've been told that symptoms I had were from FMS.. I had a pinched nerve. They would not listen to me.
Isn’t it frustrating! It’s scary to never be sure.
I’m so sorry you are suffering so badly. It gets worse over time and I became disabled from it this year. Don’t give up yet! The Mayo Clinic is now researching it. We might get a cure!! Wouldn’t it be great to have our lives back?! There is hope!
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When I was studying to become a physical therapist 26 yrs ago, fibromyalgia was considered an illness that people with psychological issues and everything else is ruled out, get. I was one of those that believed that until I was diagnosed with fybro myself. At first I rejected the diagnosis. Fibromyalgia is real and it’s hell!