Cystic Fibrosis (CF) is one of the UK's most common life-threatening inherited diseases and affects over 8,500 people in the UK.
Cystic Fibrosis affects the internal organs, especially the lungs and digestive system, by clogging them with thick sticky mucus. This makes it hard to breathe and digest food.
* Each week, two young lives are lost to Cystic Fibrosis.
* Around half of the CF population can expect to live over 38 years, although improvements in treatments mean a baby born today could expect to live even longer.
Many sufferers of Cystic Fibrosis have the capability to work, at least part-time, therefore, are able to earn some sort of a living whilst making the most out of life. The extent, however, to which they are able to get help with housing and living costs etc when they do work is exceptionally surprising. Healthy individuals who are able, but do not work, are often entitled to more benefits and help with their living costs than those suffering from ilnnesses such as cystic fibrosis. This is dispicable! There are hundreds of sufferers out there who are doing their very best to work and live a 'normal' life whilst contributing to society. They cannot often sustain a demanding role in high paid jobs due to regular illness and hospital stays and visits. As a result of this, they are often in low paid jobs and are unable to get help and support by the government because they effectively do work. This lack of help is putting the vast majority of sufferers under so much pressure they are often over-working themselves to survive, instead of making the most out of their life and concentrating on their health.
Please sign our petition to raise awareness and make a stand.
We just hit a major milestone that proves the government can no longer ignore the way they punish those of us trying to work through this disease. The bureaucrats in charge are forcing people to choose between a paycheck and their health and it is time for them to change these heartless rules.
6 Comments
D
David Sanders
15 years ago
Featured
Unbelievable. Let these people live with some dignity.
H
Helen Petersen
15 years ago
Featured
its cruel that working just makes you lose your support. they should encourage people to work not penalize them for it.
T
Tom Gutierrez
15 years ago
Featured
totally agree. the government has no clue how hard these people fight every single day just to be normal.
M
Mark Tran
15 years ago
Featured
This is ridiculous. People trying to work while sick should be getting help not punished for it!! Do better.
S
Sarah Ross
15 years ago
Featured
My son has CF and this is so true. He works so hard but barely scrapes by after the pharmacy bills. The system is completely broken.
J
Jenny Nair
15 years ago
Featured
CF is such a brutal disease. watching someone struggle to breathe and still trying to hold down a job is heartbreaking. they deserve so much more support.
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Cystic Fibrosis (CF) is one of the UK's most common life-threatening inherited diseases and affects over 8,500 people in the UK.
Cystic Fibrosis affects the internal organs, especially the lungs and digestive system, by clogging them with thick sticky mucus. This makes it hard to breathe and digest food.
* Each week, two young lives are lost to Cystic Fibrosis.
* Around half of the CF population can expect to live over 38 years, although improvements in treatments mean a baby born today could expect to live even longer.
Many sufferers of Cystic Fibrosis have the capability to work, at least part-time, therefore, are able to earn some sort of a living whilst making the most out of life. The extent, however, to which they are able to get help with housing and living costs etc when they do work is exceptionally surprising. Healthy individuals who are able, but do not work, are often entitled to more benefits and help with their living costs than those suffering from ilnnesses such as cystic fibrosis. This is dispicable! There are hundreds of sufferers out there who are doing their very best to work and live a 'normal' life whilst contributing to society. They cannot often sustain a demanding role in high paid jobs due to regular illness and hospital stays and visits. As a result of this, they are often in low paid jobs and are unable to get help and support by the government because they effectively do work. This lack of help is putting the vast majority of sufferers under so much pressure they are often over-working themselves to survive, instead of making the most out of their life and concentrating on their health.
Please sign our petition to raise awareness and make a stand.
We just hit a major milestone that proves the government can no longer ignore the way they punish those of us trying to work through this disease. The bureaucrats in charge are forcing people to choose between a paycheck and their health and it is time for them to change these heartless rules.
6 Comments
D
David Sanders
15 years ago
Featured
Unbelievable. Let these people live with some dignity.
H
Helen Petersen
15 years ago
Featured
its cruel that working just makes you lose your support. they should encourage people to work not penalize them for it.
T
Tom Gutierrez
15 years ago
Featured
totally agree. the government has no clue how hard these people fight every single day just to be normal.
M
Mark Tran
15 years ago
Featured
This is ridiculous. People trying to work while sick should be getting help not punished for it!! Do better.
S
Sarah Ross
15 years ago
Featured
My son has CF and this is so true. He works so hard but barely scrapes by after the pharmacy bills. The system is completely broken.
J
Jenny Nair
15 years ago
Featured
CF is such a brutal disease. watching someone struggle to breathe and still trying to hold down a job is heartbreaking. they deserve so much more support.
Unbelievable. Let these people live with some dignity.