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raising awareness of coats disease

raising awareness of coats disease

236 signatures 14 to reach 250
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Barbara T. signed
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Tracey D. signed
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debbie a. signed
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Someone signed
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sarah c. signed
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Sarah V. signed
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Molly P. signed
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jordan b. signed
Started by Anonymous 16 years ago
We sign this petition to show the public outcry for research into Coats Disease. Coats’ disease is a very rare condition where there is abnormal development in the blood vessels behind the retina. The blood rich retinal capillaries break open, leaking the serum portion of the blood into the back of eye. The leakage causes the retina to swell, and can cause partial or complete detachment of the retina. Coats' disease is seen predominantly in males, about 69 percent of the cases. It progresses gradually and affects central vision. It is almost always unilateral (affects only one eye). If caught early, some level of vision can typically be restored. If not caught until it's late stages, complete loss of vision can occur. In it's final stages, enucleation (removal of the affected eye) is a potential outcome. We have taken it upon ourselves to bring to your attention the need for research to identify causes, improve treatment and identify possible cures. Joshua price is our inspiration for raising awareness of coats disease as at the age of 3 he was diagnosed. His condition has worsened to the point that now aged 7 he is about to face surgery to remove the affected eye. We believe if research had been done earlier Joshua may have had other alternatives but as his case is so advanced we want to make sure children of the future have a better chance in their fight for sight.

Updates

Reached 100 supporters

July 15, 2010

6 Comments

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debbie andriacchi
12 years ago Featured

MY DAUGHTER IS 37 YEARS OLD AD WAS DIAGNOSED AT AGE 16 AND IS TOTALLY BLIND IN HER RIGHT EYE AND HER DR HAS ALWAYS SAID THERE WILL NEVER BE A CURE, SO SAD!

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David Sullivan
15 years ago Featured

doctors dont seem to know much about this stuff. it feels like we are on our own trying to figure it all out.

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Sarah Rivera
16 years ago Featured

my nephew was just diagnosed with this at 5 years old. its so scary not knowing what the future holds for him. praying for joshua.

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Mike Vega
16 years ago Featured

COATS DISEASE TOOK MY SIGHT IN MY LEFT EYE BACK IN 98 AND I HATE THAT KIDS ARE STILL GOING THROUGH THIS. WE NEED REAL RESEARCH NOW.

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Karen Schwartz
16 years ago Featured

this is so rare that the eye doctors around here have never even seen a case. please keep pushing for more answers.

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Linda Mitchell
16 years ago Featured

poor little guy hope the surgery goes okay. my heart just breaks reading this.

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