Hi,

Myself and a few others are starting a petition to send to David Cameron at Downing Street. We have children who have a rare condition on the eye called 'Coats Disease', it is fact that not alot of people know about the disease, i have realised this since my son Harry was diagnosed in Feb this year. Myself, family and friends had never heard of it and it's frightening to think how many parents and grandparents wouldn't know if something was wrong!

The petition is to raise awareness for Coats Disease and also to get funding needed for research to identify causes, improve treatment and identify possible cures.

What is Coats Disease??

Coats’ disease is a rare condition where there is abnormal development in the blood vessels behind the retina. The blood rich retinal capillaries break open, leaking the serum portion of the blood into the back of eye. The leakage causes the retina to swell, and can cause partial or complete detachment of the retina. It progresses gradually and affects central vision. It is almost always unilateral (affects only one eye). If caught early, some level of vision can typically be restored. If not caught until it's late stages, complete loss of vision can occur. In it's final stages, enucleation (removal of the affected eye) is a potential outcome.