Status: Closed — this petition is no longer accepting signatures.
Dr. Fraser Henderson, Please attend a Teleconference for Chiari People around the Country
Final supporters
This is not a petition, but rather to see how many would be interested in having you teleconference with our Facebook groups.
We would like to invite you to Co-host our Facebook group Teleconference "Chiari Medical (Q & A)" on Facebook. The group is a Closed Group and we have over 5,000 active members with Chiari Malformation, EDS, etc. in this group and a few others on Facebook.
Many have not had surgery yet, while others have and remain symptomatic. For many reasons, many people are not able to see great doctors like yourself and we are left to research and learn from each other. We would be honored if you would could make some time to do a Teleconference with our group members so that you can pass on the latest information to us, as well as answer questions from our group members.
We wold love to do such a Teleconference once per month or more depending on your availability.
We thank you so much in advance,
* The Facebook Chiari Group Administrators *
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8 Comments
Why do so many doctors refuse to even acknowledge Chairi as a source of a patients problems? We all know it is what our problems stem from just by speaking to each other. How can be better advocates for awareness to this truly debilitating condition? What information can we take with us to doctors appointments that will help enlighten our doctors? Thank you in advance for your time I know his valuable it is.
decompressed September 2013 but continue with out of balance and nerve damage
this would be wonderfully helpful
Would love to hear what he has to say!
Great idea!
Would love to get your thoughts and feedback on issues we're having.
How is it some doctors just don't want to help someone with low pressure headaches
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Status: Closed — this petition is no longer accepting signatures.
Dr. Fraser Henderson, Please attend a Teleconference for Chiari People around the Country
Final supporters
This is not a petition, but rather to see how many would be interested in having you teleconference with our Facebook groups.
We would like to invite you to Co-host our Facebook group Teleconference "Chiari Medical (Q & A)" on Facebook. The group is a Closed Group and we have over 5,000 active members with Chiari Malformation, EDS, etc. in this group and a few others on Facebook.
Many have not had surgery yet, while others have and remain symptomatic. For many reasons, many people are not able to see great doctors like yourself and we are left to research and learn from each other. We would be honored if you would could make some time to do a Teleconference with our group members so that you can pass on the latest information to us, as well as answer questions from our group members.
We wold love to do such a Teleconference once per month or more depending on your availability.
We thank you so much in advance,
* The Facebook Chiari Group Administrators *
8 Comments
What is the best way for Chiarians to get tested for EDS when they do have access to experts such as yourself. It is hard enough to get any physician to understand, let alone the majority of neurologists, and neurosurgeons in my neck of the woods (North Carolina),
Why do so many doctors refuse to even acknowledge Chairi as a source of a patients problems? We all know it is what our problems stem from just by speaking to each other. How can be better advocates for awareness to this truly debilitating condition? What information can we take with us to doctors appointments that will help enlighten our doctors? Thank you in advance for your time I know his valuable it is.
decompressed September 2013 but continue with out of balance and nerve damage
this would be wonderfully helpful
Would love to hear what he has to say!
Great idea!
Would love to get your thoughts and feedback on issues we're having.
How is it some doctors just don't want to help someone with low pressure headaches
More like this
Petition for a New Full-Time Clinical Director of Adult Sickle Cell Services at…
Support Dr. Trifiletti - A compassionate, intelligant and caring doctor!
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What is the best way for Chiarians to get tested for EDS when they do have access to experts such as yourself. It is hard enough to get any physician to understand, let alone the majority of neurologists, and neurosurgeons in my neck of the woods (North Carolina),