The hospital discharge policies have been officially amended to ensure newborns receive the extended observation they require. This outcome is a testament to your commitment toward protecting our most vulnerable infants. We will continue to monitor these procedures to ensure the safety of every child remains the primary priority.
April 2, 2010
Final supporters
Did you know that nearly 11 babies in the US and 300 worldwide lose their battle with CHD daily.
View the website: http://www.facebook.com/home.php?ref=home#/pages/Coras-Story/224020688142?ref=nf
http://www.youtube.com/watch?v=wKXfE0_wbFs
Too many infants are needlessly dying because they are released from the hospitals way too soon. My son Jacob was born with a CHD called Hypoplastic Left Heart Syndrome. He also has coarctation of the aorta. I was told during the time of my pregnancy with him, through ultrasound that I was having a healthy baby girl. Boy was I surprised to know that his sex at birth was unknown. Due to that reason he was placed in the NICU where through further care they discovered his CHD. If it wasn't for this other issue, chances are he would have been placed in the regular nursery where he would have crashed and possible have died.
Before birth, the two major arteries—the aorta and the pulmonary artery are connected by a blood vessel called the ductus arteriosus. This vessel is an essential part of fetal blood circulation. Within minutes or up to a few days after birth, the vessel is supposed to close as part of the normal changes occurring in the baby's circulation. If my sons ductus arterious (hole in the heart) would have closed, he would have crashed. This hole was the only thing allowing oxygenated blood to flow through him. The NICU immediately gave him medication to leave that hole open until his first surgery. His was lucky because his ductus arteriosus started to close fast within a few hours his breathing became very rapid that he was retracting.
Now what would have happened if it started closing a few days after birth and he was already released from the hospital and at home? Newborns are released too early and most CHD'S arent detected in that short period of time. I want to make it mandatory in the USA that all newborns must require a simple pulse oximetry (Pulse Ox) screening before they are released from the hospital or sooner. You can save a babies life.
Updates
January 7, 2010
I have spent this week reviewing the personal accounts left by those who signed the petition. These stories illuminate a widespread failure in our medical discharge protocols that prevents infants from receiving necessary screenings.
Reached 100 supporters
January 7, 2010
6 Comments
Two days is not enough. Mothers are exhausted and babies cant show symptoms that quickly. Things need to change.
My daughter was sent home way too early and ended up back in the ER within 24 hours. The hospitals care more about insurance money than our babies lives. Its absolutely shameful.
I was terrified when they rushed me out after my c-section. I barely knew what I was doing and my baby wasnt acting right. We need more time to recover.
Keep them in the hospital for at least a week. Safety first!
So true. Insurance companies are literally killing infants to save a buck. Its time to stop them.
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The hospital discharge policies have been officially amended to ensure newborns receive the extended observation they require. This outcome is a testament to your commitment toward protecting our most vulnerable infants. We will continue to monitor these procedures to ensure the safety of every child remains the primary priority.
April 2, 2010
Final supporters
Did you know that nearly 11 babies in the US and 300 worldwide lose their battle with CHD daily.
View the website: http://www.facebook.com/home.php?ref=home#/pages/Coras-Story/224020688142?ref=nf
http://www.youtube.com/watch?v=wKXfE0_wbFs
Too many infants are needlessly dying because they are released from the hospitals way too soon. My son Jacob was born with a CHD called Hypoplastic Left Heart Syndrome. He also has coarctation of the aorta. I was told during the time of my pregnancy with him, through ultrasound that I was having a healthy baby girl. Boy was I surprised to know that his sex at birth was unknown. Due to that reason he was placed in the NICU where through further care they discovered his CHD. If it wasn't for this other issue, chances are he would have been placed in the regular nursery where he would have crashed and possible have died.
Before birth, the two major arteries—the aorta and the pulmonary artery are connected by a blood vessel called the ductus arteriosus. This vessel is an essential part of fetal blood circulation. Within minutes or up to a few days after birth, the vessel is supposed to close as part of the normal changes occurring in the baby's circulation. If my sons ductus arterious (hole in the heart) would have closed, he would have crashed. This hole was the only thing allowing oxygenated blood to flow through him. The NICU immediately gave him medication to leave that hole open until his first surgery. His was lucky because his ductus arteriosus started to close fast within a few hours his breathing became very rapid that he was retracting.
Now what would have happened if it started closing a few days after birth and he was already released from the hospital and at home? Newborns are released too early and most CHD'S arent detected in that short period of time. I want to make it mandatory in the USA that all newborns must require a simple pulse oximetry (Pulse Ox) screening before they are released from the hospital or sooner. You can save a babies life.
Updates
January 7, 2010
I have spent this week reviewing the personal accounts left by those who signed the petition. These stories illuminate a widespread failure in our medical discharge protocols that prevents infants from receiving necessary screenings.
Reached 100 supporters
January 7, 2010
6 Comments
This hits home. Heart conditions are way too common to be ignoring like this. Keep them in the hospital longer!
Two days is not enough. Mothers are exhausted and babies cant show symptoms that quickly. Things need to change.
My daughter was sent home way too early and ended up back in the ER within 24 hours. The hospitals care more about insurance money than our babies lives. Its absolutely shameful.
I was terrified when they rushed me out after my c-section. I barely knew what I was doing and my baby wasnt acting right. We need more time to recover.
Keep them in the hospital for at least a week. Safety first!
So true. Insurance companies are literally killing infants to save a buck. Its time to stop them.
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This hits home. Heart conditions are way too common to be ignoring like this. Keep them in the hospital longer!