I just received word that the Kelly Miller award is officially returning and I am truly overwhelmed by this outcome. It is hard to believe that our push brought this back but this result belongs entirely to you. Thank you for making sure these children and their stories are honored …
June 27, 2016
Final supporters
All these jhdkids who struggle with juvenile huntington's disease have been deprived the past 2 years when they took away the jhd award in honor of Kelly Miller, who sadly passed away from jhd, Juvenile Huntington’s disease is a Neurological degenerative terminal brain disease…JHD refers to Huntington’s disease that has an age of symptom onset ranging from Infancy to 20 years of age.
These are the responses from HDSA
2015- Is this how all the awards are given out upon, can you explain the process, anyone can fill out a form for any category? i think the community would be interested to hear this also would you like to explain more to me please i didnt know and dont know -Jacey-
Hi jacey- Yes all National Awards given out at convention are through a community nomination process. In early spring we send out an e-mail to the HDSA community letting them know that they can nominate someone and there is a form attached to it. When we receive multiple nominations in one category a panel reviews the nominees and makes decisions based on the information submitted. Not all awards have nominations submitted. This is why this year the Kelly Miller JHD award was not given out, we did not receive any nominations for it. To answer your question, yes anyone can submit a nomination for any category, you can submit multiple nominations for every category if you wish. Here is a copy of the nomination form for 2015- click here If you have any more questions please let me know Regards, Mynelly
2016-i seen yous didn't give out a jhd award when i nominated a jhd child with a few other people who also nominated for them using the info form we were told we had to fill out to nominate.. i'm a bit confused -Jacey-
Hi Jacey, It’s nice to hear from you and I hope that you are well. Unfortunately we only received one nomination for the JHD award, and the group who reviews the nominations didn’t feel there was enough information about the nominee to give the award. Hopefully next year we get more nominations and a lot more info. I want to reassure you that we really want to give out this award and I’m really committed to encouraging nominations each year. Just because we didn’t give one out this year, doesn’t mean we won’t try again. We will! Have a nice summer, and take care. Thank you for writing! Louise
you can read some of the jhdkids stories at jhdkids.com
Princess Karli Belle getting her award
https://www.youtube.com/watch?v=MVkBmcrGyg4&feature=youtu.be
Updates
June 13, 2016
I am honestly overwhelmed by the response to this cause. It belongs to all of you who refuse to let Kelly Miller be forgotten and who care so deeply about these kids. Thank you for keeping this moving when I truly did not know if anyone else felt the same way.
Reached 100 supporters
June 13, 2016
49 Comments
PLEASE PLEASE PLEASE keep the jhd award in honor of kelly miller! Every year it is not awarded begins to feel like even the HDSA has abandoned our kids and there are many families and young people doing wonderful things in support of this battle and many children who need to know that their lives matter ...
Bring this award back! Why was it discontinued? After ALL the work Jean Miller did to establish the NYA along with Susie Hodgson, it's a shame Kelly Miller's name was taken off the award.
I live in Canada, but I will support JHD until the last breath I take, This is very important that we recognize this horrible disease and do everything we can to find a cure. My daughter also suffers from this horrible disease labelled as the worst disease known to mankind.
These kid's suffer More than many do in a lifetime. In just a few year's. These kid's are the most amazing passionate Bright funny loving kid's despite all odds they deserves a purple heart bring back the Award.
It's amazing getting a jhd award and every jhd child deserves to feel the same way and happiness excitement and worthiness that no matter what they go through they matter
I have lost many family to this horrible disease and I'm a standing strong free for hunningtons
Shame on them, this is a family disease!
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I just received word that the Kelly Miller award is officially returning and I am truly overwhelmed by this outcome. It is hard to believe that our push brought this back but this result belongs entirely to you. Thank you for making sure these children and their stories are honored …
June 27, 2016
Final supporters
All these jhdkids who struggle with juvenile huntington's disease have been deprived the past 2 years when they took away the jhd award in honor of Kelly Miller, who sadly passed away from jhd, Juvenile Huntington’s disease is a Neurological degenerative terminal brain disease…JHD refers to Huntington’s disease that has an age of symptom onset ranging from Infancy to 20 years of age.
These are the responses from HDSA
2015- Is this how all the awards are given out upon, can you explain the process, anyone can fill out a form for any category? i think the community would be interested to hear this also would you like to explain more to me please i didnt know and dont know -Jacey-
Hi jacey- Yes all National Awards given out at convention are through a community nomination process. In early spring we send out an e-mail to the HDSA community letting them know that they can nominate someone and there is a form attached to it. When we receive multiple nominations in one category a panel reviews the nominees and makes decisions based on the information submitted. Not all awards have nominations submitted. This is why this year the Kelly Miller JHD award was not given out, we did not receive any nominations for it. To answer your question, yes anyone can submit a nomination for any category, you can submit multiple nominations for every category if you wish. Here is a copy of the nomination form for 2015- click here If you have any more questions please let me know Regards, Mynelly
2016-i seen yous didn't give out a jhd award when i nominated a jhd child with a few other people who also nominated for them using the info form we were told we had to fill out to nominate.. i'm a bit confused -Jacey-
Hi Jacey, It’s nice to hear from you and I hope that you are well. Unfortunately we only received one nomination for the JHD award, and the group who reviews the nominations didn’t feel there was enough information about the nominee to give the award. Hopefully next year we get more nominations and a lot more info. I want to reassure you that we really want to give out this award and I’m really committed to encouraging nominations each year. Just because we didn’t give one out this year, doesn’t mean we won’t try again. We will! Have a nice summer, and take care. Thank you for writing! Louise
you can read some of the jhdkids stories at jhdkids.com
Princess Karli Belle getting her award
https://www.youtube.com/watch?v=MVkBmcrGyg4&feature=youtu.be
Updates
June 13, 2016
I am honestly overwhelmed by the response to this cause. It belongs to all of you who refuse to let Kelly Miller be forgotten and who care so deeply about these kids. Thank you for keeping this moving when I truly did not know if anyone else felt the same way.
Reached 100 supporters
June 13, 2016
49 Comments
HDSA: please award 3 JHD awards every year or more. These kids are sick and may never get another chance to attend an HDSA national convention. Let the honoree know months in advance that they've been chosen so they can make arrangements to attend. Move the national convention closer to California, the most populated state, every other year since it's too far and too expensive to travel to the east coast. Change how you ask for nominees for these meaningful awards.
PLEASE PLEASE PLEASE keep the jhd award in honor of kelly miller! Every year it is not awarded begins to feel like even the HDSA has abandoned our kids and there are many families and young people doing wonderful things in support of this battle and many children who need to know that their lives matter ...
Bring this award back! Why was it discontinued? After ALL the work Jean Miller did to establish the NYA along with Susie Hodgson, it's a shame Kelly Miller's name was taken off the award.
I live in Canada, but I will support JHD until the last breath I take, This is very important that we recognize this horrible disease and do everything we can to find a cure. My daughter also suffers from this horrible disease labelled as the worst disease known to mankind.
These kid's suffer More than many do in a lifetime. In just a few year's. These kid's are the most amazing passionate Bright funny loving kid's despite all odds they deserves a purple heart bring back the Award.
It's amazing getting a jhd award and every jhd child deserves to feel the same way and happiness excitement and worthiness that no matter what they go through they matter
I have lost many family to this horrible disease and I'm a standing strong free for hunningtons
Shame on them, this is a family disease!
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HDSA: please award 3 JHD awards every year or more. These kids are sick and may never get another chance to attend an HDSA national convention. Let the honoree know months in advance that they've been chosen so they can make arrangements to attend. Move the national convention closer to California, the most populated state, every other year since it's too far and too expensive to travel to the east coast. Change how you ask for nominees for these meaningful awards.