The PCT finally folded and agreed to fund the operation for Ayllah-Beau. They tried to deny my daughter her life but they underestimated our resolve. We won this fight and now she can finally get the surgery she deserves.
My 17 year old daughter has gastroparesis and is currently being tube fed into her bowel via pump 18 hrs a day. Our PCT has denied funding for an operation to fit a pacemaker to her stomach, which could get her stomach re-pumping directly and in turn allow her to eat and drink without vomitting. We are going to appeal their decision ..... Without this pacemaker She will need an operation for her Jejunostomy feeding tube to be replaced every 6-12 months .... Leaving her with a lifetime of operations . She is on endless medications and becoming increasingly depressed by her restricted life ........ Please sign in support of Ayllah-Beaus right to eat and drink.
Thank you Christine Foley .....
One thousand people have stood up to say the PCT is wrong to deny my daughter her life back. This bureaucracy is choosing to condemn Ayllah to a future of endless surgeries rather than doing the right thing. We have the numbers now so keep the pressure on these heartless officials until they stop ignoring us.
Reached 1,000 supporters
March 26, 2012
Reached 100 supporters
March 23, 2012
6 Comments
K
kishann955
11 years ago
Featured
hey why not some people live like that then theres no reason to put effort in boseting in real people some timev learn changing
K
kishann955
11 years ago
Featured
hey why not some people live like that then theres no reason to put effort in boseting in real people some timev learn changing
M
mark Shepherd
14 years ago
Featured
Ridiculous decision!! Give her the surgery so she can actually have a future. NHS needs to get it together.
E
emma Foster
14 years ago
Featured
keep going christine dont let them win. nobody deserves to live like this when there is literally an option to fix it.
S
Sarah Karimi
14 years ago
Featured
this is honestly so unfair she is 17 she should be out living her life not stuck on a pump constantly praying for you guys
D
dave Acosta
14 years ago
Featured
my niece has this too and it is hell. hope she gets the pacemaker soon.
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The PCT finally folded and agreed to fund the operation for Ayllah-Beau. They tried to deny my daughter her life but they underestimated our resolve. We won this fight and now she can finally get the surgery she deserves.
My 17 year old daughter has gastroparesis and is currently being tube fed into her bowel via pump 18 hrs a day. Our PCT has denied funding for an operation to fit a pacemaker to her stomach, which could get her stomach re-pumping directly and in turn allow her to eat and drink without vomitting. We are going to appeal their decision ..... Without this pacemaker She will need an operation for her Jejunostomy feeding tube to be replaced every 6-12 months .... Leaving her with a lifetime of operations . She is on endless medications and becoming increasingly depressed by her restricted life ........ Please sign in support of Ayllah-Beaus right to eat and drink.
Thank you Christine Foley .....
One thousand people have stood up to say the PCT is wrong to deny my daughter her life back. This bureaucracy is choosing to condemn Ayllah to a future of endless surgeries rather than doing the right thing. We have the numbers now so keep the pressure on these heartless officials until they stop ignoring us.
Reached 1,000 supporters
March 26, 2012
Reached 100 supporters
March 23, 2012
6 Comments
K
kishann955
11 years ago
Featured
hey why not some people live like that then theres no reason to put effort in boseting in real people some timev learn changing
K
kishann955
11 years ago
Featured
hey why not some people live like that then theres no reason to put effort in boseting in real people some timev learn changing
M
mark Shepherd
14 years ago
Featured
Ridiculous decision!! Give her the surgery so she can actually have a future. NHS needs to get it together.
E
emma Foster
14 years ago
Featured
keep going christine dont let them win. nobody deserves to live like this when there is literally an option to fix it.
S
Sarah Karimi
14 years ago
Featured
this is honestly so unfair she is 17 she should be out living her life not stuck on a pump constantly praying for you guys
D
dave Acosta
14 years ago
Featured
my niece has this too and it is hell. hope she gets the pacemaker soon.
hey why not some people live like that then theres no reason to put effort in boseting in real people some timev learn changing