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The PCT finally folded and agreed to fund the operation for Ayllah-Beau. They tried to deny my daughter her life but they underestimated our resolve. We won this fight and now she can finally get the surgery she deserves.

May 30, 2012

Ayllah-Beau Foleys fight for the right to eat

Ayllah-Beau Foleys fight for the right to eat

🏆 Won — 2,336 supporters Verified

Final supporters

K
kishann955
T
Tatia S.
G
green m.
D
Debbi D.
R
Richard P.
M
Michael M.
S
sebastian r.
S
sharon n.
S
Shania P.
S
Suzanne
+2,326 more
Started by Anonymous 14 years, 5 months ago
My 17 year old daughter has gastroparesis and is currently being tube fed into her bowel via pump 18 hrs a day. Our PCT has denied funding for an operation to fit a pacemaker to her stomach, which could get her stomach re-pumping directly and in turn allow her to eat and drink without vomitting. We are going to appeal their decision ..... Without this pacemaker She will need an operation for her Jejunostomy feeding tube to be replaced every 6-12 months .... Leaving her with a lifetime of operations . She is on endless medications and becoming increasingly depressed by her restricted life ........ Please sign in support of Ayllah-Beaus right to eat and drink. Thank you Christine Foley .....

Updates

March 28, 2012

One thousand people have stood up to say the PCT is wrong to deny my daughter her life back. This bureaucracy is choosing to condemn Ayllah to a future of endless surgeries rather than doing the right thing. We have the numbers now so keep the pressure on these heartless officials until they stop ignoring us.

Reached 1,000 supporters

March 26, 2012

Reached 100 supporters

March 23, 2012

6 Comments

K
kishann955
11 years ago Featured

hey why not some people live like that then theres no reason to put effort in boseting in real people some timev learn changing

K
kishann955
11 years ago Featured

hey why not some people live like that then theres no reason to put effort in boseting in real people some timev learn changing

M
mark Shepherd
14 years ago Featured

Ridiculous decision!! Give her the surgery so she can actually have a future. NHS needs to get it together.

E
emma Foster
14 years ago Featured

keep going christine dont let them win. nobody deserves to live like this when there is literally an option to fix it.

S
Sarah Karimi
14 years ago Featured

this is honestly so unfair she is 17 she should be out living her life not stuck on a pump constantly praying for you guys

D
dave Acosta
14 years ago Featured

my niece has this too and it is hell. hope she gets the pacemaker soon.