Adam Pennington 0

Special needs assistive devices and high pricing

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~ LOOKING TO MAKE A DIFFERENCE ~ I am a volunteer with the Cerebral Palsy Support Foundation of Canada and My son Evan is diagnosed with Spastic Quadriplegic Cerebral Palsy and he depends on assistive devices daily. I am looking to advocate special needs equipment and & high pricing costs for this equipment together with your help and the Cerebral Palsy Support Foundation of Canada. The Cerebral Palsy Support Foundation Of Canada has stepped forward and has a special link on their website http://www.cpsc.ca/forum/Forum.asp (you must register to post comments) Individuals with special needs, family members, friends, PT's, OT's etc. are encouraged to sign this petition. Funding seems to be the only option to get this equipment due to the high pricing involved, most times, funding is not enough or simply is not an option. Equipment should be compared to fuel prices where we simply DO NOT have a choice but to pay these outrageous prices. Manufacturers, Distributers and Dealers also should not look at this equiopment as if you cannot afford the equipment, go through funding options. Funding resources are limited when it comes to this route and sometimes the equipment we need, simply is not funded. If you wish to join me and my family along with the Cerebral Palsy Support Foundation of Canada and others make a difference in the special needs community, We would like to start a petition in relation to the HIGH COSTS of adaptive equipment these individuals need and make sure this petition gets sent to the proper governments. We are hoping to make an impact in a HUGE way and need individuals that face the same challenges as us to voice their concerns. Only we can make a difference in the lives of others by making our problems known to the government and agencies involved. As a father, I should not have to live with guilt that if within my sons period of life so far, if I was able to afford equipment my son needed, what his life may have been like today. You should not have to be well off to be able to have the freedom and independence this equipment may be able to provide you with. It is centers like Grandview that make a huge difference in the lives of special needs individuals but there is only so much they can do and as parents with special needs individuals, it is us that need to band together with other special needs families and make these issues known.

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