An Urgent Call for Integrative Neuroimmune Clinics
404 Comments
J
Jill Sanchez
9 months ago
Please, we need help. Now!!
T
Trisha Hudson
9 months ago
I am the parent of a 21 year old male currently held in a psychiatric hospital diagnosed as F29 unspecified psychosis not due to a substance or known physiological condition, while being refused the medical testing he needs for autoimmune encephalitis. Without testing and treatment his life is in serious danger. Please help!!!!!!!!
M
Miriam Rothman
9 months ago
I trust that you will do all you can about this matter. Thank you
E
Edwin Luciano
9 months ago
My daughter has had this tremor disease for 5 years and is very ill
J
Jessica Rogers
9 months ago
Our daughter has PANS/PANDAS, autism, and autoimmune encephalitis. She was vaccine injured. We have been dealing with this absolute medical nightmare for over a decade. She will be 13 in December. Please get all of these kids the help they need and deserve. They are suffering and so our their families.
G
Ginny Cashuric
9 months ago
I have 2 nephews and a niece that have been battling this disorder for over 10 years. They need help now!
D
Diane Bagarella
9 months ago
Please Mr. Kennedy do something for our children suffering from this PANS/PANDA diagnosis. My 8 year old grandson has been suffering with this fot 3 years. My daughter and son-in-law are in debt due to medical expenses not covered by insurance. They have doctors from 3 states involved. It's outrageous that in the country our medical community is so ignorant about this illness. You are our only hope. Thank you.
S
sheila tobey
9 months ago
It wasn't schizophrenia; it was proven to be brain inflammation post strep. But that info only came after years of heavily medicating her and doctors requiring us to put her in inpatient psych wards or lose her to the system. That was a decade ago and it has only escalated in frequency.
M
Megan Henkel
9 months ago
Misdiagnosis’s are happening for a medically treatable condition causing years of perpetual suffering for the children and families. More public acknowledgement, education and research is needed.
G
Gloria Lovera
9 months ago
Praying for our children
T
Tina Schoepflin
9 months ago
Please consider this important matter which is impacting many children and families.
J
Jodi DeWitte
9 months ago
Please help our children. We need urgent true change in our health care system.
K
Kimberly Reeves
9 months ago
Thank you for taking the time to put this together!!!
I pray ALL the right people see it and can help us to help our children‼️‼️‼️‼️‼️
S
Shlomo Backman
9 months ago
Please do what you can.
A
Avigail Goldman
9 months ago
Please help to heal our children.
N
Nicole Lorton
9 months ago
These kids need immune modulating care not psychiatric care.
M
Melanie Amadio
9 months ago
The affect of this autoimmune condition is devastating to the child, as well as the lives of their entire family. It can no longer be overlooked.
J
Jeanie
9 months ago
More awareness for Pans/Pandas please!
D
Dina Sparks
9 months ago
My son suffers from PANDAS. We desperately need more research and places who are knowledgeable that can treat this horrible disorder.
Please, we need help. Now!!
I am the parent of a 21 year old male currently held in a psychiatric hospital diagnosed as F29 unspecified psychosis not due to a substance or known physiological condition, while being refused the medical testing he needs for autoimmune encephalitis. Without testing and treatment his life is in serious danger. Please help!!!!!!!!
I trust that you will do all you can about this matter. Thank you
My daughter has had this tremor disease for 5 years and is very ill
Our daughter has PANS/PANDAS, autism, and autoimmune encephalitis. She was vaccine injured. We have been dealing with this absolute medical nightmare for over a decade. She will be 13 in December. Please get all of these kids the help they need and deserve. They are suffering and so our their families.
I have 2 nephews and a niece that have been battling this disorder for over 10 years. They need help now!
Please Mr. Kennedy do something for our children suffering from this PANS/PANDA diagnosis. My 8 year old grandson has been suffering with this fot 3 years. My daughter and son-in-law are in debt due to medical expenses not covered by insurance. They have doctors from 3 states involved. It's outrageous that in the country our medical community is so ignorant about this illness. You are our only hope. Thank you.
It wasn't schizophrenia; it was proven to be brain inflammation post strep. But that info only came after years of heavily medicating her and doctors requiring us to put her in inpatient psych wards or lose her to the system. That was a decade ago and it has only escalated in frequency.
Misdiagnosis’s are happening for a medically treatable condition causing years of perpetual suffering for the children and families. More public acknowledgement, education and research is needed.
Praying for our children
Please consider this important matter which is impacting many children and families.
Please help our children. We need urgent true change in our health care system.
Thank you for taking the time to put this together!!! I pray ALL the right people see it and can help us to help our children‼️‼️‼️‼️‼️
Please do what you can.
Please help to heal our children.
These kids need immune modulating care not psychiatric care.
The affect of this autoimmune condition is devastating to the child, as well as the lives of their entire family. It can no longer be overlooked.
More awareness for Pans/Pandas please!
My son suffers from PANDAS. We desperately need more research and places who are knowledgeable that can treat this horrible disorder.
Please make this a priority!